Over 50% of MS Patients Report Urinary Problems in Italian Study

[shorty]

You certainly do need to do your homework John. When I was in hospital being nuked, radiation therapy, a doctor arrogantly, without informing me let alone discussing it, changed my prescription from Mirabegron to Oxybutynin. I had been using this previously but found I couldn’t tolerate it so we had a verbal altercation in the 4 bed ward which was embarrassing for the doctor.

[John Connor]

Good for you mate. I did a similar thing recently when about to go home from hospital and the doctor refused to remove an indwelling catheter. I had a whole ward, nurses & 2 ambulancemen [suppressing snickers] over my threat to do a lie down strike. It was an away win. x

[Jilly]

I have PPMS and use Oxybutynin for about 3 years. They work really good, but for how long as I have had to up it to two a day. They also helped number two’s as well, takes the sense of urgency away, giving me time to get to the bathroom. Yay to that!

[Stephen Kent]

I’ve had problems with urinary and BM. I’m in an assisted living nursing home. Today out of the blue they decided I’m physically able to give myself a bed bath(not true). They say if I can operate a wheelchair I must be fine. It took me 3 Years to be strong enough to with help stand up with my walker an slowly back up an get helped into my wheelchair. The said they saw me brush my teeth. I can feed my self. I must be well! So wrong, so sad. I need help and welcome it. Today my life was turned upside-down. Oh well.

[Jilly]

Hi Stephen, sounds like a rough day.  You need a support person, like a family member or close friend to bat for you.  How dare they treat you like that.  It’s pure ignorance.

[ed-tobias]

Hi Stephen,

I’m really sorry that happened to you. Do you have a regular physician or neurologist who sees you? If so, I’d suggest mentioning it to the doc and seeing if he or she can go to bat for you.

Ed

[John Connor]

Hi Stephen,
I echo Jilly’s answer.
Just looked up your profile & see that u’re in the US. Don’t know enough about your health infrastructure as a Limey! But here would reach out to the UK MS Society et al for help/advice.
Also u must be a paying client – there must be a complaints procedure?
If u r on your own [no family support perhaps] it must be hard to make a stink. But I was always a fighter in my own way – in my case political correctness in comedy in the 80’s. Not the extreme case u have now BTW!
I found that this all came in v. handy to fight the innumerable battles that being severely ill get thrown at u. U’d think society would make it easy on us but it’s always the most vulnerable that often get short shrift.
There must also be a medical authority complaints procedure.
Of course if it’s like ‘One Flew Over the Cuckoos Nest’ ignore all that. Just hope u’ve got a huge native American friend to sort it!
Best John

[Randy B Tripp]

I had severe incontinence problems to the point I couldn’t hold my urine hardly at all. My neurologist asked me if I would be interested in receiving a Botox injection into my bladder. I told him I would try anything. To make a long story short when asked if the procedure works my reply is “it gave me my life back”. Don’t get me wrong I still have other MS problems but Urinary Incontinence isn’t one of them anymore. The injection was done in an operating room and I was asleep during the whole procedure. The results were supposed to last about 6 months, but I had my procedure done 9 months ago and I still have control with leakage from my bladder.

[ed-tobias]

Hi Randy,

I’m very glad you posted this because I’ve been considering this procedure. Was this same-day surgery? How quickly did it work? Do you need to self-cath and, if so, how difficult is that.

Thanks,

Ed