Daily living

Flight is freedom in its purest form, To dance with the clouds which follow a storm; To roll and glide, to wheel and spin, To feel the joy that swells within; To leave the earth…

Waking up in the morning and facing the world brings a sense of wonder. Not in the sense of awe, just in wondering how MS will affect me today. Is it a good day or a bad day? What will it bring? Like most people,…

  Do you remember when you applied for a handicapped license plate? I put it off for quite a while after I was diagnosed. After all, I could walk several city blocks fairly easily. I could still play a little tennis. Why did I need to park in a…

People with multiple sclerosis, especially those with cognitive disabilities, have more problems managing their personal finances — paying bills on time or using a credit card — than those without this disease, researchers report in the study, “Money Management Activities in Persons With Multiple Sclerosis,” published in the…

My MS Manager has been named by Healthline.com as one of the best multiple sclerosis (MS) apps for the fourth consecutive year. Formerly known as MSAA Self-Care Manager, the free application for Apple iOS and Android smartphones and tablets was created by the Multiple Sclerosis Association of…

In my weekly news review, I take a brief look, from my MS patient’s view, at a few of the stories behind the headlines that have appeared on Multiple Sclerosis News Today over the last seven days. 14 Celebrity Ambassadors For the Multiple Sclerosis Cause It looks as…

Am I alone with MS? I do wonder that, sometimes; at those times of fatigue and frustration when the darkness envelopes you. When you pound the floor having fallen again; when you curse this monster inside you; and when you cry out “Why me?” But, of course, I am not…

Researchers at the Shepherd Center in Atlanta are developing a prototype that addresses physical and cognitive parameters, daily routines, and homes of patients to better implement rehabilitation within the home environment. The study was presented in “Functional Home Evaluation: Missing Pieces in Treatment and Transition Processes” during the Consortium…

I’m sure I’m not alone when I say that I’m glad to be done with cold and dreary weather. Bring on the sunshine! But my excitement is tempered a bit because, like many people with MS, I find the heat exhausting; it saps my energy and makes it even harder…

I just picked up a T-shirt that says, “Eat Well and Travel Often.” It was obviously made just for me. Traveling to new places and seeing new things is something I enjoy tremendously. And enjoying delicious meals makes me feel pampered and cared for. But since I can’t travel to…

Genzyme, a specialty care unit of Sanofi, announced that TV and film actress Madeleine Stowe will host its new online series, “Take Action on MS,” focusing on people living with relapsing multiple sclerosis (MS). Stowe, whose father had MS, works with Genzyme to educate people across the U.S. about daily life with the…

Elissa Holzman is an MS Health Coach who specializes in nutrition and a healthy lifestyle for supporting those with the disease. She was diagnosed with multiple sclerosis in 2005, which led her to pay closer attention to how she treats her body. In her new column for Multiple Sclerosis News…

A team of researchers from the Netherlands have developed an interactive web-based program called MSmonitor that offers multiple sclerosis patients a way to manage and better integrate the multidisciplinary care they require. Pilot data from a study of its use is detailed in the article, “The interactive web-based program MSmonitor for…

The holidays can be stressful on everyone, and especially on those with multiple sclerosis (MS). A health specialist is offering these eight suggestions to MS patients and their families as a way to enjoy this season, and to keep it as free as possible of disease flares or symptom worsening. Increased demands on daily routines, travel,…

A new partnership between ARM and HeartToHeart Networks LLC has brought healthcare providers of patients with neurodegenerative disorders, such as multiple sclerosis, a new and secure tool for remote health management. The novel health management (RHM) solution combines technology from both companies. It uses mobile devices adapted with a Trusted…

Multiple Sclerosis affects more than 600,000 people in Europe. These are some of their stories. Learn more about Multiple Sclerosis here: https://bit.ly/1PBLn0c…

Kessler Foundation researchers recently reported that the Brief International Cognitive Assessment for Multiple Sclerosis (BICAMS) is able to predict the performance of normal daily activities. According to the researchers, the BICAMS is a promising tool to predict actual functional performance in participants with multiple sclerosis (MS). MS is a progressive…

An international research team recently reported that the web-based MSdialog app is being adopted by both multiple sclerosis (MS) patients and healthcare providers. The study is entitled “Patient and Physician Perspectives on MSdialog, an Electronic PRO Diary in Multiple Sclerosis” and was published in the journal…

Multiple sclerosis (MS) is a condition which damages parts of neurons resulting in inefficient communication within the nervous system. It is believed that autoimmune disorders and environmental factors, such as infections, can cause MS disease development. There is currently no cure for MS, although the disease can be managed by medications…

A new study published in the American Journal of Occupational Therapy assessed the cognitive factors affected in multiple sclerosis patients concerning their activity and participation in everyday life. The study is entitled “Factors That Moderate Activity Limitation and Participation Restriction in People With Multiple…

Biogen, a global biotechnology company with over 30 years of clinical excellence in Multiple Sclerosis (MS) research, has recently announced the launch of Reimagine MySelf, a blog dedicated to helping women navigate their daily lives while also dealing with the complications that come with a diagnosis of relapsing MS…

The Multiple Sclerosis Association of America (MSAA) has updated its smartphone app My MS Manager with several new features. My MS Manager, a first-of-its kind mobile phone app supporting both Apple’s iPhone (iOS 7.0 or later) and Android mobile devices (also works with iPads, iPod touch, and Android…

Most employers these days talk about having workforce diversity oriented policies that support hiring people living with disabilities and chronic diseases, but what distinguishes rhetoric from reality? What in positive, practical terms can companies do in support of helping people living with visible or invisible challenges find and keep gainful…

For those with Multiple Sclerosis, the progressive manner in which the disease slowly deteriorates motor function, balance, and coordination can make home maintenance an impossibility. Add to this the well-documented issues that MS patients have with finding and keeping jobs and very quickly the cost and effort to maintain…

Highmark Blue Cross Blue Shield is trying to assess the possibility of predicting good and bad days for people suffering with multiple sclerosis (MS) and help them to achieve a higher quality of life. The four-week pilot program enrolled almost 100 participants that wore a body sensor patch,…

Oceans of Hope, a 67-foot sail yacht currently docked at North Cove Marina, New York, is on a round-the-world voyage to become the first ship to ever circumnavigate with a crew of people who have Multiple Sclerosis. The voyage, initiated by Sailing Sclerosis Foundation, set sail from Copenhagen, Denmark…

Patients who suffer from progressive conditions, such as multiple sclerosis (MS), are submitted to unnecessary evaluations for disability benefits and often denied the full payment of their out-of-work benefits or deemed as fit to work when they are in fact not able. This new perspective was highlighted by a…

Cambridge, Massachusetts-based Biogen Idec has just announced a new support program for people living with multiple sclerosis (MS) that encourages patients to turn their attention to daily activities that enhance their emotional and mental state. The newly launched MS Blueprint program assists patients and caregivers in setting positive and realistic goals,…

Multiple Sclerosis information resource MSology.com has announced the launch of MS Radio, an exclusive MS-focused radio program, to celebrate the organization’s second anniversary. MSology.com provides news, feature articles and practical tips to more than 100,000 people worldwide. The first radio episode (available here) is a…

One of the concerns patients with neurologic diseases such as multiple sclerosis face is decline or loss of bladder control. It can be an embarrassing and frustrating problem, which is estimated to occur in about 80% of MS patients, as the disease causes a slowing down or interruption in signal transmission…