Jamie A. Hughes was diagnosed with MS in 2004 at the age of 25. But she’s so much more than those two letters. A wife, adoptive mother, daughter, sister, friend, teacher, and writer/editor, she lives life the only way she knows how — one day at a time. An Arkansan by birth and Floridian by choice, she now lives in the Atlanta, Georgia area. You can read more of her writing at tousledapostle.com and follow her on Twitter @tousledapostle.
I am now 41, at the beginning of “middle age,” and I’m tempted to give it the middle finger. It’s a halfway point, a layover, a way station — ... Read more
Living with MS can sometimes feel like you’re performing a one-woman (or man) show. Think about it. How many times have you pretended to be OK when you didn’t ... Read more
For the last two weeks or so, I’ve begun my mornings by slapping on some makeup and, with my hair in hot rollers, sitting down to read a page ... Read more
I was at a church function last Saturday, chatting with the guest speaker and her mother, and I noticed that the older woman was making several trips to the ... Read more
My husband and I were driving home from church a few weeks ago, cars zipping around us every which way. He looked at me and said, “Do you ever ... Read more
What do a broken-down, out-of-tune piano and multiple sclerosis have in common? Well, they’re both disorderly and confusing, to say the least. But there’s something else — they have ... Read more
When I first learned that I had multiple sclerosis in late January 2004, the thing I worried about most was losing my mind. No, I’m not referring to stressing ... Read more
Playing Billy Beane in “Moneyball,” Brad Pitt utters the now famous line, “Adapt or die.” (Warning: The scene linked here has a few naughty words in it.) He’s referencing ... Read more
An awesome friend of mine at work who is learning to master Spanish as a second language has been using a podcast called “News in Slow Spanish” to increase ... Read more
“I’m alive,” said Shadow. “I’m not dead. Remember?” “You’re not dead,” Laura said. “But I’m not sure you’re alive, either. Not really.” This snippet of a longer conversation in ... Read more
Ah, it’s a new year. And what would a new year be without a few resolutions and goals to kick it off? Rather than a set of instructions, a ... Read more
My eldest son, like thousands of other kids in the world, struggles in school. He’s partially deaf, and some of his challenges stem from inescapable biological factors. However, there’s ... Read more
Even when a major holiday isn’t scheduled in a calendar month, I’m a pretty busy lady. I work a full-time job that requires me to be present and “on” ... Read more
Like many comic book geeks, I’ve been sitting shiva for the last few days, mourning the passing of Stan Lee. I never met the man in person, but I ... Read more
Books. Magazines. Journals. Emails. Online articles. Newsletters. Podcasts. Local and cable news. The quantity of information we take in daily is impressive — overwhelming, even. According to a 2009 report ... Read more
At work a couple of weeks ago, I met a man who works with Christians in the Middle East. He is training leaders who are taking on the challenge ... Read more
After reading more than a few articles about how social media demolishes our attention span, prevents us from forming healthy real-world relationships, and causes higher-than-normal rates of depression, stress, ... Read more
A couple weeks ago, I went to my neurologist’s office early for my annual MRI. It’s never a pleasant experience. Even after 14 years, it’s still as unsettling as ... Read more
This past weekend was a busy one. My husband and I flew to Las Vegas on Saturday morning, saw a concert there Saturday night, and then flew home Sunday ... Read more
Aug. 1 was a busy day around our house. Backpacks needed to be loaded up, breakfasts consumed, pictures taken, and shoes tied tightly before the bus arrived. Yes, it was ... Read more
I’ve been thinking a lot about privilege in recent months — what it enables as well as what it prevents. Those who benefit from it may not be aware ... Read more
Maybe it’s because I’ve been listening to too much Jackson Browne lately, but I’m distressed by the state of the world these days. And it’s not the big-ticket stuff ... Read more
Recently, I was required to take a “quick” 100-question test to determine what my Enneagram number is. (I’m a 5, in case you’re curious.) These questions — answered by ... Read more
I don’t know about you, but oftentimes my thoughts are as unruly and irrepressible as Mickey’s broomsticks in “The Sorcerer’s Apprentice.” Whether I’m worried about the tingling in my ... Read more
If you read my last column, you’re well aware that there has been some drama around Casa de Hughes over the last few weeks. I can now happily say ... Read more
It’s easy to be lulled into a false sense of security, to think you’re the supreme authority in your life. And when that ersatz truth is ripped away, as ... Read more
Every personality test and trait indicator quiz I take tells me the same thing: I’m a polymath. Basically, it’s a fancy Greek word meaning “a person of wide-ranging knowledge ... Read more
It’s spring — at least, it’s supposed to be — so getting stuck at the airport due to snow was the last thing I expected during a recent trip ... Read more
When I tell people I have multiple sclerosis, I usually get one of three responses: • “Oh, no! I feel so bad for you!” (Pity) • “Is that the ... Read more
Mary Schmich, a columnist for the Chicago Tribune, wrote a 1997 essay aimed at graduates. In it, she shared many practical nuggets of wisdom such as “Floss,” and thoughts like, ... Read more
Mahatma Gandhi once said, “There is more to life than increasing its speed.” That’s not a lesson modern American culture has taken to heart, is it? Seems like we’re ... Read more
I’m currently working on an essay about the power of silence. And, in the process of planning this thing, I realized I don’t do so well with it — ... Read more
Get plenty of rest. Drink lots of warm fluids. Use a humidifier. Gargle and flush your sinuses with warm salt water. Blow your nose early and often. Take over-the-counter ... Read more
Wendell Berry, a novelist, poet, farmer and environmental activist, has written a number of superb books. Don’t believe me? Go read “Jayber Crow” and shoot me a message. I ... Read more
Christmas is just around the corner, and that’s why many people are on the fruitless quest for Fingerlings or hocking an organ to buy the new iPhone. Both might ... Read more
Because I come from a retail family — one that, for decades, put in long hours behind cash registers and in stock rooms — Christmas is not a holiday ... Read more
