Jamie A. Hughes is a writer-editor living in Atlanta, Georgia with her husband, two sons, and a pair of very needy cats. She was diagnosed with relapsing-remitting MS in 2004 when she was just 25 years old. A lover of words since birth, she wasn’t about to let two little letters get her down. They don’t get the last word. And that’s why she writes her column — to help those dealing with MS to live more thoughtful, hopeful, and inspired lives.
I don’t know why I find it so impossible to sit still. I feel like every moment I’m not engaged in some creative pursuit, I’m somehow missing out. Or worse, I’m squandering what poet Mary Oliver calls my “one wild and precious life.” Multiple sclerosis (MS) has done…
As hard as it is to believe, another school year is drawing to a close. It still somehow takes me by surprise every time. It feels like just yesterday that I was buying new shoes and helping my eldest navigate the halls of high school for the first time, and…
I don’t really like problems. And I don’t think I’m alone in this. No one I know wakes up hoping a seemingly insurmountable obstacle or painful trial is flung smack in the middle of their path. If it were up to me, I’d rather wake up to perfect hair, hit…
Well, dear reader, my time in Florida is coming to an end. Mom is home from the hospital after her surgery and a stint in rehab. She has begun outpatient physical therapy, and slowly but surely, she’s getting back to a new kind of normal. My being here is…
I have a friend who’s truly blessed. Aside from the typical struggles that come with being an adult, he has few problems. Seriously. Neither he nor a loved one has had any major medical issues. No one in his immediate family has passed away yet, and while he’s not rolling…
I’ve always liked the quote, “Everyone you meet is fighting a battle you know nothing about. Be kind. Always.” Some folks think it was penned by the Scottish author Ian Maclaren (sometimes MacLaren). Others attribute the quote to actor Robin Williams (which is fitting, I think, given the…
It’s been a couple weeks since my last column, and things with my mother have proven more challenging than we expected. She’s had another minor procedure to stop fluid from building up in her chest, but she is progressing with her rehab and continues to gain strength. Hopefully, we’ll…
Well, dear readers, I took a bit of time off from writing this column, but not by choice. January was an incredibly hectic 31 days, and I spent most of them living with my parents in Florida. Why? Well, because my mother has been dealing with some health issues…
One of my favorite episodes of “I Love Lucy” is the one where Lucy and Ethel get up to some hijinks (and don’t they always?) in a candy factory. You know the one. At first, the bonbons come down the belt slowly, each one easy to wrap. But…
If there’s one thing those of us who have multiple sclerosis (MS) know all too well, it’s that life requires balance. Fellow columnists and I have written about the need to find a happy medium when it comes to mental, physical, and emotional well-being.
Well, dear readers, I finally did it. The recital I’ve been telling you about finally took place after several long delays and a good bit of scrambling, and all those singing lessons were finally put on display for a public audience. I’d like to tell you I stepped…
I’m a fairly neat and tidy person, but you wouldn’t have thought that if you’d looked in my kitchen over the last few weeks. Bottles of oils, jars full of melted wax, bags of butters and soaps, and boxes were scattered everywhere. My husband is a beekeeper, and…
In one of my favorite scenes of the 1970s movie “The Goodbye Girl,” Paula McFadden (played by Marsha Mason) begs Elliot Garfield (played by Richard Dreyfuss) to quit playing the guitar late at night when he can’t sleep. “Have you ever tried pills?” she asks, to which he…
A voracious reader since childhood, I’ve often lost myself inside fictional worlds — often preferring them to the real one where I’m forced to live. This was especially true when I was diagnosed with multiple sclerosis (MS) almost 18 years ago. When my eyes and ears were focused on…
There’s a poignant scene in “Forrest Gump” in which the title character and his best friend, Jenny, walk up to the shack where she was raised (and was raped and abused by her drunken father). She stares at the place for a moment and then begins hurling things…
My eldest son just started high school, which makes me feel both incredibly old and somewhat proud of myself for surviving this long. People have been telling me the teenage years are the hardest, but I have a leg up since I used to be a high school teacher. The…
When I was a kid, I adored novelty. I always wanted something different to experience, a new place to go. In my mind, there was nothing worse than doing the same thing week in and week out. However, I’ve come to appreciate routines as an adult, especially because…
For the last few months, I’ve been mired in something I can only describe as a funk. My job, my family, my faith, my entire life — no matter what aspect we’re talking about, I felt like I was stuck. I mean like soul-in-a-straitjacket stuck. Honestly, I hadn’t felt anything…
Unless you’ve been living under a rock or are somehow lucky enough to live on your own desert island, you’ve probably noticed that things are kinda difficult these days. I mean, COVID-19 is still a thing, and now we have monkeypox to deal with. Everyone seems to be…
Back in November, I told you all about my decision to start taking vocal lessons with a coach. Well, I’ve been at it for about eight months or so, taking an hour-long lesson every other week, and while I can tell that I’ve made some progress, I’m still not…
The last few months have been a bit stressful, to say the least, and with the thousand and one worries and distractions I was facing, I couldn’t help but think of the opening lines of a William Wordsworth poem: “The world is too much with us; late and…
I recently did a little research to write an article reflecting on a photograph of the Library of Celsus. This marvelous piece of architecture was commissioned by a Roman consul named Gaius Julius Aquila as a funerary monument for his father. It was once home to…
The last few years have been rough for a whole host of reasons, and I think it’s safe to say that most of us in the United States feel utterly lost and burnt out. There’s no shortage of things to be stressed about and afraid of. I feel like…
Last weekend was a busy one. On Friday, I had to drop my eldest son at school at 5:30 a.m. for a field trip and then pick him up at 11 p.m. A nap wasn’t in the cards, I’m sad to say, and at some point in the evening, I…
Living with multiple sclerosis (MS) is hard. I know this is hardly a revelation, especially to those of us who struggle with it on the daily, but I felt like it needed to be said. I was scanning through articles on this site recently, seeing what my fellow…
Last year, I got the chance to read and review Edith Forbes’ medical memoir, “Tracking a Shadow.” I thought it was an encouraging and thoughtful work, so I contacted her by email for an interview to share her thoughts with readers of this column. Forbes graduated from Stanford…
In the South, we have a tendency to cram words together to create a single gigantic one, a kind of linguistic Pangea, if you will. The one I’ve been using a lot lately is “usetacould,” a condensed form of the phrases “I used to be able to” and “I once…
We are a three-cat household because, well, felines are awesome. They’re entertaining and sweet. They love to give cuddles. And they’re fairly self-sufficient — no baths or walks necessary. Just keep food and water in ample supply, and they’re good to go. The only problem? Litter boxes. We have this…
Spring is rapidly approaching. It’s warming up outside. The trees are starting to bloom. And inside our home, I am once again plotting to refresh the place. Out with old decorations, and in with the new! Declutter that closet! Donate the table and chairs that still look great because you…
The past two weeks have been a bit of a blur. Our younger son caught the COVID-19 virus at school, and once we got a positive home test, we went into containment mode. While I took him to get an official test at a local clinic, my husband got everything…
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