Tinnitus and MS: An Annoying Combination

I was diagnosed with RRMS in 2009. I was also diagnosed with pulsating tinnitus and subjective tinnitus about 1 year ago. I had to have a CTA and regular brain MRI to rule out anything dangerous. The pulsating part went away; I think it was caused by one of my medications. My subjective tinnitus has continued. It is really irritating! They believe it is caused by some hearing loss in the high pitched ranges. A white noise machine helps at night. I am going to try Neuromonics soon. They now offer an "Alleviator" for mobile devices. I hope it helps!

Has anyone tried pycnogenol (dietary supplement) for tinnitus and did you notice a difference? I was thinking of trying it. I've had tinnitus for years,and usually I'm not aware of it, except at night when it's quiet.

An excellent link for information related to symptoms of Meniere's and tinntinus. http://www.menieres-disease.ca/menieres-and-mercury/index.htm

Individuals who had developed tinnitus and Menier's disease recovered after having their silver amalgam fillings removed by a dentist trained to safely remove them. Benjamin Zander's,(conductor of the Boston Philharmonic Symphony) testimony to the FDA: Amalgam Filings and Menier's Disease.

I have had hyperaccusis, pulsatile tinnitus, middle ear myclonus and radom crackling buzzing noises in right ear for years now. My right cheek and eyelid will also twitch and tremor. OtoNeurologist says it is synkinesis of the 7th and 8th nerves caused by MS.

I am currently in the process of a diagnosis for my symptoms but have episodes related to MS. When I do have an episode, which is once a month, I experience loud ringing in my right ear, swooshing sounds, which can drowned out any conversation I am engaged in. I also loose some hearing in my right ear which is no fun! I hope my Neuro doctor can help me!

I got pulsatile tinnitus about a month ago. I went to Urgent Care, & they prescribed allergy & sinus meds, which did not help. I was talking to one of my non-MS friends about it, & lo and behold, she had had this too! She said that she tried different things, too, which didn't help; then she saw an ENT, who put her on a course of steroids, & that worked. I happened to have an unused steroid pack in my medicine cabinet, so I took them. I'm happy to report that the tinnitus went away last week! Hopefully, it stays away ?

Mine is very loud and 24/7. I was told several years ago that I had TMJ and needed braces. $5000 later I still have ringing in my ears. Just one of the many symptoms that were misdiagnosed before I was finally diagnosed with multiple sclerosis

For myself, I stumbled upon an effective treatment that reduces and eliminates my tinnitus as long as I take it regularly. When I first experienced tinnitus, it was so distracting and sometimes sounded like a train whistle going right through my head. I was miserable and really could not ignore it. I made an appointment with an ENT to rule out any type of ear infections, blockage, etc. Having passed all hearing tests and exams with flying colors, I accepted my neurologist's diagnosis of it being related to my MS. Both doctors told me there was no effective treatment for this and trying anything over the counter would just waste my money. Being stubborn and going crazy from the noise, I still tried OTC remedies and of course, wasted my money :( Then I had a major surgery and was put on the pain medication Tramadol HCL 50mg. I noticed that while I was taking this prescription during my recovery, my tinnitus all but disappeared. When I no longer needed it for my recovery, my tinnitus came back as loud as ever. Discussing this with both my GNP and my neurologist, I now continue the Tramadol just once a day and my tinnitus is under control. If I forget to take a pill, my ringing ears remind me loud and clear! I hope this will be encouraging for others to discuss this option with your doctors.

I use aspirin when I get hit with pulsating in my left ear. I've also read that Vitamin B and zinc help. I wish everyone success in dealing with this annoying condition.

Hello I've had ringing in my right ear for 2 years now after a bout of severe dizziness that lasted about a week. ENT told me I had BPPD(Benign Paroxysmal Position Disorder) I went thru 3 months of PT and the Epley maneuver treatment. Dizziness went away but ringing stayed. Then they told me they didn't think it was BPPD but maybe Menneirs or "could be" from the MS. Neuro told me "yes, a lot of things are blamed on MS"... and that was it from him. I also have a cervicle spine condition called OPLL. I have fusion in pretty much whole neck with plates, bars, and screws. Ortho said he doubted ringing in ears is from that. I went to a cardiologist and had several tests and everything was fine (thank goodness) Have tried stopping salt and caffeine. Didn't help. Looked at all my meds and didn't see where any had this side effect. So I live with this constant subjective annoying ringing. Any ideas where to go next?!

I have a brain injury and was prescribed Amantadine. I was wondering if it can cause ringing ears. I've been taking this for about 2 years but just recently noticed the ringing of ears.

I was diagnosed with MS in 1996 and it is stable/not severe. Ten years ago I started having ringing in the ears and later hearing loss. Now hearing loss in both ears is severe to profound; I wear hearing aids.

After three ear doctors, neurologist and GP, no one has been able to tell me why. It is unfortunate that I have been the one to figure this out. I believe it was caused by numerous ototoxic drugs. One, amytripyline, which I have been on for nearly 30 years. Others include anti-histamines, pain relivers (asprin, NAS, etc.). I have recently stopped taking all that I can that have these side effects. We will see if I recovery any.

There are no drugs that repair damage to inner ear, but there is one gene study currently taking place.

Here is a helpful list of drugs, herbs that are ototoxic and can cause tinnitus.

http://www.ata.org/sites/default/files/Drugs%20Associated%20with%20Tinnitus%202013_Updated2017.pdf

I had mercury removed and chelation therapy right after my MS diagnosis. Hope this helps.

I've suffered from tinnitus for about 8 years now and have tried almost every "remedy" or supposed "cure" on the market. The things that have worked for me are: reducing my salt intake, increasing my ginger intake, temple massages, the incorporation of white noise, and I started taking LipoFlavonoid supplement about 5 months ago. I saw an ad and thought to myself theres no way this works but they said give it 2 months and then decide. After 2 months there was a noticeable improvement in the ringing in my ears, so I've continued taking it. They're still doing a 60 day money back challenge so it's worth trying honestly, you never know with tinnitus what will work for you. You can get more info on that here https://lipoflavonoid.com/content/22-lipo-flavonoid-60-day-challenge

Hi,

I don't know if this will help anyone with tinnitus, but it helps a member of my family. I'm sure u probably already know this, but the article stated that if we know of any helpful suggestions that might help block the annoying sound of the tinnitus, to comment.

Therefore, what helps them get a better night's sleep, is having the air purifier on, because it gives the sound of white noise.

I never had tinnitus until about two 6 weeks ago after listening to pink noise with cheep ear phones to help me sleep,I woke up to ringing ears and there still ringing.I know every one will think I,m crazy but it really happened.

One thing I find curious is increased red blood cells leads to tinnitus and increased red blood cells is accompanied always by increased viscosity of the blood, more blood, more viscous blood. So, since increased viscosity of the blood is a symptom of MS, could simple phlebotomy reduce the tinnitus?
"26.2% of patients demonstrated an appreciable increase of blood viscosity"

Hi, I’m in middle of a relapse, I have tinnitus on a low scale,some times worse than other.
Because I’m having a relapse the tinnitus is extremely loud in my head. I’ve never contact it to the ms. But if I have a bad episode the tinnitus is always louder. Is it worth mentioning it to my neurologist? Or do I really want to throw anything else into the mix???

Hi, I’m in the middle of an episode at the moment. I have tinnitus normally, but when I’m having an episode it extremely loud. I know if I’m going to have a bad day it’s always louder.I’ve never connected the tinnitus with the ms before? I’ve been told in the past its nerve damage. But never connected the two. Don’t know weather it’s important to tell the neurologist? Or is it just something els to add to the mix???

I have had ringing in both my ears since I was in my twenties I am now in my sixty's and I have a loud wind blowing noise in my right ear a twitching in my right eye and face also drooping eyelid on right side as well this noise in my ear and Twiching is driving me crazy any ideas as to what is causing this

I was diagnosed with RRMS in 2001. About two years ago I came home after a particularly gruelling walk and was obviously exhausted. I lay down and noticed this high pitched ringing in my head that sounded like a machine was being operated inside and felt like severe pressure to the back of my head. After a sleep it subsided.
The tinnitus as I assume is the cause, has continued to come back on and off ever since, and always comes on when I have overdone things, or had a big day out. The more I've pushed myself, the worse it gets and I often dont hear it till I'm home in the silence then I can't imagine how I hadnt noticed its that bad.
I've also started getting pusatile tinnitus, which is most definitely triggered from a particularly tiring day out.
The whole family went to the football on Saturday and our seats were in the hot direct sun. I had to keep going down into the breezeway and splashing water on my head. I also copped some really loud shouting right beside my head from my over excited partner and at the time it was like white hot pain shot through the whole side of my head. I felt traumatised by the intensity and had to immediately go sit in the shade and hold my head and I just cried it was so awful.
Naturally when we got home later I noticed the pulsatile tinnitus was off the charts bad! After a nights sleep the pulsatile part settled down but now 2 days later I still have constant high pitched tinnitus and my balance is all off again. I also feel so exhausted that I've spent 2 days barely functioning.
I was on baclofen for 9 months and that made my tinnitus worse and my balance was unbelievably bad. I didn't equate the tinnitus with the woeful balance but now I'm off baclofen both the tinnitus and the balance had improved. I've also been doing physio and hydro which had made a huge improvement to my balance. Now I'm swaggering all over the place after the footy episode and feeling very frustrated.
The tinnitus started before the baclofen so it wasnt caused by that. I've had an MRI to rule out a tumour, just had bloods to rule out thyroid and anaemia. The fact it comes on after being very active makes me believe it is MS related. I really hope I dont end up with permanent hearing loss, I am already borderline legally blind due to cataracts at birth.
Anyway just thought I'd tell my story so others might take note of whether their tinnitus is worse, or starts pulsating after too much physical activity.

I've had tinnitus for a very long time. Well ear ringing anyway. It has always been put down to loud music and not wearing ear plugs for much of my life. I've only started using them in the last 15+ years. Now I'd even wear them in a bar depending on the noise level. At one point a French acupuncturist told me that it was related to kidney problems, but I never agreed with that one. The quality of ear plugs has greatly improved too so that helps.

Haven't noticed it getting worse since diagnosis, my hearing is still as sharp as it has been for audio quality control in work and most regular situations. I can generally hear sound issues that don't even register for younger staff. Still want to get a hearing test done to see what level I'm actually at. Never have my mp3 player volume louder than 3, unless a track has a lower analogue audio level. Then it may go up to 4.

I started experiencing tinnitus for the first time ever about 8 weeks ago along with an exacerbation (main symptom was dysphagia and flare up of rosacea on skin and in my eyes) The tinnitus comes and goes and is mainly a crawling sensation which sometimes seems like a spasm. I have had relapsing/remitting MS for many years. Would appreciate any feedback from others who have this sensation.

Worried beyond belief. Dec 2016 I had pain behind my eye and went to a neurologist who gave me an mri. Nothing found and told maybe I had a problem with one of the nerves in my face. 2022 I went to a neurologist to discuss intermittent tinnitus. Within a day of leaving his office I started experiencing tinnitus constantly combined with numerous other MS symptoms. I have an mri scheduled for tomorrow and hoping it all just stress