Address Primary Symptoms to Avoid Secondary Ones

Debi Wilson avatar

by Debi Wilson |

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exercise and MS

Faith of the Mustard Seed
Multiple sclerosis is a very complex disease that attacks the central nervous system. The symptoms MS generates are random, affect everyone differently, and are categorized either as primary MS, or secondary MS, symptoms.

Primary MS symptoms are the direct result of the disease itself — byproducts of the damaged nerves in the spinal cord and the brain. Secondary MS symptoms can be thought of as branches on a tree; they stem from the primary symptoms.

The layering effects of MS can be overwhelming. A positive note is that secondary symptoms may eradicated if the primary symptoms can be controlled.

In an article in MS Focus Magazine, titled “Primary and Secondary MS Symptoms: Symptoms Causing Symptoms,” Kathleen Costello, MS, CRNP,  states that “some symptoms may be a direct result of multiple sclerosis, some may be a complication of MS symptoms and some may not be related to MS at all.”

Costello uses examples of primary and secondary symptoms as follows: Urinary urgency, or retention issues, could develop into a urinary tract infection; weakness and gait issues could progress to hip and back pain; and being immobile can lead to pressure sores. She adds that is best to catch the primary symptom early to stop progression to the secondary level.

From my experience with gait issues, using the proper mobility device is very important. When I first had problems walking I would hang on to people, which was not good for them or me! I progressed to a cane, then one crutch. I had falls — definitely not good!

I now use a walker and a manual wheelchair for longer distances, which has been so much better. I had to get past the pride of using them. Plus, by going to physical therapy and learning the correct way to use the walker, I am being proactive in holding off secondary symptoms of joint pain and falls.

Another primary symptom is a sedentary lifestyle, which can lead to many added symptoms. It is important to be as active as you can, for as long as you can. Even a small amount of movement for a short amount of time is important, so try to be active. This is something I work on daily, most times even forcing myself to keep moving. Fatigue takes a toll, so that moving isn’t my first choice. But I know how important it is, so I do it.

Remembering the importance of staying on top of our primary symptoms will help us to fend off the onslaught of secondary symptoms. Being proactive and finding options to help us manage our MS will only improve our quality of life.

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Note: Multiple Sclerosis News Today is strictly a news and information website about the disease. It does not provide medical advice, diagnosis, or treatment. This content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition. Never disregard professional medical advice or delay in seeking it because of something you have read on this website. The opinions expressed in this column are not those of Multiple Sclerosis News Today, or its parent company, Bionews Services, and are intended to spark discussion about issues pertaining to multiple sclerosis.

joann kaplan avatar

joann kaplan

Would relapsing and remitting be considered primary progressive? or is that a third type of ms.

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Debi Wilson avatar

Debi Wilson

Hi Joann, You correct there are three types of MS, relapsing remitting, secondary progressive MS and the third is primary progressive MS. This article is about The symptoms of any type of MS. If we can control the main symptoms maybe we won't add more. Thanks for your question! Debi

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Arlene greene avatar

Arlene greene

In 1959 I developed ulcerative colitis . In 1991i was d/x with MS and CNS lupis. Started beta seron in '93 but had to stop because of lupus lesions. Next was avonex but when they changed the formula I developed seizures and was in hospital for two weeks and still take Dilantin.

I have now been on copaxone for over ten.

Am I a candidate for ocrevus.

Thank you.

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Debi Wilson avatar

Debi Wilson

I hope Ocrevus works well for you Arlene! Thanks for sharing! Debi

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Robyn Fisher avatar

Robyn Fisher

I have had ms for 20 years. Started with relapsing/remission... I took control of my health. Changed my diet, started exercising... every time I see the neuro nothing seems to have changed in the mri scans... I on the other hand feel the changes. I do have exacerabations anymore. Not like I used to... I get very frustrated because my thinking and memory are affected so bad and it seems to not be getting any better. I always thought my urinary incontinece was because I have had 4 children... my pelvic floor is weak an going poop is difficult. My legs are starting to get tighter making me stretching them out more often... I am super emotional and sleep is my enemy... every time I see the neuro he suggests trying med marijuana... I am going to oook for another neuro. I don’t feel like he really does anything. So I am starting to feel the ms changing... I started rituxan because god forbid insurance let me do Ocrevus... anyway. Sorry this went longer than I anticipated...

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Debi Wilson avatar

Debi Wilson

Thank-you for sharing your story, Robyn! The best to you Debi

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