One of the most essential parts of living with multiple sclerosis (MS) is building support systems. They offer practical help, but better yet, they also consider and foster our emotional survival. MS is full of unknowns and can thus be characterized as unpredictable. But one thing we can predict…
Authentically Human - Desiree Lama
Desiree Lama is a 20-something-year-old PhD student living in Austin, Texas. She was diagnosed with relapsing-remitting multiple sclerosis during high school at only 17 years old but began experiencing symptoms at 14. Since a young age, she has found a safe haven in writing because her grandma fostered her love for words and learning. Desiree lives her life through being authentically human in a superficial world. In this column, she will share personal memos of being a disabled, bisexual Mexican woman in an overcritical world. Desiree hopes that this column will encapsulate the captivatingly burdensome feelings of human existence, especially for those with MS.
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Every year, warmer weather arrives with a collective exhale as people spend more time outdoors, enjoying sunlight that stretches into the evening and patio dinners. But for me, living with multiple sclerosis (MS), the arrival of summer lands more like a quiet tightening in my chest. I find myself…
Of all of the cognitive functions that multiple sclerosis (MS) can affect, memory and processing issues have been my primary burdens. I’ve found them difficult to navigate and manage, especially when others don’t fully understand the extent to which they affect me. My MS-related cognitive impairments have resulted…
On May 10, surrounded by my loved ones, I received my Master of Arts in educational psychology from the University of Texas at Austin. As I heard the words of love and encouragement from my family and friends, I realized just how difficult my educational journey has been because of…
Before I received my relapsing-remitting multiple sclerosis (MS) diagnosis in 2016, I underwent a standard MRI exam, with and without contrast, that scanned my brain, thorax, and cervical spine. I’d never had an MRI before this one. I was vaguely familiar with what the machine looked like, but it’s…
I remember the day of my relapsing-remitting multiple sclerosis diagnosis, when I didn’t understand the weight of what I’d been told. I was only 17 years old and didn’t know what questions to ask, what the future held, or what I should’ve felt after hearing those words. Aside from feeling…
I knew that starting my college journey in a a different city, less than a year after receiving my relapsing-remitting multiple sclerosis (RRMS) diagnosis, would be challenging because I didn’t fully understand what was happening in my body. Even though my college, the University of Texas at Austin,…
Note: This column describes the author’s own experiences with oxybutynin. Not everyone will have the same response to treatment. Consult your doctor before starting or stopping a therapy. A few years ago, I spent the summer at my mom’s apartment because I’d been living in college dorms and my semester…
My cat, Lucky, runs behind me every morning and night as I walk to the kitchen cabinet for his food and treats. He meows nonstop and gazes up at me with his pleading doe eyes, convinced that I’m taking way too long to feed him. I make my way…
The beginning of the new year is an opportunity for a fresh start, change, and personal growth. Even before I was diagnosed with relapsing-remitting multiple sclerosis, I struggled deeply to allow myself moments of rest and peace, and that continues today. I’m aware of those struggles, but until now…
Being born and raised in south-central Texas, I’m no stranger to the heat here that dominates most of the year. But even after 25 years of living in Texas, I don’t think I’m used to it. While some people embrace and enjoy warmer weather, my body rejects it altogether, especially…
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