In the middle of my freshman year of high school, I experienced a bad case of optic neuritis, which I now know was my first episode of multiple sclerosis (MS). According to my neuro-ophthalmologist, I was legally blind in my left eye. My vision was mostly recovered thanks to…
Authentically Human - a Column by Desiree Lama
Too often, I’d find myself amid joyful moments with loved ones, struggling to keep irritability at bay. At those times, my mind would stagger between living in the happiness of the moment or an overwhelming sense of overstimulation, annoyance, and frustration. Most of the time, the irritability took over. When…
Relapsing-remitting multiple sclerosis (RRMS) brings both highs and lows to my life. Sometimes these moments will fluctuate throughout the day, while other times, the highs and lows can last for days at a time. When I experience a sustained low, I’ll find myself stuck in bed with no energy…
Being diagnosed with relapsing-remitting multiple sclerosis doesn’t necessarily mean that other health complications or conditions won’t arise. According to an article published in the journal Multiple Sclerosis and Related Disorders, multiple sclerosis (MS) patients have significantly higher rates of comorbidity and morbidity than people who don’t have…
After I was diagnosed with relapsing-remitting multiple sclerosis (MS) in 2016, I thought I’d never find a partner who understood the complexities and nuances of my condition. For years, I wondered, “If I can barely comprehend the knowns and unknowns of living with MS, how could anyone else?” Oh…
In the world of chronic illness, people tend to be perceived differently depending on the visibility of their condition. Some illnesses are easily noticeable while others aren’t, but both pose significant challenges to day-to-day life. I’ve been living with relapsing-remitting multiple sclerosis since 2016, and for the most part,…
Identity development is a deeply unique process in which people establish a clear sense of self. Different stages occur during childhood, adolescence, and adulthood. The process of developing an identity has always fascinated me because there are many different factors that influence us and shape who we become.
Desiree Lama often experiences fluctuating energy levels due to her MS, which can make it especially challenging to balance both school responsibilities and work commitments.
A patient advocate shares how sudden vision loss in high school led to an unexpected MS diagnosis, profoundly shaping their resilience and deepening their commitment to supporting and guiding others through similar challenges.
Because of the emotional and mental toll that my relapsing-remitting multiple sclerosis diagnosis had on me, I wanted a cat to help me cope with and navigate life with the condition. I knew having a pet would improve my mood and give me a reason to get out of…
Two weeks ago, I was notified that one of the lesions on my brain has grown. This led me and my care team to decide it was time to switch multiple sclerosis (MS) treatments. Soon after I was diagnosed with relapsing-remitting multiple sclerosis in 2017,…
Note: This column refers to the author’s own experience with Gilenya (fingolimod). Not everyone will have the same response to treatment. Consult your doctor before starting or stopping a therapy. On a recent Friday, all was calm and peaceful in my household. I was bundled up in my bed watching…
Before I was diagnosed with relapsing-remitting multiple sclerosis at age 17, I was just a young adolescent eager to attend college but uncertain about my path. However, after my diagnosis, which happened during my senior year of high school, just a couple months before college applications were due,…
About a year after I was born, my parents decided to get my ears pierced. Little did they know, it would become an obsession of mine years later. But little did I know, my piercings would pose problems when it was MRI time. When I was 13, I continued…
Searing pain and tears characterized my life for years because of multiple sclerosis-associated migraines. I remember those feelings as clearly as day because they diminished my quality of life. One radiant morning, my mom, friend, and I went to a coffee festival in our hometown. It was…
A disease-modifying therapy (DMT) for multiple sclerosis (MS) is a form of treatment that alters how the disease develops over time. DMTs have the potential to impede the progression of MS and decrease the number of relapses a patient experiences. In MS, the immune system is…
Let me paint you a picture of a scenario that has stuck with me for years. It was my sophomore year at the University of Texas at Austin and I was having lunch with my best friend at the time. We were discussing my journey with relapsing-remitting multiple sclerosis…
Note: This column describes the author’s own experiences with sleep medications and antidepressants. Not everyone will have the same response to treatment. Consult your doctor before starting or stopping a therapy. Many years ago, it was brought to my attention that I suffer from insomnia and chronic fatigue.
Dear younger self, As I sit down to write this letter, I can’t help but tear up at the thought of you. First and foremost, you’re an amazing soul, full of life and with a bright future ahead of you. But you’ve just received life-changing news, and it feels…
My mom always wished for a son and a daughter. Ten years after I was born, her dream became a reality with the arrival of my baby brother, Michael. Because I was the only child for so long, I had never considered becoming a big sister, nor did I understand…
In previous columns, I’ve shared that I’m a graduate student at the University of Texas at Austin, but what exactly does that entail? Almost every time I tell someone I’m pursuing a doctorate in educational psychology, I’m met with the question, “What do you do?” Let’s unpack the answer.
As I’ve mentioned in previous columns, I’m now pursuing a doctorate in educational psychology at the University of Texas at Austin. Given that work, 99.9% of my day revolves around typing, despite my multiple sclerosis (MS). My journey as a typist began in high school, when I enrolled…
Recognizing and valuing authenticity is an aspect of life I began to grasp only a few years ago. During the peak of quarantine restrictions due to COVID-19, I was forced to move back home to San Antonio from my on-campus dormitory at the University of Texas at Austin. Like many…
Many of my personal breakthroughs and discoveries occurred during college, when I was living in a new city as a young adult with relapsing-remitting multiple sclerosis (RRMS). One of those “aha!” moments was understanding that saying no takes practice, but it’s a necessary aspect of life. A few…
Upon commencing my undergraduate studies at the University of Texas (UT) at Austin, I pursued a major in prehealth neuroscience. I had decided to pursue this degree shortly after my diagnosis of relapsing-remitting multiple sclerosis in 2016, during my senior year of high school. My hope in choosing the…
My graduation ceremony at the University of Texas at Austin had just ended, and there were swarms of people everywhere I looked. I was sweating profusely in the summer heat and overstimulated by the large crowds. Thankfully, my mom called to tell me where my family was waiting for me.
My adolescent years can be characterized by a series of naps, long-lasting migraines, always being sick, and never being able to donate blood, which my family and I never understood. My journey with multiple sclerosis (MS) started long before my diagnosis in 2016. Let me set the…