Can we all agree that research studies are important and they are necessary to prove whether a concept works or it doesn’t? Even from the biggest failures, we can learn more. We can also all agree that research has to be done via properly conducted studies to be accepted as…
Columns
Editor’s Note: Multiple Sclerosis News Today is pleased to welcome Ed Tobias to our team of Patient Specialists and Columnists. Ed brings a wealth of journalistic experience to his new column, “The MS Wire,” which explores the latest science and research news for multiple sclerosis from a patient’s perspective. Follow “The…
Here’s my Pick of the Week’s News, as published by Multiple Sclerosis News Today. Nanobionic Clothing Seen to Help Clear Body of Free Radicals Associated with MS and Other Diseases A recent study in the Journal of Medicinal Chemistry…
A recent survey of more than 6,000 multiple sclerosis patients in the United States found that health insurance coverage can decide their access to disease-modifying therapies (DMTs), and that that coverage is worsening, leaving a good number struggling to be able to pay for their treatment. As an MS patient myself, I find…
There seems to be general agreement that achieving and keeping an overall level of good health is very important for people living with multiple sclerosis, or with any chronic illness for that matter. And one way to reach that goal, many will say, is to eat a healthy, well-balanced diet. It’s at…
Do you have any strong feelings about worms? No, not earthworms you find in the garden, or even roundworms or tapeworms that can sometimes be found in animals and humans. What I am talking about is purposely being infected with parasitic worms. OK, it may not be as gross as…
We wait in anticipation for multiple sclerosis (MS) drugs to clear Phase 3 clinical trials and get to the Food and Drug Administration (FDA) for approval, but I honesty knew little of the process that takes place before the large-scale testing of drugs in Phase 3. I was selected to…
Quite a mixed bag in the pick of the week’s news: A drug in development, microbiota in the gut, statins and MS, DMTs and cognitive skills, and images of depression. Endece Granted New U.S. Patent for NDC-1308, Therapy to Induce Remyelination in MS This is a bit of an…
Oral therapy Tecfidera (dimethyl fumarate) seems to be emerging as a first-line treatment for relapsing multiple sclerosis – according to Biogen, the company that developed it. That’s good news, and something we need to know. The company agrees that for some time, the long-term effectiveness and safety of this oral…
This chewing gum handout in the exhibit area of the recent Drug Information Association (DIA) 2016 meeting says it all from the pharmaceutical company perspective – recruiting patients for their studies is often a distasteful and difficult process. While I appreciated the gum in this package, this image left a…
When I see a new drug for MS come to market, I only think of the company behind that product – it could be one of the big names such as Genentech, Genzyme, EMD Serono, Biogen, or one of the many other players in the field. I never stopped to…
There have been plenty of interesting stories on Multiple Sclerosis News Today over the last seven days. Here is my Pick of the Week’s news. Tremors Linked to MS Poorly Treated with Symptomatic Medication, Study Finds It will come as no surprise to those of us with MS that disabling tremors,…
You have just one week from today to have your say about the effectiveness of various disease modifying therapies (DMT) used to treat relapsing remitting multiple sclerosis (RRMS). Public comments are welcome in response to an early draft paper that is planned to be the basis for…
A few months ago I had the honor of meeting David Lacks, a grandson of Henrietta Lacks. It was at a large meeting and not everyone in the room understood his link to our medical care; the people who already knew about grandmother had most probably read the book…
Developments of treatments for MS dominate my pick of the week’s news in MS News Today. Included is a vaccine and a new oral drug. Vaccine to Treat Multiple Sclerosis Showing Promise and Soon to Enter Phase 3 Clinical Testing This is something a bit different because, usually vaccines are designed to…
As interesting as it can be for patients with MS who hear about work being done to find the causes of multiple sclerosis, what we really want to see is research that is carried out to find a cure. Nothing more, nothing less. Of course, the development of new treatments…
Ready to fight MS? Well, you can start first thing every day. So, how do you start your day — a coffee maybe, or a great cup of tea? Tea is my choice but I also enjoy a magnificent cup of Spanish coffee. According to a number of recent studies, coffee and…
Allegations that false claims regarding treatment were made to potential patients, as well as one of its proponents having at least one fake degree, are being leveled against a stem cell clinic that was operating in India two years ago. The clinic was not offering HSCT, but rather a form of combination…
Engaging Thoughts
Editor’s Note: Multiple Sclerosis News Today welcomes Laura Kolaczkowski to our team of Patient Specialists and MS bloggers. As you will read in her introductory post below, Laura brings to her new column a wealth of Multiple Sclerosis related insights, both as a patient and activist/advocate for raising awareness and research…
In my weekly news review, I take a brief look, from my MS patient’s view, at a few of the stories behind the headlines that have appeared on Multiple Sclerosis News Today over the last seven days. 14 Celebrity Ambassadors For the Multiple Sclerosis Cause It looks as…
Never having been offered, let alone received any disease modifying therapy, I can address the subject of disease modifying therapies, and their side effects, with complete impartiality. Of course, the reason for the lack of any medication is because none has yet been approved for use with MS patients who…
In my mind, MS is linked to glandular fever. From personal experience, there is no room for doubt of any kind. Trouble is, though, that my experience and belief is not proof. And that is why I find that efforts to establish a definite link between glandular fever, often known…
Discovery of an unexpected diversity of oligodendrocytes in mice could lead to new insights into mechanisms of degeneration and regeneration in multiple sclerosis and other diseases where myelin is lost. Oligodendrocytes, a type of brain cell that plays a crucial role in diseases such as MS, are more diverse than…
MS Weekly News Review – June 20
Welcome to our very first weekly news review. Starting today, it is the intention to use the Monday column of this blog to cast a look back at the previous week’s editorial content of this MS site. In particular, we’ll be looking at the wide range of topics covered and…
Optic neuritis is one of the symptoms of which those of us who live with multiple sclerosis on a daily basis know can set us apart from others. We are fully, and often painfully, aware that everyone is different. We all experience a different array of symptoms to similarly different…
Alone with MS? Are You? Really?
Am I alone with MS? I do wonder that, sometimes; at those times of fatigue and frustration when the darkness envelopes you. When you pound the floor having fallen again; when you curse this monster inside you; and when you cry out “Why me?” But, of course, I am not…
Medical cannabis is subject to laws relating to the growing, possession, transport, and use of marijuana. These vary from country to country and, in the United States, from state to state. There are also differences between marijuana for general and recreational use and for the same product for medical use.
Processed foods have been added to the list of “no-no” items that we are not supposed to eat if you, like me, are unfortunate enough to have MS. We were already warned against gluten, salt and various other ingredients in our diet; now it’s processed foods and additives. This is…
People with MS who were involved in a long-term clinical trial are out and about enjoying a full and normal life with no signs of the disease. This follows their recovery from the stem cell transplants involving aggressive chemotherapy, or aHSCT as the procedure is known. Results of the clinical…
When talking about how treatments affect MS life expectancy, it’s wrong to leave out HSCT. Sorry, but it’s just plain wrong. How can anyone write a supposedly authoritative article about MS and life expectancy, talk about modifying how the disease affects people who have it, yet totally ignore potentially the…
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