Columns The MS Wire - A Column by Ed Tobias Have You Joined the Conversations in Our MS Forums? Have You Joined the Conversations in Our MS Forums? by Ed Tobias | December 13, 2019 Share this article: Share article via email Copy article link About a year and a half ago, Multiple Sclerosis News Today introduced a forums section. It’s a great place to post a question or comment about MS, or to answer someone else’s question. I’m one of the forum moderators, along with John Connor. I get around better than John, but John is a stand-up comic (oh, the irony!) and is more “creative” with his comments. Between the two of us, we’re pretty good at helping people get information. Here are the subject areas on the MS forums: Newly diagnosed: If you’ve just been diagnosed with MS, this is the best place to ask questions. Moderators and forum users will do their best to provide answers and suggest resources without giving medical advice. Don’t be shy. Alternative treatments: From vitamins, oils, and even bee stings, this forum is devoted to an exploration of therapies beyond standard, conventional MS care and treatment. Durable medical equipment: Do you have a scooter, walker, crutch, brace, or other assistive device? Thinking about getting one? Hereās where to talk about it. Living with MS: This is the place for general subjects. It’s the most active of the subject areas. MS drugs: This is where we share our experiences with various MS treatments. Parents and caregivers: This forum is a place for MS parents and caregivers to talk, share tips, and ask questions. Itās also a place for veteran patients to help the recently diagnosed. Polls and quizzes: Share your knowledge and insight about multiple sclerosis. Contribute to our MS polls and quizzes. Let’s have some fun: What do you do to relax? What is your hobby? Do you participate in sports? Do you have a good exercise routine? Have you traveled to an interesting place? This is where we share fun experiences. Treatments and trials: Information and comments about new research and development in the MS field can be posted here. Registering for and using the MS forums Getting started is easy. The first step is to create a profile. Simply go to the main forums page and register with your name, age, and whether youāre an MS patient or caregiver. There is also an option to write a short bio about yourself. These are public forums and all posts are visible to anyone who visits this page. All discussions are moderated by our patient columnists, and any inappropriate comments will be deleted. We abide by a code of conduct. Once youāve found the forum, or forums, in which youād like to participate, youāre welcome to create discussion topics or reply to other usersā posts. There is a private messaging feature that allows members to contact one another directly. If thereās something you want to discuss that is more personal, the messaging feature gives you the privacy you need. Go to the profile page of the person youād like to reach out to and click the āprivate messageā tab to start a conversation. You will receive notifications if they reply. We’d love to have you join the conversations. *** Note: Multiple Sclerosis News Today is strictly a news and information website about the disease. It does not provide medical advice, diagnosis, or treatment. This content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition. Never disregard professional medical advice or delay in seeking it because of something you have read on this website. The opinions expressed in this column are not those of Multiple Sclerosis News Today or its parent company, BioNews Services, and are intended to spark discussion about issues pertaining to multiple sclerosis. Print This Page About the Author Ed Tobias People say to write what you know and Ed Tobias knows about MS. He's lived with the illness since 1980, when he was 32 years old. Ed's a retired, award-winning broadcast journalist and his column combines his four decades of MS experiences with news and comments about the latest in the MS community. In addition to writing his column, Ed is one of the patient moderators on the MS News Today Facebook, Twitter, and Instagram sites. Heās also the author of āThe Multiple Sclerosis Toolbox: Hints and Tips for Living with M.S.ā Ed and his wife split their time between the Washington, D.C. suburbs and Floridaās Gulf Coast, trying to follow the sun. Comments Heather Daniels It's too bad there's presently no medication to slow the progression of PPMS. My neurologist mentioned that I'm not a good candidate for Ocrevus because of my age. It's target is for those younger. I am on the trial drug HCQ presently. Reply Ed Tobias Hi Heather, It's true that Ocrevus, as well as other MS meds, are believed to be more effective with younger people I don't think your age should be a factor. I started Lemtrada when I was 69. It's held my progression in check and has helped some symptoms a bit. I wrote about this in my column a few weeks ago. http://multiplesclerosisnewstoday.com/columns/2019/10/21/am-i-too-old-for-aggressive-ms-treatment/ Good luck to you, Ed Reply Leave a comment Fill in the required fields to post. Your email address will not be published. Your Name Your Email Your Comment Post Comment
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