Author Archives: Ed Tobias

My Lemtrada Treatment, 5 Years Later

It was five years ago, Dec. 5, 2016, that I scootered into the office of Dr. Heidi Crayton, my neurologist, and plopped into a soft, brown leather recliner. Day 1 of Round 1 of my Lemtrada (alemtuzumab) infusions was about to begin. I’d prepped for this day: two days…

Can Focusing on the Epstein-Barr Virus Help Researchers Fight MS?

There are continuing signals that the Epstein-Barr virus (EBV) is a fuel that can spark a multiple sclerosis (MS) fire. EBV is a herpes virus that causes infectious mononucleosis, more commonly known as mono. Sometimes called the “kissing disease” because the virus that causes it is easily spread through saliva,…

I’m Sleeping Better These Days, but Why?

I had a great night’s sleep the other night. I fell asleep quickly and slept straight through the night for nearly seven hours. When I got up in the morning, I felt refreshed, which is exceedingly rare these days. Plus, it even happened a few more times in the past…

I’m Grateful for My COVID-19 Booster Shot

I’m hurtin’ a little today. I have mild muscle aches, a bit more fatigue than usual, and dragging legs. It could just be a bad MS day, or it could be the result of my COVID-19 booster shot a couple days ago.  I received a third shot of the Moderna…

3 Things I Discovered at My 50th College Reunion

My wife and I recently returned from a long weekend in upstate New York, where we attended my college reunion. It was a biggie — my 50th — and had been delayed a year due to COVID-19. The sun was shining, and it felt like spring for the three days…

Are Generic and Brand-name Pills Created Equal?

I take a bunch of pills every day. Most of them are generics. I’ve used baclofen to treat my leg spasticity, oxybutynin for my bladder, and modafinil to fight fatigue. There’s also atorvastatin to keep my cholesterol in check, and levothyroxine to do the same for my…

Assessing My Pain, From Zero to 10

Lately, I’ve been thinking about pain — specifically, how to count my pain. When I was lying on a treatment table while my physical therapist Richard manipulated my shoulder, he asked me to rate my pain, on a scale from one to 10. I’m sure many of you…

MS Paralympian Aims for a Bull’s-eye

Lia Coryell says she wanted to die. According to The New York Times, after fighting COVID-19 last winter, Coryell 56, was hit with heart and kidney failure, pneumonia, and shingles. This was in addition to living with progressive multiple sclerosis. “I’ve had to fight this really dark demon that…

With MS, a New Pair of Shoes Makes a Big Difference

I wish I could walk a mile in my shoes, but even with a new pair, that’s not going to happen. My MS limits me to about 100 steps while using two canes and a functional electrical stimulation device strapped under my left knee. Because walking is so difficult,…

Do People With MS Need a 3rd Vaccine Shot?

Now that a third COVID-19 vaccine shot has been approved in the U.S. for immunocompromised people, and vaccine boosters are expected to be available to the general public sometime after Sept. 20, Walgreens and CVS have lost no time in offering the additional shot to those who qualify.

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