- Why is this survey being conducted?
The purpose of this survey is to gather information from individuals with multiple sclerosis (MS) so that BioNews and its partners can bring better understanding, advocacy, and provide our readers more relevant editorial content to the larger MS community.
- What will I do?
If you agree to participate in this survey, you will have the opportunity to complete an online survey. The survey includes questions about your diagnosis, medical history, life expectancy, and other background information. This survey should only take you a few minutes to complete.
After you complete the survey, we may contact you with follow-up questions based on your answers and your willingness to provide your contact information. We may also request that you participate in additional surveys, which, like this survey, will also be completely voluntary.
- Am I required to participate in this survey?
No. Your participation in this survey is completely optional. Whether or not you participate in this survey is completely up to you. Even if you start the survey, you may stop participating at any time up until you submit the survey.
- If I decide to participate in this survey, am I guaranteed to participate?
No. Although you will complete the first part of the survey, depending on the information you provide you may not be eligible to complete the remainder of the survey.
- Who will have access to my personal information?
Your medical information and any other personal information you enter into the website during your participation in the survey may be reviewed, analyzed, and/or aggregated by BioNews and/or a third party company. Please review BioNews’ privacy statement, which identifies who may have access to your personal information if you consent to participate in the survey. BioNews employees and personnel who analyze survey results will have access to your medical and other personal information you provide in response to survey questions, as well as your name and contact information in the event you provide it.
Once collected by BioNews, your medical information and other personal information provided in the survey may be shared with third parties, such as pharmaceutical companies, medical device companies, and government agencies. However, in the event BioNews shares such information with third parties, your individual health information will only be shared with third parties upon your express consent to share such information with third parties. Should the generic medical information you provide in response to survey questions be published, it would not be associated with your name or likeness.
BioNews may use your name and contact information (limited to e-mail or phone number and city/state) to communicate with you regarding the survey or other BioNews offerings and opportunities.