To speed research and work on more personalized treatments for serious diseases, Roche and its subsidiary Genentech announced a partnership with PicnicHealth to access its collection of real-world data.
Eligible adults with MS in the United States are also being invited to join a multiyear study assembling such data.
The collaboration will open with a focus on multiple sclerosis (MS), but the agreement also support studies into Huntington’s disease, hemophilia, and the red blood cell disorder paroxysmal nocturnal hemoglobinuria (PNH).
“Our strategic partnership with PicnicHealth will allow us to better understand serious diseases and accelerate development of effective treatments tailored to the individual needs of patients,” James Sabry, head of Roche Pharma Partnering, said in a press release.
“By combining PicnicHealth’s uniquely built and curated real-world data sets with groundbreaking science we are aiming to make personalized healthcare a reality across multiple therapeutic areas,” Sabry added.
PicnicHealth focuses on giving patients access to all their medical records in a simple-to-use platform. After being given a patient’s consent, the company uses machine learning technologies to collect medical information from a variety of databases. The system also includes human curation to insert data that are not usually in electronic medical records, such as notes and reports from doctors.
Data can also be shared with doctors and family members for better communication and care.
Information is encrypted, and data that people agree to share with researchers are given anonymously and securely, the company states on its website.
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