How I became an advocate for young people with MS
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Antonio Perez hangs out at the boardwalk in Seattle for his first-ever MS retreat, hosted by MS Impossible. (Courtesy of Antonio Perez)
In recognition of Multiple Sclerosis Awareness Month in March, the MS Awareness Month campaign features a series of stories highlighting the real-life experiences of people affected by MS, written in their own words. Follow us on Facebook, Instagram, X, and Pinterest for more stories like this, using the hashtag #MSAwarenessMonth, or read the full series.
It was a typically hot and humid day here in San Antonio, but this day felt different. Jan. 8, 2022, became a day I’ll never forget. I received a call from my doctor, who had recently ordered an MRI. Eager for answers about my recent health issues, I quickly pulled over to take the call. I kept reassuring myself that I’m fine! It’s just stress and anxiety. I’m good!
My doctor hesitated before speaking, then explained that my recent MRI revealed several lesions along my spine and in my brain. Combined with the symptoms I was experiencing, she said it could be multiple sclerosis (MS). I was in shock — just yesterday, everything seemed practically fine. How could a young, healthy man be diagnosed with MS? I’d always thought this disease only affected older people. Suddenly, I felt completely alone on this journey. I couldn’t be the only one going through this!
At home, I sat on my couch and searched TikTok, hoping to find others in a similar situation. To my surprise, there weren’t many young people talking about MS on social media. Where was the awareness? Where were the voices of other young adults facing this illness?
So I decided to share my journey with MS on TikTok (@mswarriorantonio). My goal was to shed light on MS, raise awareness, advocate for others with the illness, and help people — especially young adults — feel seen and less alone. Sharing my story led to a wave of love and support. I’ve worked with organizations both in the U.S. and internationally, appeared on the news in Michigan, Texas, and Europe, and participated in many podcasts. I’ve also been featured twice by the National MS Society, which has allowed me to support others worldwide.
Do I regret having this illness? Honestly, yes, because MS is tough. But it’s also brought me incredible opportunities. I wouldn’t change a thing. I’ve become a better person, learned to embrace my new life, and now appreciate the little things. As I approach my four-year anniversary with MS, I’m smiling instead of feeling emotional. Thank you to Multiple Sclerosis News Today for giving me the chance to reflect and share my story again. I hope it helps others on their own journeys.
