Hollie Amadio meets with Stefanie Barone, a staffer for U.S. Rep. Steny Hoyer, D-MD, to advocate for the Safe Step Act. (Photos courtesy of Hollie Amadio) Day 27 of 31 This is Hollie Amadio’s story: “Hollie, you’re having a stroke from eating all those chocolate eggs!” my dad…
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“Caregiving,” a two-hour documentary film centered on the daily experiences of six family and professional caregivers in the U.S. will premiere on PBS and its media outlets in June. Executive produced by Bradley Cooper, the documentary is inspired by his own experience caring for his father, who was diagnosed…
A 3-year-old Chris Delemater smothers his aunt, Jenn Powell, on the couch, along with Toby the dog. (Photos courtesy of Jenn Powell) Day 25 of 31 This is Chris Delemater’s story: What is it like to know someone with multiple sclerosis (MS)? Have I learned anything from someone…
Michelle Lesmeister posed for this headshot in February 2025. (Photos courtesy of Michelle Lesmeister) Day 23 of 31 This is Michelle Lesmeister’s story: “You’re the strongest person I know — you will be OK.” Lesmeister takes her dog Barrett for an afternoon walk. Who wants to be just…
Kevin Byrne grew up in Bronx, New York. A graduate of the U.S. Military Academy at West Point, he was struck by multiple sclerosis (MS) in 1999 while commanding an Army Air Cavalry Troop overseas. Now medically retired, he lives with his daughter, Rogue, in Portland, Oregon. Kevin works…
You know what they say about assuming? You don’t? Well, I just assumed that you did, so I guess the joke’s on me. I was going to start this column off by saying that people make a lot of assumptions about the disabled, but now I’m not sure that “assumption”…
Jenn Powell wears her MS ambassador shirt with pride. (Photos courtesy of Jenn Powell) Day 20 of 31 This is Jenn Powell’s story: Hosting The Multiple Sclerosis Podcast has been eye-opening, exposing me to the diverse and inspiring voices within the multiple sclerosis (MS) community. Every guest I…
I flew to Detroit for work this month, then on to Phoenix to see my parents, and then back home to Kansas City, Missouri. But traveling by airplane has gotten more complicated for me because of my multiple sclerosis (MS). I don’t need assistive devices, so I know my…
Ronald Harris shows off his new power wheelchair. (Photos courtesy of Ronald Harris) Day 17 of 31 This is Ronald Harris’ story: Harris is seen working from home, using a desk that accommodates his power chair. My journey with multiple sclerosis (MS) began with an unexpected diagnosis…
Tom Anderson, 67, was diagnosed with multiple sclerosis at about 30 years old. (Photos courtesy of Tom Anderson) Day 16 of 31 This is Tom Anderson’s story: I may be the dimmest star, but don’t get all hokey on me. There are lots of us. The following are the…
When I could still drive, I enjoyed the experience. A car or truck was not just for getting from point A to point B. It was also about the thrill of the journey itself, and I wanted to coax as much as possible from the trip. That meant driving high-performance…
I spent most of February staring at a blank screen, the blinking cursor mocking me. Despite having a solid idea to convey and a column deadline looming, my brain was stuck in the mud of cognitive fog. I tried to force my mind to cooperate, but it was like trying…
Izzy Abbas loves to go camping, but he also enjoys traveling internationally, Here, he is shown visiting Turkey. (Photos courtesy of Izzy Abbas) Day 11 of 31 This is Izzy Abbas’ story: Camping — being out in the woods and mountains — is something I’ve always loved. Despite all…
Using a simple algorithm to recommend highly effective disease-modifying therapies (DMTs) for people with multiple sclerosis (MS) can help make treatment fairer for all patients, and level inequalities otherwise defined by race or ethnicity, a new study by U.S. researchers suggests. Indeed, use of the algorithm over a…
The Army took me to a lot of different places around the world, and if I spent enough time in any one of them, I often found myself adopting local customs. In the deserts of Afghanistan and Iraq, for example, if circumstances allowed, I usually wore a shemagh, and sometimes…
Anne Rosales is a mother, grandmother, and community volunteer, as well as a certified Aging in Place specialist. She was diagnosed with MS in her mid-50s. (Photos courtesy of Anne Rosales) Day 6 of 31 This is Anne Rosales’ story: My handicap parking placard arrived a few months ago.
Brittany Boudreau attends the MS Dream Center of Rhode Island’s An Evening to Remember gala. (Photos courtesy of Brittany Boudreau) Day 5 of 31 This is Brittany Boudreau’s story: In August 2021, my life was going according to a plan I’ve had since I was 10. However, two days…
Melinda Livermont, an MS Ambassador with MS4MS, is shown representing for the nonprofit while attending an NHL hockey game. (Photos courtesy of Melinda Livermont) Day 4 of 31 This is Melinda Livermont’s story: After the initial MRI scans, spinal tap, and blood work, hearing the actual words from…
A neurodegenerative disease, multiple sclerosis (MS) is estimated to affect more than 1.8 million people worldwide — across all ages, races, sexes, and geographical regions. During Multiple Sclerosis Awareness Month this March, patients, caregivers, and other advocates are coming together to provide opportunities to connect, educate, inspire, empower, and…
I’ve noticed a lot of people with multiple sclerosis (MS) report that their disease worsens in the summer months, with fatigue and heat intolerance as common complaints. Not me. I seem to thrive in warmer weather, and I enjoy going outside for the heat. Instead, I struggle in the…
A young Michael Lama Jr. poses with his sister, Desiree Lama, at Christmastime years ago. (Photos courtesy of Michael Lama Jr.) Day 3 of 31 This is Michael Lama Jr.’s story: Growing up, my sister Desiree and I used to play video games and sports in our grandma’s backyard.
From left, Michael Lee Martinez and Feliciano Velazquez celebrate the holiday with their cats, Korra and Cleo, on Dec. 23, 2024. (Photos courtesy of Michael Lee Martinez) Day 2 of 31 This is Michael Lee Martinez’s story: Picture this: After stanning one of the biggest pop stars of our…
I was driving home the other day when something in my rearview mirror caught my attention: A giant pickup truck had flipped over in the fast lane of the highway. It did not look good. I pulled over on the left shoulder and ran to help, completely forgetting the back…
A friend of mine went hiking alone during the warmer months of early autumn. Before he left, he contacted several of his friends via a group chat and let us know when and where he intended to start and the location where he planned to camp for the night. He…
I don’t know if anyone else’s life works this way, but my life has a soundtrack. It varies depending on my mood and what’s going on at the moment, but at any given time there’s music in my background. These days it’s usually playing on one of the personal assistant…
My husband and I are both considering early retirement. We’d discussed it for the past five years but hadn’t made any firm decisions. Last month, we decided that we needed to get serious about planning for it. We met with a financial adviser for retirement planning advice at our investment…
Thanks in part to 2024 being a leap year, I’ve never published a column on Valentine’s Day. That won’t happen anytime soon, either, as the next time the holiday lands on a Thursday is 2030. While I’ve mentioned this holiday before, I’ve never written a column specifically about Valentine’s Day.
Note: This column describes the author’s own experiences with oxybutynin. Not everyone will have the same response to treatment. Consult your doctor before starting or stopping a therapy. A few years ago, I spent the summer at my mom’s apartment because I’d been living in college dorms and my semester…
The other day, my kids asked if they could go through the jar of coins on my dresser. It’s been sitting there for a while because, like the majority of people with a jar of loose change, I hardly ever touch it. They hoped to find some rare coins, but…
Multiple sclerosis (MS) patient Lynda Whitton has been granted MS Australia’s 2024 John Studdy Award in recognition of her advocacy, leadership, and fundraising efforts for MS and other neurological diseases in her hometown of Bunbury and across Australia. The nonprofit’s top award is given each year to people…