In recognition of Rare Disease Day Feb. 29, Bionews Services launched a social media campaign last month asking patients to describe what makes them rare. Running Feb. 7–29, the #WhatMakesMeRare campaign was aimed at uplifting people with rare diseases by encouraging them to share their stories and perspectives. The…

The Invisible Disabilities Association (IDA) has created a video to raise awareness about the hardships of disabilities that are real but not readily evident to passersby, and often complicate life for people with multiple sclerosis (MS) and other disorders. The video, called “I Am Invisible No More,” features…

Maryland special education teacher Ingrid Hanson says that since she was diagnosed with multiple sclerosis five years ago, she’s developed a better understanding of her students’ needs and the importance of teamwork. Flavia Nelson helps treat MS in the Hispanic community in Houston. Flavia Nelson, an MS specialist at…

Face it: Understanding MS isn’t easy — even if you have it. There’s no known cause, no cure, no predictability in progression, and while there are common symptoms and manifestations, they affect everyone differently. Some symptoms come and go with no rhyme or reason and…

There’s a difference between being lucky and being blessed. I learned that difference in 1992, after giving birth to our son. Once the doctors counted 10 toes, 10 fingers and we heard the baby’s first cry, I remarked to my husband how lucky we were.

When you’re living with multiple sclerosis, it’s important to surround yourself with a community of people who give you the kind of support and understanding you need. When I was diagnosed in 1986, there was no internet to help me find a community,…

On a Monday in July, the Multiple Sclerosis Association of America (MSAA) gave Kathy, who loves to hike in the woods, a cooling vest that reduces heat stress — a common issue for people with multiple sclerosis (MS). On a Wednesday in October, the nonprofit funded an MRI for Sarah,…