People say to write what you know and Ed Tobias knows about MS. He’s lived with the illness since 1980, when he was 32 years old. Ed’s a retired, award-winning broadcast journalist and his column combines his four decades of MS experiences with news and comments about the latest in the MS community. In addition to writing his column, Ed is one of the patient moderators on the MS News Today Facebook, Twitter, and Instagram sites. He’s also the author of “The Multiple Sclerosis Toolbox: Hints and Tips for Living with M.S.” Ed and his wife split their time between the Washington, D.C. suburbs and Florida’s Gulf Coast, trying to follow the sun.
Since the early days of the COVID-19 vaccination program, disinformation claiming that the vaccines can induce multiple sclerosis (MS) has swirled around social media. Recently, there’s been a resurgence of this type of post, sparked by a…
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Here are a few multiple sclerosis (MS) stories that caught my eye last week: Can nabiximols ease MS spasticity? In “4 Weeks of Nabiximols Found to Ease Spasticity in MS Pilot Study,” Margarida Maia…
It’s the time of the season. Every year around this time, I get a seasonal flu shot. I’ve been doing this for as long as I can remember, certainly all of my adult life. But this year is…
Note: This column has been updated Oct. 18, 2022, to correct the name of the cholesterol medicine the columnist uses to Pravachol. Here are a few multiple sclerosis (MS) stories that caught my eye last week:…
If you have multiple sclerosis (MS), you’ve probably had several MRIs “with” and “without.” The “with” means injecting a contrast agent containing gadolinium into a vein. The agent then travels into the brain, where it “lights up”…
The following multiple sclerosis (MS) news stories caught my eye last week: Stem cell transplant and nerve fiber damage This small study of 43 people with relapsing-remitting multiple sclerosis who underwent autologous hematopoietic…
“I thought it would never happen to me.” I’ve lost count of the number of times I’ve heard someone utter that phrase during my four decades in the news media. Last week, it happened to me.
Study Supports MS Disability Test Score as Outcome Measure in Trials Adding two other disability measurements to the commonly used Expanded Disability Status Scale (EDSS) is a good idea, not only for trials…
It wasn’t easy for my wife, Laura, and I to enjoy one of Elton John’s concerts on his Farewell Yellow Brick Road tour the other night. Sir Elton was appearing at Nationals…
Gut Bacteria Are Altered in MS, Linked to Disease Progression Several studies have indicated that the composition of gut bacteria in people with MS is different from that of healthy people. But earlier studies…
I have to be honest: I haven’t always been honest. I don’t always practice what I preach. My wife called me out on that as we watched an interview I did recently about multiple sclerosis on Montel…
T-cells Targeting Epstein-Barr Virus at High Levels in MS Patients The evidence of a link between the Epstein-Barr virus (EBV) and multiple sclerosis (MS) continues to mount. The current thinking is that the immune…
I studied psychology in college, but haven’t thought much about Sigmund Freud since then. I did the other night, though. I had a couple of puzzling dreams. Thinking about them after I woke up and putting a little of…
Immunoadsorption Better Than 2nd Round of Steroids for MS Relapse This is an interesting study, particularly because of the physical problems that can be caused by significant steroid use over the years. Of course,…
It’s not easy choosing a multiple sclerosis (MS) medication. There are shots and pills and intravenous infusions. The National Multiple Sclerosis Society lists more than 20 disease-modifying therapies (DMTs) on its website. Some, such as Lemtrada…
A little over a year ago, I wrote about whether Bruton’s tyrosine kinase inhibitors (BTKi’s) might be the next big thing in multiple sclerosis (MS) treatments. BTKi’s are small molecules that selectively block an enzyme that’s important…
Epstein-Barr Virus and MS Risk: New Link to Mono Found in Study Add this study to the mounting evidence that there’s some type of association between the Epstein-Barr virus (EBV) — the virus associated…
I often see posts on social media from people with multiple sclerosis asking if crying for no reason is an MS symptom. It can be. Laughing for no reason can be, too. Both can be…
Early Detection of Pseudobulbar Affect May Help Ease MS Symptom I often see posts on social media from people with MS asking if crying for no reason is an MS symptom, because it…
I speak Morse code. It’s my second language, and I’m fluent. I’ve been speaking Morse code since I got my ham radio license nearly 63 years ago. (My call letters are KR3E.) At first, I received what was…
Anti-CD20 Therapies Help Mount T-cell Response to COVID-19 Vaccines Since the start of the COVID-19 pandemic, there have been concerns that anti-CD20 therapies, such as Ocrevus (ocrelizumab), may interfere with the ability of a…
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