News ‘Treat Me Right’ MS Society Campaign Shortlisted For Award ‘Treat Me Right’ MS Society Campaign Shortlisted For Award by Isaura Santos | November 19, 2014 Share this article: Share article via email Copy article link TheĀ Treat Me RightĀ campaign from the MSĀ SocietyĀ in the UK was recentlyĀ shortlistedĀ for this year’s voluntary sector campaignĀ Public Affairs Award. The campaign was launched in April 2014 during MS Week to raise awareness for the importance of providing the right treatment at the right moment for MS patients. At the time the campaign was launched, data from a 10,000-person MS survey from 2012Ā revealed that thousands of MS patients were not receiving care. Poor access to information about treatment opportunities and options, ignorance regarding which healthcare professionals they should visit, and insufficient knowledge about MS drugs were some of the worrying facts. This same survey revealed that 6 out of 10 people suffering with MS in the United Kingdom were not taking any medicines to improve their condition, slow its progression, or even lighten symptoms, and some of these patients were eligible for it. 1 in 5 patients had not consulted their neurologist in the last year. [adrotate group=”4″] TheĀ Treat Me RightĀ campaign earned widespread support and about 8,500 people signed up to help, along with 200 politicians from the UK who pledged their support.Ā The campaign representatives requested some changes in the guidelines for MS from theĀ UKās National Institute of Health and Care Excellence (NICE) that were heard thanks to sustained pressure from the MS community and the enormous amount of media coverage. The access to Sativex and Fampyra, progressive MS treatments, were not granted by NICE since they were deemed too expensive. However, theĀ Treat Me RightĀ leaders believe it was aĀ flawed assessment and they are continuing the pressure to encourage NICE to conduct a moreĀ thorough evaluation. Print This Page About the Author Isaura Santos Isaura Santos graduated with a BS in Cell and Molecular Biology from Universidade Nova de Lisboa and a MA in Communication, Culture and Information Technologies from University Institute of Lisbon (ISCTE-IUL). Her professional interests include science communication, public awareness of science and communication of science through entertainment. Tags MS Society, multiple sclerosis, NICE, United Kingdom
April 18, 2024 News by Marisa Wexler, MS AAN 2024: Sustained myelin, nerve cell gains with long-term CNM-Au8
April 18, 2024 News by Lindsey Shapiro, PhD AAN 2024: Ocrevus benefits Black, Hispanic patients same as whites
April 17, 2024 News by Marisa Wexler, MS AAN 2024: Fertility treatment in MS doesn’t increase relapse risk