I’m an old guy, and it’s been a looonnnggg time since I was diagnosed with multiple sclerosis. This, however, is not the case with BJ Baker.
BJ is in his late 20s, and was having a very bad day. He was too tired to do a (seemingly) simple cleaning job around the house. So, he vented in a way that other young MS patients probably would understand. BJ likes to write rap music, so he vented in a rap poem.
Here’s what he posted on the “We’re Not Drunk, We Have MS!” Facebook group. When you read this try to do it with a “rap” rhythm.
“As ur body weakens and muscles soften, starting a project and not finishing unfortunately happens often.
As you get older and age no worries thats to be expected, but when ur 27 that s*** gets to be perplexin.
With M.S. it’s one thing after another as i try to not be a bother, as i go back in time thru my brother and see the future through my father.
no to camping trips, bonfires, outside parties being mean isnt my intention, its just the night blindness, numbness, lack of balance, make me the center of attention.
First dates for closeness but not super pushin for a 2nd, i enjoyed ur company u were very pleasant.
Not trying to be a jerk dates are fun and thats for certain, but how do you jump into a relationship already feeling like a burden.
Sometimes i lay in the dark all day pretending not to hear my phone, i desperately want company but feel im supposed to be alone.
Laying here typing rhymes after being beaten by a chore has feelings coming to the surface, the M.S. fog has me forgetting this poems purpose.
As ur body weakens and muscles soften, starting a project and not finishing unfortunately happens often.
As you get older and age thats to be expected but when ur 27 that s*** gets to be perplexin.”
I’m not sure what to suggest to someone 40 years younger than me when his “s*** gets to be perplexin.” Fortunately, my MS progressed slowly and I was able to do what I needed to do, including working full-time, for many years after I was diagnosed at age 32. I’m slower, but I’m still doing it.
My philosophy is simple, and I’ve said it here before: Even a pair of deuces can be a winning hand if you play it right.
So, yo! …
As I get older, my act’s gotta get bolder. Alone would be perplexin’, I gotta do more flexin’. Not gonna make excuses. Not even for my deuces. My future is my makin’, no time for any fakin’. BJ… it really don’t need to be perplexin’.
(You’re invited to read more of my columns on my personal blog: www.themswire.com)
Note: Multiple Sclerosis News Today is strictly a news and information website about the disease. It does not provide medical advice, diagnosis, or treatment. This content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition. Never disregard professional medical advice or delay in seeking it because of something you have read on this website. The opinions expressed in this column are not those of Multiple Sclerosis News Today, or its parent company, BioNews Services, and are intended to spark discussion about issues pertaining to multiple sclerosis.