“Today we’re going to talk about the Four Ps,” Stephanie says. “You’ve probably heard of these already, but let’s go through them anyway.”
I look at her the way a dog tilts its head when it hears a high-pitched whistle. Like this.
“No, I haven’t.”
“You’re kidding,” she says, incredulously. “How long have you had MS?”
“I was diagnosed in 2013, but I think it went undiagnosed for many years before that,” I answer.
For the longest time, I’ve had the nagging feeling that my MS team and plan have been missing something. This exchange only confirms my fear.
To put a finer point on it, while plenty of articles and resources recommend that I review my “treatment plan” with my “MS specialist,” until this year, I had no idea who my specialist was. And if I had a formal plan, it must have been top-secret because no one shared it with me.
Instead, my team consisted of isolated specialists and care and treatment and drugs with seemingly no eye on how I should actually live my life with a progressive disease like MS, either now or in the future.
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