I’ve Been Spoiled by My Clinical Trial
The new year brings many changes, including the last year of my clinical trial. When I think about the past seven years, I am thankful for the opportunity to join the trial when I did and receive personal care that made fighting MS easier.
It may sound crazy, but I feel spoiled by my clinical trial. Having a team that focuses solely on you makes you feel important.
My clinical trial has always made me feel special. I started the trial in Florida and eventually moved to North Carolina, but I have always had personalized care.
My doctors in Florida had a small research office specifically for research patients. I was the only patient present whenever I had an appointment. The nurses knew me by name, as did the neurologist. The neurologist also spent more time with me than doctors normally do.
The special treatment did not change once I moved to North Carolina. The office is bigger, but I have an infusion room all to myself. I never have to wait, even when the waiting room is full of patients. My nurse comes out to get me as soon as I arrive and stays with me the entire time. She even eats lunch with me! I have a bond with my nurses that many people don’t have.
Sitting in the doctor’s office for 6 to 8 hours with a needle in your arm isn’t the most comfortable. But my nurse always ensures my comfort and makes things as easy as possible. Sometimes I bring food, but the office always provides drinks and snacks. They don’t have to, but the fact that they do makes me feel important.
Participating in a clinical trial calls for plenty of communication with my nurse. She asks questions that are standard for clinical trials, but goes above and beyond and makes sure I’m OK. Sometimes she checks in between my monthly calls to ask how I am doing. I tell her everything, and she always lets me know that she is available whenever I need her. She is amazing. I make sure to remind her that I am thankful for her.
Best decision ever
I spontaneously joined a clinical trial right after my diagnosis. My MS journey, while hard at times, has been amazing. My doctors and nurses have been a great source of support, and the trial has been the best experience.
I honestly feel spoiled and get sad whenever I think about my trial ending. My doctor’s office is a family, and I feel as though I am more than a patient. I wouldn’t change this opportunity for anything. If you are considering joining a clinical trial, be sure to consult your medical team.
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