“Who in the world am I? Ah, that is the great puzzle.” — “Alice’s Adventures in Wonderland,” by Lewis Carrol Jan. 9 was my 31st birthday. I remember looking outside, watching the low January sun glisten on the frosty ground as its orange haze thawed the earth. I liken this…
As I glance over at the lonesome wheelchair skulking in the shadows of my living room, I recall its arrival like it was yesterday, though it’s been more than four years. My husband, and then carer, had paraded it through the house as if it were a savior, there to…
“Shoes are the quickest way for women to achieve instant metamorphosis.” — Manolo Blahnik As the holidays approach, I’m reminded to be thankful for what I have. I was diagnosed with relapsing-remitting multiple sclerosis (RRMS) at 26 years old, and when I became paralyzed, I thought I’d never…
“Rock bottom is the end of what wasn’t true enough. Begin again and build something Truer.” — Glennon Doyle The first of our four pregnancy losses were our twin daughters in 2013, which happened nearly halfway through my pregnancy. Three years later, the first symptoms appeared that would eventually would…
I want to help in any way I possibly can. My lonely confusion in the early days after being diagnosed with aggressive relapsing-remitting multiple sclerosis was mentally and physically paralyzing. However, this column isn’t about how “Hurricane MS” battered my body. Instead, it’s about why I chose to…
The butterfly effect is an idea coined by mathematician and meteorologist Edward Lorenz that is based on chaos theory. Lorenz pondered whether the flapping of a butterfly’s wings in one part of the world could cause a hurricane on the other side of the world. I believe this…
“You’re my summer that fades/ To these cold autumn days/ You’re my keepsake, my friend, and my fears/ You’re the strength that’s inside and I swear on my life/ I will always be there by your side.” — Amber Pacific Autumn has always been my favorite time of year. I…
I am having an MS relapse, my first in three years. In the first two years after I was diagnosed with relapsing-remitting MS in early 2017, I relapsed every two or three months. It got to the point that I couldn’t tell where one relapse began and another ended.
“A river cuts through rock not because of its power, but because of its persistence.” — James N. Watkins Fatigue is arguably the most disruptive symptom of multiple sclerosis (MS). At least it is for me. It has an awful lot to answer for. And it will.
“Hurricane MS,” which is how I refer to the aggressive nature of my MS progression, happened quickly and mercilessly. I am aware that my case is particularly unusual, given how aggressive its onset was. This is one of the reasons I feel a sense of purpose in sharing my story…
Winston Churchill once wrote, “I pass with relief from the tossing sea of Cause and Theory to the firm ground of Result and Fact.” This very much sums me up as a person. It was also how I felt when I was diagnosed with relapsing-remitting MS 10 months…
Get regular updates to your inbox.