Last week, the U.K. marked Carers Week, which got me thinking about how a chronic illness diagnosis often affects a patient’s entire family.
Most often, patients are the focus of a diagnosis, and the people around them are almost forgotten. The thing is, a diagnosis often affects the people around a patient more than one might think. And the person being diagnosed will look to members of their family for support.
When I interviewed my mum on my podcast way back in December (does anyone else feel like that was a million years ago?), I learned so much.
We spoke at length about how my multiple sclerosis diagnosis affected her, and what was going through her mind at the time, and I learned a lot. Like that, our relationship became even more important.
After a diagnosis, relationships change. In my case, the person who had to live with me and deal with absolutely everything was my boyfriend at the time, who is now my husband.
We were never given any help or advice about how to handle a situation like a diagnosis, which could have really helped us at the time.
After speaking with him on my podcast and learning his perspective, I thought I’d make a list to pass on to those who have a loved one going through a diagnosis right now. The list is from the perspective of a chronically ill person.
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