Many MS Symptoms Are Invisible: We Need to Share Our Stories
Like many people with multiple sclerosis, my symptoms are mostly invisible. Many days, fatigue overwhelms me and I have pain…
DISabled to ENabled — Jessie Ace
Jessie is the host of the DISabled to ENabled podcast and author of the “ENabled Warriors Symptom Tracker” book. She’s also an illustrator working with MS charities and magazines worldwide. She’s interviewed paralympians, radio DJs, chronic illness bloggers, marathon runners, and more. Jessie, based in the U.K., was diagnosed with MS at 22 years old and was told by a doctor to “go home and Google it” to find out what MS was for herself. Her own experience of being newly diagnosed so young was negative and scary, so she fills the internet with positivity for other anxious MS Googlers to stumble upon.
Featured Post
The Beginning of the End: A Reminder to #StayENabled
It’s with a heavy heart that I write this. I don’t want to, but I have to do what’s right. This will be my last column. Lately, things have been crazy busy for me, with…
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Using Social Media to Challenge Perceptions About Disability
I recently interviewed filmmaker Celestine Fraser on my podcast. Fraser produced a documentary about chronic illness called “ill, actually.” We touched on some interesting topics, including how people with chronic illnesses…
Reflecting on What Makes Me Rare
Being diagnosed with a chronic illness isn’t easy by any stretch of the imagination. It comes with a new medical language to learn, a plethora of lengthy…
A Detailed Description of What to Expect During an MRI Scan
An magnetic resonance imaging (MRI) scan can be an odd experience for those who have never had one before. Knowing what to expect beforehand can calm the nerves, so this week, I’m sharing…
5 Things You Should Do When Traveling with a Chronic Illness
Traveling is great! We love traveling, seeing new sights, eating different foods, and experiencing new things. But when you have a chronic illness, traveling can also be a nightmare. New germs, different food hygiene…
5 Hacks to Help Manage Your Fatigue
One of the most annoying MS symptoms is fatigue. It’s as unpredictable as the British weather and a constant balancing act. On energetic days we tend to do…
‘You Can’t Park There, You Are Not Disabled’
To those who judge me for using my disabled parking permit when I seemingly look “healthy and well,” please consider your words. There are people out there who “call out” others who they think…
One Way to Be More Successful in Life with Multiple Sclerosis
Have you ever wondered how some people seem to be able to do so much in a day, despite having some type of ailment, while others seem to be unable to do…
Dispelling 5 Common Myths About MS
“I will have to use a wheelchair.” That was my first thought when I received a multiple sclerosis diagnosis. After I got my ticket to the weirdest whirlwind weekend…
‘DISabled to ENabled’: How I Lost Control of My Body
“My arm feels dead.” Not the worst thing in the world, you would think. But what it meant changed my life forever. I’m Jessie Ace, an English…
5 Things You Should Avoid Saying to Someone with a Chronic Illness
After having multiple sclerosis for six years, I’ve decided there are five things “healthy” people might not understand about the disease, and it really drives me crazy. So,…
Can My Mind Control My MS Symptoms?
Can your mind control your illness? You might think, “No, of course not, the illness will do what it’ll do. I have no control over that.” What if I told…
From New Hope Emerged an Old Nightmare
I was bruised, broken, and in pain. I had been struggling with Rebif (interferon beta-1a) side effects for over a year, ever since my diagnosis.
