The Beginning of the End: A Reminder to #StayENabled
It’s with a heavy heart that I write this. I don’t want to, but I have to do what’s right.
This will be my last column.
Lately, things have been crazy busy for me, with a mix of expected events, such as moving to a new home, and a few unexpected ones, such as MS relapses and family illness. I don’t do well with the unexpected, which is why I suspect I’m so focused on calendars, organization, and control.
Much has changed in my life this year, and it hasn’t all been pleasant. Over the last couple of months:
- I’ve had three relapses, one right after the other.
- I’ve had five weeks of hypnotherapy.
- I made my first kids’ coloring book.
- My neurologist told me my disease-modifying therapy, Tecfidera (dimethyl fumarate), wasn’t working. I decided to try the Overcoming MS diet, which focuses on whole grains, fruits, vegetables, and seafood, to manage my condition.
- My granddad developed cancer, his health declined quickly, and he passed away two months later.
- I started a new job at my husband’s company. I took over the organizational part, which involves managing emails, calendars, his podcast, and public relations.
- My husband and I decided to sell our house, and we plan to buy another about an hour away in a completely new area, which fills me with both excitement and terror.
With all of this going on, something had to give. Unfortunately, these events have taken their toll on my MS in one way or another.
The hardest thing has been keeping up with writing my column. I feel like the quality of my writing is starting to be affected, and I would be doing a disservice to all of you and MS News Today if I were to carry on.
This website is so important to me, and it was a hard decision to make. I have loved writing about my experiences and receiving feedback from readers.
But responding to each message has become difficult, as there are so many. Sometimes, life and health keep me from responding. I read, value, and appreciate each comment.
It makes my day to receive a comment from a reader saying my column has inspired them somehow. Providing them with a message that can alter their perception of their life or illness and help them move forward is a dream come true. I love helping people and demonstrating what’s still possible with an illness.
I’ve always wanted to spread awareness, knowledge, and reassurance for anyone affected by multiple sclerosis. We’re never alone in this journey.
Writing became such a cathartic experience. Since starting this column, my writing has improved tremendously. I’ll be forever grateful to have impacted so many. I’ve learned so much about myself during this time. I’ve honed my perception of the world as someone with MS as well as my understanding of how the world perceives those of us with the condition.
I am beyond grateful to BioNews, the company that publishes MS News Today, for letting me play a part in its growth over the last two years. Between recording MS briefings and finding participants for the 31 Days of MS initiative in March, it’s been incredible.
After my diagnosis of multiple sclerosis, I longed for a sense of purpose. When a doctor diagnosed me by telling me to go home and Google the condition, I felt hopeless. It was vital for me to find a way to help others avoid being in that position, and receive the clarity and reassurance I didn’t. This gave me a reason to keep going. It’s why I wanted to write about what I was going through, and it’s why I created a symptom tracker to help others.
I learned we can choose to see ourselves as DISabled (lacking ability) or ENabled (finding ways to still do what we love), and I 100% believe in being ENabled.
Thank you to every one of you for reading, commenting, and supporting my column.
I’d love to acknowledge the team at MS News Today who made it possible for me to share strength and encouragement for others.
Now, it wouldn’t be right if I didn’t leave you with a positive quote:
“Everything will be okay in the end. If it’s not okay, it’s not the end.” – John Lennon
Note: Multiple Sclerosis News Today is strictly a news and information website about the disease. It does not provide medical advice, diagnosis, or treatment. This content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition. Never disregard professional medical advice or delay in seeking it because of something you have read on this website. The opinions expressed in this column are not those of Multiple Sclerosis News Today or its parent company, BioNews, and are intended to spark discussion about issues pertaining to multiple sclerosis.