March 10, 2020 Columns by Jessie Ace Many MS Symptoms Are Invisible: We Need to Share Our Stories Like many people with multiple sclerosis, my symptoms are mostly invisible. Many days, fatigue overwhelms me and I have pain somewhere. I tingle all over.
March 3, 2020 Columns by Jessie Ace Using Social Media to Challenge Perceptions About Disability I recently interviewed filmmaker Celestine Fraser on my podcast. Fraser produced a documentary about chronic illness called “ill, actually.” We touched on some interesting topics, including how people with chronic illnesses use social media.
February 25, 2020 Columns by Jessie Ace Reflecting on What Makes Me Rare Being diagnosed with a chronic illness isn’t easy by any stretch of the imagination. It comes with a new medical language to learn, a plethora of lengthy appointments, an impressive amount of…
February 14, 2020 Columns by Jessie Ace A Detailed Description of What to Expect During an MRI Scan An magnetic resonance imaging (MRI) scan can be an odd experience for those who have never had one before. Knowing what to expect beforehand can calm the nerves, so this week, I’m sharing what my first MRI was…
February 11, 2020 Columns by Jessie Ace 5 Things You Should Do When Traveling with a Chronic Illness Traveling is great! We love traveling, seeing new sights, eating different foods, and experiencing new things. But when you have a chronic illness, traveling can also be a nightmare. New germs, different food hygiene standards, sensory overload, jet lag,…
February 4, 2020 Columns by Jessie Ace 5 Hacks to Help Manage Your Fatigue One of the most annoying MS symptoms is fatigue. It’s as unpredictable as the British weather and a constant balancing act. On energetic days we tend to do too much, depleting our energy…
January 28, 2020 Columns by Jessie Ace ‘You Can’t Park There, You Are Not Disabled’ To those who judge me for using my disabled parking permit when I seemingly look “healthy and well,” please consider your words. There are people out there who “call out” others who they think are “abusing the system” and…
January 21, 2020 Columns by Jessie Ace One Way to Be More Successful in Life with Multiple Sclerosis Have you ever wondered how some people seem to be able to do so much in a day, despite having some type of ailment, while others seem to be unable to do much of anything? …
January 14, 2020 Columns by Jessie Ace Dispelling 5 Common Myths About MS “I will have to use a wheelchair.” That was my first thought when I received a multiple sclerosis diagnosis. After I got my ticket to the weirdest whirlwind weekend that I’d never expected to…
January 7, 2020 Columns by Jessie Ace ‘DISabled to ENabled’: How I Lost Control of My Body “My arm feels dead.” Not the worst thing in the world, you would think. But what it meant changed my life forever. I’m Jessie Ace, an English writer from…
December 10, 2019 Columns by Jessie Ace 5 Things You Should Avoid Saying to Someone with a Chronic Illness After having multiple sclerosis for six years, I’ve decided there are five things “healthy” people might not understand about the disease, and it really drives me crazy. So, I’ve compiled some common misconceptions…
December 3, 2019 Columns by Jessie Ace Can My Mind Control My MS Symptoms? Can your mind control your illness? You might think, “No, of course not, the illness will do what it’ll do. I have no control over that.” What if I told you that you might have…
November 26, 2019 Columns by Jessie Ace From New Hope Emerged an Old Nightmare I was bruised, broken, and in pain. I had been struggling with Rebif (interferon beta-1a) side effects for over a year, ever since my diagnosis. It was the first multiple…
April 18, 2024 Columns by Benjamin Hofmeister Learning how to write a ‘SOAP’ note feels different after an MS diagnosis
April 15, 2024 Columns by Leigh Anne Nelson What does ‘delicate balance’ mean in my life with multiple sclerosis?