How living with MS has made me an illusionist How living with MS has made me an illusionist by BioNews Staff | March 16, 2024 Share this article: Share article via email Copy article link Ahna Crum wears glasses with orange lenses and prisms to correct for color discrepancy, contrast loss, and double vision. (Photos by Sarah Brewington) Day 16 of 31 This is Ahna Crum’s story: āA great deal of intelligence can be invested in ignorance when the need for illusion is deep.ā ā Saul Bellow As an illusionist, Crum says she hid her struggles and only showed moments of stability in fear of judgment. In regards to my relationships, I am an illusionist.Ā Illusionistsā performances have strength in misdirection and diverting the audienceās attention, masking the truth of what is happening. Illusions are very helpful when you have something you want to hide, and I have something I’ve tried very hard to conceal: multiple sclerosis (MS). Iāve been trying my best to blend in for the last decade. Suffering from a chronic, progressive, and debilitating disease like MS teaches you to become an illusionist, showing the world only what you want them to see. The need for misdirection is borne of encounters with too many people who donāt understand or voice inaccurate judgments ā but also simply for the reason that I, and many others like myself, donāt want to be defined solely by the disease. Too often, people with a chronic illness suffer in silence; our self-confidence can begin to wane over time as we fade into the background. This photo shows what Crum sees due to color discrepancy, double vision, and lack of contrast and focus. Everything in my life has become calculated. Everything is staged. People see me on my good days. Seldom do they see the daily struggle. And they never see the days where I canāt even get out of bed. MS is unpredictable, but you can plan to an extent. People just donāt see the preparation or the aftermath. The road of advocacy takes time, patience, and a lot of effort. I made a mistake and chose silence for security. I traded my voice for a disguise in an attempt to mask my disease, and I have become too comfortable on cruise control. I have been hiding on the sidelines, too practiced with illusions. But I canāt stay quiet anymore. There is still such a pressing need for this disease to become better understood. I can continue to fear the backlash of someone elseās ignorance, or I can speak up. The more I, and others like myself, try to blend in, the longer this disease will remain invisible. āOne day everything will be well, that is our hope. Everything’s fine today, that is our illusion.ā ā Voltaire In recognition of Multiple Sclerosis Awareness Month in March, the MS Community Spotlight campaign features a series of stories highlighting the real-life experiences of people affected by MS, written in their own words. Follow us on Facebook, Instagram, and Pinterest for more stories like this, using the hashtag #MSSpotlight, or read the full series. Print This Page About the Author BioNews Staff BioNews, the owner and publisher of this site, employs science writers and editors, most of whom have PhDs in the life sciences, as well as veteran journalists, who ensure stories are well-written and easy to understand. Our stories undergo a comprehensive fact-checking and editing process to confirm accuracy, objectiveness, and thoroughness in order to best serve our audience of patients and caregivers. Tags community spotlight
February 29, 2024 Columns by Benjamin Hofmeister Your perception of multiple sclerosis probably isnāt my reality