advocacy

A new campaign called “End our pain” is asking people to sign a petition calling on the U.K. to allow all patients with multiple sclerosis (MS) there to have access to medical cannabis as a treatment for MS symptoms, in keeping with countries  such as Canada and Germany, and a number…

The Co-Pay Relief program offered through the Patient Advocate Foundation has added a new financial assistance fund to its collection of resources for patients with multiple sclerosis (MS). The new fund is now available to financially eligible MS patients with health insurance coverage to support the costs of necessary treatment medicines. “Our case management department has been…

The National Multiple Sclerosis Society announced that its five-year campaign to raise $250 million has concluded with its goal fully achieved, allowing the society to launch more research into multiple sclerosis (MS) and effect more life-changing progress than at any other time in its nearly 70-year history. A total 818 research projects…

Millions of television viewers who watched the popular HBO mob drama series “The Sopranos” saw actress Jamie Lynn Sigler grow from a teen into a young woman as Meadow Soprano, the independent-minded daughter of mafia boss Tony Soprano, played by the late James Gandolfini. This week, Sigler revealed she has been battling multiple…

Barrett-Jackson, an Arizona-based auction company specializing in the auction of antique and classic automobiles,  has announced that the National Multiple Sclerosis Society will be among the nonprofits supported through its 45th Anniversary auction of custom vehicles. The company has donated over $84.6 million to charities since 1971. The anniversary auction, which includes a number of…

One of the teams participating in the 10th anniversary of the MS Melbourne Cycle, an annual biking challenge to raise money for MS Australia, has built a bicycle that as closely as possible replicates the physical difficulties and discomforts that typify multiple sclerosis (MS). A collaboration between the company Grey Australia, paralympic athlete Carol…

In a special feature published in the journal American Health & Drug Benefits, authors Stanton R. Mehr, President of SM Health Communications, and Marj P. Zimmerman, President of RxDirections, discuss the many unmet medical needs multiple sclerosis (MS) patients still face in dealing with the…

You probably haven’t heard of Edward Dowd. I hadn’t until I read about him in the latest issue of the National MS Society’s magazine, Momentum. I learned that Ed is a big-time landlord. The company he founded operates about a thousand rental apartments in the San Francisco area.

The Multiple Sclerosis Society (MS Society) in the United Kingdom recently announced the investment of £1.98 million in new MS research. After an in-depth, rigorous review process of the 58 applications submitted, 16 projects were awarded funding through the MS Society’s 2015 grant round totaling £1,979,879. All applications…

Mitsubishi Motors North America, Inc. (MMNA) recently announced a nationwide auction of its first Mitsubishi Lancer Evolution Final Edition to raise money for the National Multiple Sclerosis Society. The auction is currently ongoing on eBay  and bidding will conclude on Nov. 21 at the 29th annual MS Dinner Auction, sponsored…

A major new report published by the U.K. MS Trust has determined that the country’s National Health Services (NHS) programs relied on by people living with multiple sclerosis (MS) are facing increasing pressures that could lead to inequities in care. Evidence from the Letchworth Garden City, Hertfordshire based MS Trust’s…

Fitbit, a company dedicated to the development of health and fitness products and experiences to help individuals adopt healthier lifestyles, recently announced the FitForGood initiative, a step challenge encouraging Fitbit fans to get fit for a good cause — with their steps translating into funding for three national non-profit organizations:…

Every year, the National Multiple Sclerosis Society hosts MuckFest MS, a fun mud and obstacle 5K event that raises funds for the society’s mission to support the ongoing search for better treatments and solutions for multiple sclerosis. Earlier this week, the Society gave recognition to the event’s 100,000 “mucker” or…

The Canadian Drug Expert Committee (CDEC) recently recommended that LEMTRADA (alemtuzumab) be included in provincial and other public drug plans for the management of adult patients with relapsing-remitting multiple sclerosis (RRMS). The recommendation was made through Canada’s Common Drug Review (CDR) and announced in a press release by the company that…

MS Views and News (MSVN), a non-profit organization that works to improve education, advocacy and service to empower and enhance the quality of life of patients who suffer from multiple sclerosis (MS), has announced it will offer a series of educational events on different topics throughout the month of July in…

Most employers these days talk about having workforce diversity oriented policies that support hiring people living with disabilities and chronic diseases, but what distinguishes rhetoric from reality? What in positive, practical terms can companies do in support of helping people living with visible or invisible challenges find and keep gainful…

World MS Day is celebrated on May 27 as a day dedicated to those who suffer from multiple sclerosis (MS). In order to mark the occasion, organizations, companies, advocates, and communities are hosting events throughout the world to share inspiring stories, raise awareness about the disease and campaign to support both patients…

The Multiple Sclerosis Association of America (MSAA) is organizing a national fundraising campaign just in time for summer. The Swim for MS event will help the association fund activities and support the multiple sclerosis (MS) community with crucial services to help improve the lives of the 400,000 people in the United…

Just like any student, Stephanie Butler was excited to start working, in her case as a nurse, when she began experiencing numbness in her limbs and lost sensation below the waist. It was the first time the student nurse was going to administer anesthesia to a patient, three years ago, when after a…

MS Views and News (MSVN), a non-profit organization focused on collecting and distributing information about multiple sclerosis (MS), is hosting a series of educational patient programs and events during the month of May. The events have different themes, but are all focused on the management of MS, including medication, avoiding…

The non-profit organization MS Views and News (MSVN) has invited two health care experts on multiple sclerosis (MS) to join their new medical advisory board. Brian Steingo, MD and Patricia Pagnotta, MSN, ARNP-C will co-chair the new board to assist the organization with its mission of offering the…

Do you know what biosimilar medicines do, and why they are important? If you do, then you might be in limited company. The American Autoimmune Related Diseases Association (AARDA), a national nonprofit health organization focusing on awareness of autoimmune diseases such as Multiple Sclerosis, has published a white paper…

The National Multiple Sclerosis Society will receive an annual sponsorship from Showers Pass to support its efforts to improve the quality of life of patients suffering from multiple sclerosis (MS) as well as to find a cure for the disease. Showers Pass manufactures biking clothes and material and supports the…

Nonprofit organization, Accelerated Cure Project for Multiple Sclerosis, is launching a national campaign called iConquerMS, which was designed by and for multiple sclerosis patients to raise awareness of the importance of health data and supporting research. On the iConquerMS portal, patients can…