February 7, 2022 News by Hawken Miller Endurance Sports Inspire Young Frenchman With RRMS Sports was a huge part of Armand Thoinetās life, and when he was diagnosed with relapsing-remitting multiple sclerosis (MS) one week before his 19th birthday, that life turned upside down. He could no longer engage in activities that mattered greatly to him, such as rugby, tennis, and skiing. āI…
November 10, 2021 Columns by Beth Ullah MS Advocacy Gives Me Strength and Purpose I want to help in any way I possibly can. My lonely confusion in the early days after being diagnosed with aggressive relapsing-remitting multiple sclerosis was mentally and physically paralyzing. However, this column isnāt about how āHurricane MSā battered my body. Instead, it’s about why I chose to…
August 24, 2021 News by Margarida Maia, PhD MS Society to Hold Black MS Experience Summit The National Multiple Sclerosis Society will host the second edition of its Black MS Experience Summit, a virtual event to help forge connections among those who understand the experience of living with multiple sclerosis (MS) as a Black person. Register hereĀ to join the interactive, two-day…
February 25, 2020 Columns by Jessie Ace Reflecting on What Makes Me Rare Being diagnosed with a chronic illness isn’t easy by any stretch of the imagination. It comes with a new medical language to learn, a plethora of lengthy appointments, an impressive amount of blood tests, and a lot of frustration. But does it lead…
November 21, 2019 News by Marisa Wexler, MS WCN 2019 Discussions Point to Failures of Regulators to Make MS Therapies Available There is a sizable gap between advancements in treatment for multiple sclerosis (MS)Ā and their regulatory approval, which is a circumstance that necessitates increased Ā advocacy on a global scale. This concern was a major topic of conversation recently at theĀ XXIV World Congress of NeurologyĀ (WCN 2019)…
October 2, 2018 Columns by Ed Tobias MS Patient Argues Over Where She Had Parked ā And Won! We all know how difficult it can be to find an accessible parking spot ā one that allows us to park and get from our car to where we’re going with a minimum number of steps. There aren’t many of these spots in most parking lots, and sometimes the…
March 12, 2018 News by Patricia Silva, PhD TV Personality Montel Williams to Speak About Medical Cannabis at New York Event American TV personality Montel Williams, who uses medical cannabis to manage his multiple sclerosisĀ symptoms, willĀ speak at the 5th annual Cannabis World Congress and Business ExpositionĀ in New York City, May 30 to June 2. A prominent medical cannabis advocate, Williams willĀ discuss its legalization and acceptance, a movement that has…
January 16, 2018 Columns by Teresa Wright-Johnson The Stigma Surrounding Depression Lots of columns and articles look at issues surrounding the topics of depression and mental health-related disorders. I have referenced them in various columns. What saddens me is the stigma surrounding depression that prevails in our society. There are many who struggle with depression and other forms of…
August 24, 2017 Columns by Laura Kolaczkowski MS Advocacy Resources are Many Advocacy comes in many forms, and recently I wrote about what advocacy by individuals might look like. The other type of advocacy we have going for those of us with multiple sclerosis is the work done on our behalf by a large number of nonprofit organizations. Let…
March 15, 2017 News by Charles Moore MS Views and News to Host ‘MS Champions’ Gala on April 22 in Florida MS Views and News, aĀ non-profit multiple sclerosis (MS) advocacy organization,Ā will host its second annual Champions Tackling MS Gala on April 22, with money raised goingĀ to support live educational events, community resources, and services intended to help improve the quality of life for peopleĀ with MS. The Saturday event at the…
March 14, 2017 Columns by Teresa Wright-Johnson Advocacy and Chronic Illness: Always Take a Proactive Approach This was an eventful week. I was not feeling well and ultimately ended up in the hospital for a couple of days. I had severe neck pain that radiated to my shoulder and arm. In addition, I woke up one morning with severe chest pains. I couldn’t determine whether…
March 2, 2017 Columns by Laura Kolaczkowski Which Improvements in Healthcare Would MS Advocates Like to See? I was in Washington, D.C. for a meeting, and had the opportunity to dine with some fellow multiple sclerosis advocates. I thought it might be of interest to get their take on the most pressing issues of 2017 for people living with MS. I wasnāt sure what to…
January 26, 2017 Columns by Laura Kolaczkowski Join Me and Advocate for MS One of my sisters called to let me know that CNN was doing live coverage of the Womenās March that was taking place in all 50 U.S. states, as well as many other countries. While we talked, one of the speakers came on and observed that the issues facing…
February 29, 2016 News by Patricia Silva, PhD Montel Williams Joins KIND Board as an Advocate for Medical Marijuana Montel Williams, aĀ TV and radio talk show host and advocate for medical marijuana as a treatment for multiple sclerosis and other chronic illnesses, has joined the board ofĀ KIND Financial, aĀ technology solutions company, as a key advisor in efforts to support and expand the drug’s use. “Montel WilliamsĀ has become one…