living with MS

People with multiple sclerosis (MS) who undergo an autologous hematopoietic stem cell transplant (HSCT) — which uses a patient’s own stem cells — face unique physical and emotional challenges at every stage of the process, from balancing hope and fear when deciding on moving forward with the treatment…

While most people dread the longer nights of autumn and winter, I embrace every single minute of darkness added as we crawl toward the longest night of the year. As darkness takes over, that’s my cue to gather up all the energy I expended during spring and summer to…

Higher cholesterol levels are associated with worse cognitive impairments in people with multiple sclerosis (MS), a study reported. The findings imply that medications or lifestyle changes that reduce cholesterol levels may be useful for addressing MS cognitive impairment, researchers said. The study, “Lipid measures are associated…

As this is published, I’m surrounded by family. Some are cooking with passion and purpose. Some are critiquing and giving advice that always seems to start with the phrase “Now what I like to do is,” going on to suggest a better way of stuffing, or how many minutes per…

In the middle of my freshman year of high school, I experienced a bad case of optic neuritis, which I now know was my first episode of multiple sclerosis (MS). According to my neuro-ophthalmologist, I was legally blind in my left eye. My vision was mostly recovered thanks to…

Adding noninvasive brain stimulation to physical therapy may help people with multiple sclerosis (MS) improve their balance and walking ability, a study shows. Benefits to physical therapy with and without brain stimulation were observed, but most only remained significant after six months in those who’d also received brain stimulation.

Ever since I learned how, I have enjoyed reading. My tastes have changed a little over the years, as has the way I read. I like the feel and smell of a real book, but I mostly use electronic devices these days because I can more easily see them, hold…

Fampyra (fampridine), an oral medication that’s approved to improve walking ability in adults with multiple sclerosis (MS), may also help some people with poor working memory, according to a new study. Working memory refers to a person’s ability to keep small pieces of information at the forefront of…

Too often, I’d find myself amid joyful moments with loved ones, struggling to keep irritability at bay. At those times, my mind would stagger between living in the happiness of the moment or an overwhelming sense of overstimulation, annoyance, and frustration. Most of the time, the irritability took over. When…

People with multiple sclerosis (MS) are primarily admitted to the hospital due to urinary tract infections, which indicates that bladder problems need to be better managed in this population, a study shows. Neurological problems without an identifiable cause came second among the reasons for admission to a hospital,…

In recent months, while seeking to balance work, home life, family, and well-being, I’ve sought strategies to help me tackle perfectionism. On the health front, I’ve faced major struggles with my relapsing-remitting multiple sclerosis, secondary adrenal insufficiency, and avascular necrosis. However, to this day, my perfectionism is the most…

Percutaneous tibial nerve stimulation (PTNS), a nonsurgical treatment that delivers mild electrical impulses to a nerve in the ankle, significantly reduced bladder activity and improved sexual function for women with relapsing-remitting multiple sclerosis (RRMS), according to a clinical trial. While PTNS is designed to modulate neural mechanisms involved in…

My last column described how multiple sclerosis (MS) affects my feet, so today I’m writing about how it affects my hands. I don’t believe MS has affected my wrists or palms, but my fingers and thumbs aren’t “normal” anymore. My most prominent symptom is loss of sensation,…

About a decade ago, I got caught up in the home brewing craze. I don’t know that I qualified as crazed, but I had a lot of fun with it and felt that since it was probably encoded somewhere in my Hofmeister DNA, I should at least try it. One…

Relapsing-remitting multiple sclerosis (RRMS) brings both highs and lows to my life. Sometimes these moments will fluctuate throughout the day, while other times, the highs and lows can last for days at a time. When I experience a sustained low, I’ll find myself stuck in bed with no energy…

Backed by a $1 million grant, researchers at Case Western Reserve University in Ohio will explore ways to keep astrocytes in check, protecting the nervous system from damage due to multiple sclerosis (MS). These star-shaped cells of the brain and spinal cord go awry and become toxic in this…

The first time you try something should not be the moment you absolutely need it. During my time in the military, I often applied this concept to both performing a critical task with my nondominant hand and using certain medical equipment. In both cases, the logic of “I’m sure I’ll…

As a native Floridian, I’ve been through my fair share of hurricanes. Because they’re so familiar, I’m probably a bit too indifferent to them. But in many ways, hurricanes parallel my life with relapsing-remitting multiple sclerosis (RRMS); each involves preparation, weathering of the storm, and adjusting to the aftermath.

Being diagnosed with relapsing-remitting multiple sclerosis doesn’t necessarily mean that other health complications or conditions won’t arise. According to an article published in the journal Multiple Sclerosis and Related Disorders, multiple sclerosis (MS) patients have significantly higher rates of comorbidity and morbidity than people who don’t have…

Music and dance have always been my medicine. From decompressing during medical school to adjusting to life with multiple sclerosis (MS) or getting through motherhood, music and movement have never let me down. We all have that friend we dream with, making preposterous plans. For me, that friend was…

I had a run-in with a nasty, mostly waterborne parasite years ago in Afghanistan. I managed to catch it by, you guessed it, contact with infected water — not by actually drinking it, but by washing my hands off in an irrigation ditch and then sticking them in my mouth.

The number of people living with multiple sclerosis (MS) in Australia rose by more than 50% in the decade between 2010 and 2021, according to a recent report. These findings are consistent with global observations that the prevalence of MS has been steadily increasing worldwide. “Research and rapidly translated…

The company I keep has changed over the past 10 years. I used to associate with people who were much like me. We had a similar way of thinking and faced many of the same challenges in life. I was a part of an upper tier of the U.S. Army,…

After I was diagnosed with relapsing-remitting multiple sclerosis (MS) in 2016, I thought I’d never find a partner who understood the complexities and nuances of my condition. For years, I wondered, “If I can barely comprehend the knowns and unknowns of living with MS, how could anyone else?” Oh…

Treatment with modafinil, a medication used to reduce excessive sleepiness, and cognitive behavioral therapy (CBT) can both provide clinically meaningful reductions in fatigue in people with multiple sclerosis (MS), a new study reports. Combining modafinil with CBT, a form of talk therapy, wasn’t more effective for MS-related fatigue than…

My wedding band is made of tungsten and rose gold. It’s heavier than most, but I’ve had it on for 15 years today, so most of the time I don’t notice that it’s there. Every once in a while, however, I glance down at my left hand and am almost…

Most people take for granted the feeling of stability while standing on their feet. My invisible multiple sclerosis (MS) symptom is unsteady gait, one of my biggest struggles, but you likely wouldn’t know it just by looking at me. My unsteady gait is associated with the effect that…

Due to the nature of my work in U.S. Army Special Operations, or maybe just because of the nature of me, I had a couple psychological evaluations over the years. Don’t worry, I’m perfectly normal — if “normal” means the kind of person who has the right personality for…

I stopped driving nearly five years ago. That was probably six months or more after I should have. By that point, I was doing it mainly by using my truck’s cruise control and occasionally having to use my gradually weakening arms to lift my right foot off the accelerator and…

In the world of chronic illness, people tend to be perceived differently depending on the visibility of their condition. Some illnesses are easily noticeable while others aren’t, but both pose significant challenges to day-to-day life. I’ve been living with relapsing-remitting multiple sclerosis since 2016, and for the most part,…