living with MS

Researchers who looked at manifestations of loneliness found that the burden of loneliness is much higher in multiple sclerosis (MS) patients when compared to healthy people. The study, “Loneliness in Multiple Sclerosis: Putative Antecedents and Manifestations,” was recently presented at the 2016 Annual Meeting of the Consortium of Multiple Sclerosis Centers (CMSC) June…

Multiple sclerosis (MS) patients using an interactive, self-guided fatigue management resource, developed by researchers from the University of Alberta in Canada, reported lower fatigue and improved cognition after three months, showing that fatigue self-management tools can contribute to the treatment of this common MS symptom. The pilot study, “…

One of the highlights at the “Comprehensive Care in MS and Symptom Management” session of the Consortium of Multiple Sclerosis Centers (CMSC) 2016 Annual Meeting, was an attempt to address the exclusion of patients with multiple sclerosis (MS) from the design and delivery of healthcare aimed at this…

A new model of care implemented to address the needs of patients with progressive multiple sclerosis (MS) and their caregivers has proven beneficial by reducing hospital stays, avoiding major care expenses, and improving patients’ satisfaction. The model has been tested in MS patients with high disability scores, and preliminary results of…

Susan E. Bennett, a specialist in multiple sclerosis (MS) rehabilitation, reinforced the importance of exercise for MS patients to improve quality of life, during the June 1-4  2016 Annual Meeting of the Consortium of Multiple Sclerosis Centers (CMSC), in National Harbor, Md. “Everybody should be exercising. If you have MS it…

Exercise might improve sleep quality in people with multiple sclerosis (MS), according to a study presented at the Consortium of Multiple Sclerosis Centers (CMSC) 2016 annual meeting, June 1 – 4, at the Gaylord National Resort and Convention Center in National Harbor, Md. The study, “The Impact of…

Poor sleep quality may be associated with impaired memory and decreased functional abilities in multiple sclerosis (MS) patients, according to the study “Impact of Sleep Quality on Cognitive and Physical Function in Individuals with Multiple Sclerosis.” The study was presented during the Whitaker Research Track Session II at the…

Treadmill walking exercise training is beneficial for multiple sclerosis (MS) patients, increasing not only their cardiorespiratory fitness, but also their cognitive processing speed, according to the study “Systematically Developed Pilot Randomized Controlled Trial of Exercise and Cognition in Persons with Multiple Sclerosis,” recently presented at the Consortium of Multiple…

By the time I went through various tests that led to being diagnosed with multiple sclerosis 14 years ago, epilepsy had already been part of my life since the age of 19. No one mentioned any link. The neurologist’s words still ring in my ears. Having already told me that MS was the diagnosis,…

A symposium focused on lifestyle factors and unconventional medicine as part of the clinical care provided to patients with multiple sclerosis (MS) took place today at the 2016 Annual Meeting of the Consortium of Multiple Sclerosis Centers (CMSC). The symposium, “Expanding the MS Toolkit: Integrating Lifestyle Factors and Unconventional Medicine…

There has been a great deal of talk and conjecture about the relationship between multiple sclerosis (MS) and vitamin D, often linked to living in an area lacking sunshine. Indeed, when I lived in the United Kingdom, which is notorious — or should be — for seemingly endless gray skies and…

I’m sure I’m not alone when I say that I’m glad to be done with cold and dreary weather. Bring on the sunshine! But my excitement is tempered a bit because, like many people with MS, I find the heat exhausting; it saps my energy and makes it even harder…

Editor’s Note: The opinions expressed in this blog post are not the opinions of Multiple Sclerosis News Today. Our MS Blog series offers patient experts to engage in patient-focused topics that are meant to spark discussion and debate in the Multiple Sclerosis community. The opinions of our bloggers are entirely…

Welcome to this, the very first installment of my new regular column for Multiple Sclerosis News Today. Here, you can join the race to beat this disease. Run to win. First, let me introduce myself. I am, shall we say, mature — aged 63; having spent my working life doing what…

A new report by the Conference Board of Canada’s Canadian Alliance for Sustainable Health Care (CASHC) notes that employers and the Canadian government are not giving enough support towards increasing workforce participation among patients with multiple sclerosis (MS), despite the clear benefits such support would mean to not only the well-being of individuals…

Sanofi Genzyme recently launched vs.MS, a global initiative to raise awareness of the often unspoken physical and emotional burden of relapsing multiple sclerosis (RMS) on people living with the disease and their care partners. On World MS Day yesterday, the company called on the MS community to learn more about the…

A bicycle specially designed to mimic the symptoms of multiple sclerosis (MS) now has its own owner’s manual, and the group behind the bike’s creation is inviting anyone interested to build their own experience of the spasticity and physical discomforts so well-known to people with the disease. The manual, which…

A new study suggests a strong association in multiple sclerosis (MS) patients between high levels of fatigue and mental health, quality of life (QoL), and the ability to move about and participate in daily activities, although disability is not related to fatigue levels.  These findings are of importance and highlight the…

There are lots of so-called “MS diets” out there, each one claiming to ease the difficulties of living with MS. This, despite the fact that neurologists don’t often address nutrition when discussing disease management with their patients. Why is diet so rarely discussed by medical practitioners? And why hasn’t there…

Canadian Prime Minister Justin Trudeau and other lawmakers met with members of the multiple sclerosis (MS) community and the Multiple Sclerosis Society of Canada (MSSC) at the start of May, MS Awareness Month, to discuss issues of importance to those living with the disease. From left: Hedy Fry, a member of Parliament;…

Exercises like yoga and aquatic programs can help ease some symptoms of multiple sclerosis (MS), especially fatigue, depression and paresthesia, researchers report in a study published in the journal Medicine & Science in Sports & Exercise, and titled “Exercising Impacts on Fatigue, Depression, and Paresthesia in Female Patients with Multiple…

Researchers at Purdue University have developed a method of identifying subtle oscillations in a person’s posture that mirror an excessive delay in neuromuscular responses, indicating a neurologic deficit. The oscillations, which differ from the normal tendency of a standing person to sway, may aid in diagnosing neuromuscular disorders such as multiple sclerosis (MS).

In a study published in the International Neurology Journal, researchers showed that cognitive deficits, such as memory problems, in a rat model of multiple sclerosis (MS) are mirrored by changes in synaptic transmission and plasticity in the hippocampus, a brain region crucial for memory processing. The findings…

Multiple sclerosis patients using a cognitive remediation computer training program, part of a controlled trial by researchers from NYU Langone Medical Center, had greater improvements in cognitive function than those who used a placebo-training program, according to a presentation at the recent American Academy of Neurology annual meeting in Vancouver, Canada. Problems in attention, memory,…

I just picked up a T-shirt that says, “Eat Well and Travel Often.” It was obviously made just for me. Traveling to new places and seeing new things is something I enjoy tremendously. And enjoying delicious meals makes me feel pampered and cared for. But since I can’t travel to…

The National Multiple Sclerosis Society and Event360 announced the opening of the 2016 season of MuckFest MS, a 5K “mud run” and fundraiser with over 20 obstacles along its course to challenge and entertain people of all athletic levels. This year’s run will take place in 11 cities across the U.S., including a…

When the 2016 annual meeting of the Consortium of Multiple Sclerosis Centers (CMSC) opens June 1, marking the organization’s 30th anniversary, at its head will be its executive director, June Halper. The honor is fitting. Halper, a nurse practitioner with a specialty in multiple sclerosis (MS) since 1978, has…

Urinary tract symptoms affect a large proportion of patients with multiple sclerosis (MS), yet their extent and type is not well-known. A study reported that among a cohort of people with the disease, almost 70 percent had urinary tract problems, adding to the extent of their disability. The study,…

The National Multiple Sclerosis Society is funding a new survey to understand how people living with multiple sclerosis (MS) weigh risks against benefits when choosing MS therapies. The survey was developed by Dr. Robert Fox, a neurologist, working with colleagues at the Cleveland Clinic and the MS patient…

New research from Argentina explores the idea that controlling symptoms of type 2 diabetes (metabolic syndrome) can also beneficially impact multiple sclerosis (MS) disease progression. The study,“Immunologic Effects of Metformin and Pioglitazone Treatment on Metabolic Syndrome and Multiple Sclerosis,“ appeared March 7 in the journal…