living with MS

Roxy Murray was living up to being known as “The Multiple Sclerosis Fashionista” when she attended the 2025 European Committee for Treatment and Research in Multiple Sclerosis (ECTRIMS) conference in Barcelona, Spain, on a warm September afternoon. Murray, who has multiple sclerosis (MS) and lives in London, applies her…

Disability progression does not seem to worsen in women with multiple sclerosis (MS) after they undergo menopause, according to the largest study of its kind. Instead, other factors such as older age at MS onset, longer disease duration, and worse initial disability scores were associated with an increased risk…

I’m not sure what age people begin to care about the lives of birds, but I think I’ve reached that point. I’m not quite at the stage where I name them or talk to them as if they understand me, but I’m getting close. I have several bird feeders in…

I love to travel and have a bucket list of places I want to visit and things I want to see and do in my lifetime. For example, I want to see the pyramids in Egypt. I want to go ice fishing in Minnesota. I want to stay in an…

I celebrated my mid-century birthday two weeks ago with an online dance party with friends, family, and patients in “The Myelin Room” — a monthly Zoom event. At 50, I’ve officially grown up. I no longer think of myself as a “girl.” The more dignified “woman” feels more appropriate.

Some older people with multiple sclerosis (MS), namely those older than 60, may be able to safely discontinue disease-modifying therapies (DMTs) as long as they continue to be regularly monitored for new disease activity, a new study suggests. The findings showed that people older than 50 generally experience an…

I’ve written in the past that I thought I could stand to lose a few pounds. Well, I finally put a little effort into it and have managed to do exactly that by making some changes to my diet. I’d hoped that losing weight would reveal the washboard stomach…

Psychological testing indicates that I’m not crazy, but when I share some of the things I’ve done in the Army, people sometimes wonder. I never say that I’m not, because that’s what a crazy person would say. Instead, I provide a three-point answer: One, would I even know? Two,…

Life with multiple sclerosis (MS) is unpredictable, involving many unknowns. Symptoms can come and go, flare up without warning, and affect every aspect of our health, from movement to memory. Managing MS is already a full-time job, and the added weight of life’s uncertainties often makes it even more…

I recently got my yearly influenza vaccine, which protects against the flu. According to the U.S. Centers for Disease Control and Prevention (CDC), “In an average year, thousands of people in the United States die from flu, and many more are hospitalized. Flu vaccine prevents millions of illnesses and…

At a recent social gathering, my military career came up, including the more than 100 parachute jumps I’ve done in my life. As usual, someone remarked that I must have enjoyed parachuting, and I had to say that I didn’t because I was actually afraid of heights. That brought the…

We all have stomach or bathroom issues from time to time. Eat the wrong thing, catch a bug, drink too much coffee, and your body will let you know. That’s just life. But when you have multiple sclerosis (MS), digestive and urinary problems aren’t occasional; they become their own…

One of the things my occupational therapist uses to strengthen and improve the coordination of my hands is a type of moldable therapeutic plasticine. I call it “serious” putty, as there is nothing silly about it, and the way we “play” with it isn’t particularly fun. She has me use…

One of my more unusual symptoms of multiple sclerosis (MS) is itching that is unrelated to skin irritation. It occurs randomly, maybe once or twice a month, and lasts about 30-60 minutes. I have only experienced this symptom in my upper extremities, such as on a finger, thumb, or…

If I were to ask a random person to name the favorite catchphrase of Charles M. Schulz’s character Charlie Brown, the answer would almost invariably be “Oh, good grief!” Although Charlie used it for any number of situations and possibly in place of something stronger, he may have had a…

Last week’s column almost didn’t happen. I’m trying out a new-to-me medication for cognitive issues, and it affected my writing process. About halfway down that medication’s list of possible side effects was “abnormal dreams,” reported by 10% or less of users. As luck would have it, I’m in that…

New or worsening symptoms of multiple sclerosis (MS) are often part of the disease’s unpredictable nature, but there’s danger in assuming that every symptom flare is another relapse. When I think back on the course of my disease, I realize I could have made a serious error by making…

Donald Kushner, MD, is a retired physician, board certified in internal medicine and hospice and palliative care. He has been living with multiple sclerosis (MS) for more than 20 years and draws on his dual perspective as both doctor and patient to explore illness, identity, and adaptation. He’s writing…

Although it wasn’t his field of study, my father has always been a history buff. On breaks from school, our peers visited theme parks, where they tried out death-defying rides and attempted to eat their own body weight in sugar. My sisters and I, on the other hand, were dragged…

Having better physical performance is associated with higher cognitive function in people with multiple sclerosis (MS), particularly among those with more disability, a study finds. Disability levels, in turn, correlate negatively with cognition and physical performance, with patients with moderate disability having worse scores on assessments than those with…

I tend to bite off more than I can chew because I think I can do it all. News flash: I can’t! But I’ll do my best to try to do it all, even under the constraints of living with relapsing-remitting multiple sclerosis. As a 20-something, I don’t want…

My three children inherited my inquisitive nature, which I hope they’ll never lose. The first word they learned as toddlers was probably “no,” but that was quickly followed by “why.” As they’ve grown and their vocabularies have expanded, that word, in turn, has been followed by increasingly complex and detailed…

Despite evidence supporting the safety of disease-modifying therapies (DMTs) during pregnancy, women with multiple sclerosis (MS) in their childbearing years are significantly less likely than men in the same age range to receive these typically most effective treatments, according to a study from France. The researchers found what they…

Three self-reported prevalent symptoms among people with multiple sclerosis (MS) – fatigue, mobility issues, and cognitive impairment – are generally not associated with lower engagement in healthy lifestyle factors, a study in Australia shows. However, in the long term, mobility difficulties may significantly reduce adherence to physical activity, a…

“The Longest Shortest Time.” The title of this parenting podcast says it all. How can it feel like your kids will never outgrow a stage, while simultaneously being way bigger than you remember them being just yesterday? Living with a chronic disease like multiple sclerosis (MS) reminds me…

I tend to be a pretty reserved guy. I don’t yell myself hoarse at my children’s sporting events or shout advice to athletes that I happen to be watching live or on TV. I don’t scream, “Look behind you!” or “Don’t go in there!” to characters in a movie either.

More people with multiple sclerosis (MS) are using diet modifications to boost well-being and to manage symptoms, but there’s a lack of data on how these changes influence the course of the disease, a review study found. There’s also no standardized set of dietary recommendations for patients, the researchers…

Have you ever been on a flight of stairs and misjudged the height of the steps, causing you to lose your footing? That happens to me more than I’d like to admit. This misjudgment stems from our depth perception, which is our ability to view the world in three dimensions,…

Denise Schnieders is a wife, mom, teacher, volleyball coach, and passionate advocate living with multiple sclerosis (MS). Since her diagnosis, she’s become a powerful voice in the MS community, raising awareness, advocating for better healthcare policy, and pushing for more research funding. Through her platform, MSdopaminedressed, Schnieders shares…

My daughter and I recently traveled to Belgium for a weeklong vacation. We enjoyed centuries-old architecture, world-renowned art, diverse cultures, and, of course, lots of chocolate and beer, which the country is known for. While Europe is rich in charm and history, much of its infrastructure was developed long before…