living with MS

One of the things my occupational therapist uses to strengthen and improve the coordination of my hands is a type of moldable therapeutic plasticine. I call it “serious” putty, as there is nothing silly about it, and the way we “play” with it isn’t particularly fun. She has me use…

One of my more unusual symptoms of multiple sclerosis (MS) is itching that is unrelated to skin irritation. It occurs randomly, maybe once or twice a month, and lasts about 30-60 minutes. I have only experienced this symptom in my upper extremities, such as on a finger, thumb, or…

If I were to ask a random person to name the favorite catchphrase of Charles M. Schulz’s character Charlie Brown, the answer would almost invariably be “Oh, good grief!” Although Charlie used it for any number of situations and possibly in place of something stronger, he may have had a…

Last week’s column almost didn’t happen. I’m trying out a new-to-me medication for cognitive issues, and it affected my writing process. About halfway down that medication’s list of possible side effects was “abnormal dreams,” reported by 10% or less of users. As luck would have it, I’m in that…

New or worsening symptoms of multiple sclerosis (MS) are often part of the disease’s unpredictable nature, but there’s danger in assuming that every symptom flare is another relapse. When I think back on the course of my disease, I realize I could have made a serious error by making…

Donald Kushner, MD, is a retired physician, board certified in internal medicine and hospice and palliative care. He has been living with multiple sclerosis (MS) for more than 20 years and draws on his dual perspective as both doctor and patient to explore illness, identity, and adaptation. He’s writing…

Although it wasn’t his field of study, my father has always been a history buff. On breaks from school, our peers visited theme parks, where they tried out death-defying rides and attempted to eat their own body weight in sugar. My sisters and I, on the other hand, were dragged…

Having better physical performance is associated with higher cognitive function in people with multiple sclerosis (MS), particularly among those with more disability, a study finds. Disability levels, in turn, correlate negatively with cognition and physical performance, with patients with moderate disability having worse scores on assessments than those with…

I tend to bite off more than I can chew because I think I can do it all. News flash: I can’t! But I’ll do my best to try to do it all, even under the constraints of living with relapsing-remitting multiple sclerosis. As a 20-something, I don’t want…

My three children inherited my inquisitive nature, which I hope they’ll never lose. The first word they learned as toddlers was probably “no,” but that was quickly followed by “why.” As they’ve grown and their vocabularies have expanded, that word, in turn, has been followed by increasingly complex and detailed…

Despite evidence supporting the safety of disease-modifying therapies (DMTs) during pregnancy, women with multiple sclerosis (MS) in their childbearing years are significantly less likely than men in the same age range to receive these typically most effective treatments, according to a study from France. The researchers found what they…

Three self-reported prevalent symptoms among people with multiple sclerosis (MS) – fatigue, mobility issues, and cognitive impairment – are generally not associated with lower engagement in healthy lifestyle factors, a study in Australia shows. However, in the long term, mobility difficulties may significantly reduce adherence to physical activity, a…

“The Longest Shortest Time.” The title of this parenting podcast says it all. How can it feel like your kids will never outgrow a stage, while simultaneously being way bigger than you remember them being just yesterday? Living with a chronic disease like multiple sclerosis (MS) reminds me…

I tend to be a pretty reserved guy. I don’t yell myself hoarse at my children’s sporting events or shout advice to athletes that I happen to be watching live or on TV. I don’t scream, “Look behind you!” or “Don’t go in there!” to characters in a movie either.

More people with multiple sclerosis (MS) are using diet modifications to boost well-being and to manage symptoms, but there’s a lack of data on how these changes influence the course of the disease, a review study found. There’s also no standardized set of dietary recommendations for patients, the researchers…

Have you ever been on a flight of stairs and misjudged the height of the steps, causing you to lose your footing? That happens to me more than I’d like to admit. This misjudgment stems from our depth perception, which is our ability to view the world in three dimensions,…

Denise Schnieders is a wife, mom, teacher, volleyball coach, and passionate advocate living with multiple sclerosis (MS). Since her diagnosis, she’s become a powerful voice in the MS community, raising awareness, advocating for better healthcare policy, and pushing for more research funding. Through her platform, MSdopaminedressed, Schnieders shares…

My daughter and I recently traveled to Belgium for a weeklong vacation. We enjoyed centuries-old architecture, world-renowned art, diverse cultures, and, of course, lots of chocolate and beer, which the country is known for. While Europe is rich in charm and history, much of its infrastructure was developed long before…

Over the past three decades, the number of adults worldwide being diagnosed with multiple sclerosis (MS) has increased, but globally, rates of death related to complications of MS have declined, a new study shows. “The period from 1990 to 2021 has witnessed important shifts in the global landscape of…

People with multiple sclerosis (MS) are significantly more likely to visit an emergency department if they have other health problems, aren’t on disease-modifying treatments (DMTs), or have public or no insurance, according to a study at Massachusetts General Hospital in Boston. “Although ED [emergency department] visits for MS…

Experts are calling for tailored strategies to enhance the diagnosis, treatment, and monitoring of older people with multiple sclerosis (MS). As people with MS live longer, age-related biological changes increasingly complicate diagnosing and managing the disease in older adults. No universal framework currently guides how to address these unique…

About 48 hours ago as I’m writing these words, I began to hear a strange, high-pitched tone. At first I thought it was one of the dog collars we use with our invisible fence, but it was a little odd that I heard it inside while the dogs were in…

A&W Canada’s annual Burgers to Beat MS Day is returning for its 17th year to raise funds for MS Canada and its efforts to improve the lives of people affected by multiple sclerosis (MS). As part of the fundraiser, A&W will donate CA$2 (about $1.45) to MS…

Before 2016, I didn’t need to take any prescription medications, at least not regularly. But during my first episode of optic neuritis and a few years later, after my diagnosis of relapsing-remitting multiple sclerosis, I was forced to create a new habit. During that first episode of optic…

The night before I was supposed to teach an autoimmune nutrition class, I reentered a role I thought I’d finally outgrown. Instead of educating other practitioners in the functional medicine space, I found myself in the emergency room, listing symptoms I couldn’t fully untangle or explain. I wasn’t there…

Regular exercise that follows established guidelines for physical activity in multiple sclerosis (MS) leads to clinically meaningful gains in depression and supports its use as a nonpharmacological treatment for people with MS, a meta-analysis of 12 studies suggests. The meta-analysis, “Effects of meeting exercise guidelines on depression and…

A person’s total number of visits to multiple sclerosis (MS) clinics is not associated with a lower risk of death, suggesting that merely increasing the number of clinical follow-up visits is not enough to improve survival, a new study in Denmark found. Instead, factors such as being female, having…

Someone bumped into the footrest of my wheelchair at a crowded venue recently. They immediately stopped and apologized — which doesn’t always happen — and I quickly explained that they’d hit only a part of my chair and not me. This response prompted a pause, a look of concern, and…

Along with creating memories with loved ones and exploring new places, traveling can be exhausting. There’s packing beforehand, scheduling itineraries, and then the actual traveling, whether it’s on the road or in the air. It can be especially challenging for people living with multiple sclerosis (MS). As I write…

I went to see the neurologist last month for a routine follow-up for my multiple sclerosis (MS), anticipating no changes. After all, I’ve been on the same medication for my MS, fingolimod (which often goes by the brand name Gilenya), for about 10 years. I feel my…