living with MS

Photo courtesy of Marie Pontini Day 25 of 31 This is Marie Pontini’s (@mariepontini) story: The page on the previous chapter of my life had turned. It was pointless to wonder why, hang on to my past expectations of the future, or worry. My accomplishments, education, and knowledge were…

Photo courtesy of Debbie Petrina Day 24 of 31 This is Debbie Petrina’s (debbiems.com) story: My story begins with a lesson I learned when I was a young girl. My Aunt Josie was very smart and a keen listener. She would ask provocative questions, frequently adding “use your…

Eight weeks of an online mindfulness program significantly lowered levels of depression and improved quality of life in people with multiple sclerosis (MS), researchers in Australia report. “This study adds to growing evidence on how wellness strategies can help people with MS to reduce symptoms and enable fuller participation…

Photo courtesy of Feliciano Velazquez Day 23 of 31 This is Feliciano Velazquez’s (@felicia.no) story: I was diagnosed with relapsing-remitting MS at the end of April 2020, right at the peak of the COVID-19 epidemic, at age 21. I remember experiencing double vision and had a pretty…

Photo courtesy of Yazzie Nicolau Day 22 of 31 This is Yazzie Nicolau’s (@yazzietalks) story: I am a 31-year-old free-spirited vegan and coming up on my five-year “diagnosary” of MS. Yep, that’s me! To be honest, since being diagnosed, my life has felt a lot smoother. I’ve…

Photo courtesy of Ken Bach Day 21 of 31 This is Ken Bach’s (@kens.ms.fitmess) story: Ten years ago, on the day my youngest son was born, I woke up unable to move my right arm. A month later, results from an MRI confirmed my suspicions and showed nine…

Telehealth services for physical and mental healthcare were used often by people with multiple sclerosis (MS) during the COVID-19 pandemic and most were satisfied or highly satisfied with such care, according to a study based on survey results. “The findings suggest that telehealth services were well liked during the…

Photo courtesy of Holly Stevens Day 20 of 31 This is Holly Stevens’ (@buckie_mom) story: My MS was diagnosed in November 2006, back in my native California, after I experienced numbness and tingling on the left side of my body following a 5K run that April. I…

Photo courtesy of Lissette Mares Day 19 of 31 This is Lissette Mares’ (@ms.ironman) story: There is so much in life we get to choose but there’s more that is out of our control. I find myself telling people we are all dealt with many cards in life,…

We are a three-cat household because, well, felines are awesome. They’re entertaining and sweet. They love to give cuddles. And they’re fairly self-sufficient — no baths or walks necessary. Just keep food and water in ample supply, and they’re good to go. The only problem? Litter boxes. We have this…

You might be wondering why a Yank like me is writing about multiple sclerosis care in the United Kingdom. It’s because a survey caught my eye the other day that I think deserves a closer look. The survey, conducted by the MS Trust and reported by MS News…

Photo courtesy of Tiffany Wilcher Day 18 of 31 This is Tiffany Wilcher’s (@tmwilcher) story: My name is Dr. Tiffany Wilcher, and I was diagnosed with multiple sclerosis at the age of 22 while serving my country in the U.S. Army as a combat medic. I had no…

Among healthcare providers in the U.K., considerable variation exists in marking the transition from relapsing-remitting multiple sclerosis (RRMS) to secondary progressive multiple sclerosis (SPMS), a study based on interview responses reports. Neurologists and nurses with MS specialties also expressed a reluctance to label patients as having progressed to…

Photo courtesy of Marek Klimkowski Day 17 of 31 This is Marek Klimkowski’s (@runningwithms_pl) story: My MS story began probably when I was 14 years old, but the disease wasn’t confirmed at that time. I had been bitten by a tick and diagnosed with Lyme disease. I…

Paralyzed Veterans of America (PVA) has formed a committee to better address the needs and interests of veterans with multiple sclerosis (MS), including help with obtaining care and disability benefits. The nonprofit PVA is the only congressionally chartered veterans organization working to assist and represent veterans with spinal…

“Mirrors don’t lie. They only show a part of truth.” — Lara Biyuts I’ve written about how my reality feels jagged compared with actual reality. I wrote, “The woman looking back at me isn’t whom I perceive myself to be.” I’ve been pondering this recently. The realism of reality With…

Photo courtesy of Pamela Neckameyer Day 16 of 31 This is Pamela Neckameyer’s story: My symptoms started in 2004. I would trip and fall for no reason. My mind would say “walk” but my legs wouldn’t move for a few seconds. I went to a neurologist who tested…

Photo courtesy of Melody Sapien Day 15 of 31 This is Melody Sapien’s (@autoimmune.wellnesswarriors) story: Eight years ago, I was diagnosed with multiple sclerosis. I was 15 years old. In a lot of ways, I am grateful for my diagnosis because, without it, I would have never…

The MS Society of Canada‘s virtual MS Read-a-Thon event has been extended to March 20, giving children and families throughout Canada extra time to enjoy reading while raising funds for the multiple sclerosis (MS) community. The event, which began Jan. 27, seeks to generate $110,000 to…

Ketogenic Diet Eases Symptoms, Aids Life Quality in Small RRMS Study This new report says that a ketogenic diet might help people with MS. It’s certainly helped my wife lose weight, but will it help my symptoms? I wondered about that in a recent ‘MS Wire’ column.

Photo courtesy of Rennie Rankin Day 14 of 31 This is  Rennie Rankin’s (@yogaren) story: My name is Rennie and I have been living with MS since the early 1990s, diagnosed on 6/2/2003. I will never forget how surreal it was hearing my diagnosis and feeling…

While people who smoke cigarettes are more likely to be diagnosed with multiple sclerosis, MS patients who are daily alcohol drinkers are more likely to show signs of faster neurodegeneration, a new study highlights. The findings suggest that quitting smoking and cutting back on alcohol would be beneficial for people…

Photo courtesy by Michael Drohan Day 13 of 31 This is Michael Drohan’s (@mdrohan) story: I was diagnosed with multiple sclerosis at 18, right before high school graduation. I describe the 18 years since as a slow decline in my abilities. My relapsing-remitting MS has shifted to…

Photo courtesy of Inês Velosa Day 12 of 31 This is Inês Velosa’s (@inesdnobre) story: On June 6, 2021, after some confusing days, my husband was diagnosed with MS. I remember hearing this diagnosis for the first time and thinking that life, as we knew it, was…

It wasn’t an argument; it was a reality check. I was happy, nay, self-indulgent. Within a day, the ol’ stand-up show that I produced at London’s Comedy Store for 30 years had gotten another booking at a countryside marquee just outside the city. I mustn’t disparage, as it’s our…

For the past few months, my wife, Laura, has been following a ketogenic diet, and she’s lost a bunch of weight. But in addition to helping people slim down, the low-carb keto diet may have other benefits, including potentially for those with MS. A small study that will be…

Photo courtesy of Tyler Campbell Day 11 of 31 This is Tyler Campbell’s (@tcspeaks32 ) story: At 22, I was suffering from paralysis and even erectile dysfunction. I felt so lost and yearned to be found. I needed a friend, someone to lean on who wouldn’t judge…

A substantial amount of disability worsening happens independently of relapses in people with multiple sclerosis (MS), including those in earlier stages of relapsing-remitting disease, a study in a large patient database reported. While its findings “confirm relapses contribute to the accumulation of disability, primarily early in multiple sclerosis,” data…

Photo courtesy of Carolyn Hinds Day 10 of 31 This is Carolyn Hinds’ (@carriecnh12) story: Mild cognitive impairment, or CI for short, probably doesn’t sound as debilitating or challenging when compared to other symptoms of multiple sclerosis, but it is. The word “mild” can be very misleading because…

The number of nurses in the U.K. with a specialty in multiple sclerosis (MS) care rose significantly between 2018 and 2021, but these specialists on average carry a patient caseload that’s 50% higher than recommended, as a pronounced rise in MS cases was also noted, the MS Trust reports.