quality of life

Palliative care helps to ease the symptoms of serious illnesses, providing people with cancer and those with other life-altering diseases, like multiple sclerosis (MS) or cystic fibrosis, a better quality of life, according to a study published in the Journal of the American Medical Association (JAMA). In the study, “Association Between Palliative Care And Patient…

https://www.youtube.com/watch?v=JPa0bMG3zac In this film from MS Get Involved, Kerrie Newton talks about her exercise regimen and how important it is to her. She explains that exercising each day allows her to be able to stand for short periods and how it makes her feel better emotionally and helps with…

In a cross-sectional study, researchers found that sexual dysfunction in patients with multiple sclerosis (MS) is linked to fatigue and depression. Treating these factors and identifying their causes is a potential strategy to treat the problem. The study, “Sexual function in multiple sclerosis and associations with demographic, disease…

Chronic diseases like multiple sclerosis (MS) not only impact patients, they also inspire fear among healthy people who may be at risk of the disease. In a new study, researchers found that the availability of multiple sclerosis (MS) therapies provides “peace of mind” value to currently healthy individuals, particularly when…

Results from a Phase 2 clinical trial showed that treatment with Ampyra (prolonged-release fampridine) brought both physical and psychological benefits to patients with multiple sclerosis (MS). These findings, from the MOBILE study (NCT01597297), were published under the title, “Prolonged-Release Fampridine Treatment Improved Subject-Reported Impact Of Multiple Sclerosis: Item-Level Analysis Of The…

Our days have gotten shorter since June 20, but somehow I managed not to notice until a few weeks ago. Perhaps it is because we had a late summer here in the Northwest, and could comfortably leave home without a coat until late September. That’s also the time that…

A researcher at De Montfort University Leicester (DMU)’s School of Nursing and Midwifery found that the practice of mindfulness helps people with long-term medical conditions, such as multiple sclerosis, to manage their diagnosis. The study, “Starting where I am: a grounded theory exploration of mindfulness as a facilitator…

  And do you feel scared? I do, but I won’t stop and falter. And if we threw it all away, things can only get better – Howard Jones, “Things Can Only Get Better” Things I’m good at include (but are not limited…

A study published in the BMC Neurology journal emphasized that clear and regular communication between physicians and patients with multiple sclerosis (MS) is essential for patient satisfaction with a given treatment, which could result in therapy persistence. Uwe Zettl and colleagues conducted the study, “Comparative evaluation of patients’…

You don’t see people with disabilities very often in television ads.  And when you do, the person with the handicap is usually playing a secondary role or the ad uses the disabled person for an emotional appeal.  It’s not real-life.  It’s not us. So, a tip of my hat to…

Interventions that aim to improve multiple sclerosis (MS) patients’ participation in physical activities need to take into account psychosocial constructs, such as their belief in their abilities and their expectations as to outcomes, in order to succeed. The finding, presented at the European Committee for Treatment and Research in Multiple Sclerosis (ECTRIMS)…

Though approved therapies for multiple sclerosis (MS) exist, the disabling disease remains currently incurable leading to greater interest for promoting healthier lifestyles that could ease or slow disease impacts such as hyperlipidemia, hypertension, diabetes, and heart disease which increase progression of disability, brain injury, and atrophy. In fact,…

Increasing a person’s confidence that they can complete tasks and reach goals in specific situations may benefit patients with relapsing-remitting multiple sclerosis (RRMS). In a new study, researchers used an intensive three-day social cognitive treatment, called Can Do, to increase patients’ self-efficacy, which resulted in long lasting improvements in their health-related…

There are no specific therapies that can effectively cure patients with multiple sclerosis. However, there are a number of multiple sclerosis treatment options, particularly for the relapsing-remitting form of the disease. 1.Immunomodulation therapies which can control the inflammation of myelin sheaths and help restore the central nervous system.

Flight is freedom in its purest form, To dance with the clouds which follow a storm; To roll and glide, to wheel and spin, To feel the joy that swells within; To leave the earth…

Multiple sclerosis (MS) patients in the U.S. with higher disability scores also have higher rates of health resource utilization, higher healthcare costs, and lower work productivity and health-related quality of live, according a study by researchers at Adelphi Real World and Abbvie. The study, “Quantifying the…

Caregivers of people with multiple sclerosis (MS) are often burdened by fatigue and depression, even anger, all of which can unwittingly reduce the quality of care given — although they remain quite empathetic, according to a study. The research team at the University of Manitoba in Canada suggested that tending to the needs of people caring for…

Helius Medical Technologies announced results of a pilot study, demonstrating the benefits of PoNS Therapy — a combination of the investigational Portable Neuromodulation Stimulator (PoNS) device with physical therapy — in patients with advanced multiple sclerosis (MS). Specifically, the treatment was seen to improve both patients’ quality of life, and physical and…

Clinical pilates can improve cognitive skills and life quality in multiple sclerosis (MS) patients, in addition to helping them physically. But the study, comparing clinical pilates with traditional exercise, also showed that other exercise forms offer important benefits, and more research is needed to determine if clinical pilates is a superior type of exercise for people with…

Sexual dysfunction is common for patients affected by neurological disorders, but it does not have to signal the end of a satisfying sex life and intimate lovemaking, according to researchers. Appropriate measures can help patients overcome sexual dysfunction associated with disease. Scientists from around the world discussed the topic at the…

There is a greater number of older people with multiple sclerosis than ever before, and the number is likely to continue growing. That combination, of old age with MS, puts people at risk of significantly reduced physical function than those without the disease. This was a key finding of a…

Positive results from a home-based exercise intervention designed to target flexibility, toning, and balance for older adults with multiple sclerosis (MS), suggests that exercise is important for improving  patient quality of life. The study, “A Qualitative Study of a Home-Based DVD Exercise Intervention in Older Adults with Multiple Sclerosis,” was…

Melissa A. Colbeck, an investigator at the Occupational Therapy, Health Sciences Centre in Winnipeg, Canada, studied how different sensory processing approaches, cognition, and fatigue influence the quality of life of patients with multiple sclerosis (MS). The findings suggested that establishing a relationship between the three factors and quality of life…

Mayis Al Dughmi, of the Physical Therapy and Rehabilitation Science at the University of Kansas Medical Center, recently presented her findings on the relationship between fatigue, measured using the Neurological Fatigue Index (NFI-MS), and sleep quality and attentiveness in patients with multiple sclerosis (MS). The findings indicate that cognitive…

Assessing and treating psychiatric disorders in patients with multiple sclerosis (MS) may improve their quality of life and disease prognosis, according to researchers at Harvard Medical School, who presented their work titled “Neuropsychiatric Disorders in Multiple Sclerosis: Assessment and Management” at the Consortium of Multiple Sclerosis Centers (CMSC)…

Researchers at the University of Arizona studied the psychosocial symptoms felt by a group of female patients with multiple sclerosis (MS) from the southwestern United States, and found significant relationships between depression, fatigue, and cognitive decline — symptoms also related with poorer quality of life and reduced mental and…

Researchers who looked at manifestations of loneliness found that the burden of loneliness is much higher in multiple sclerosis (MS) patients when compared to healthy people. The study, “Loneliness in Multiple Sclerosis: Putative Antecedents and Manifestations,” was recently presented at the 2016 Annual Meeting of the Consortium of Multiple Sclerosis Centers (CMSC) June…

One of the highlights at the “Comprehensive Care in MS and Symptom Management” session of the Consortium of Multiple Sclerosis Centers (CMSC) 2016 Annual Meeting, was an attempt to address the exclusion of patients with multiple sclerosis (MS) from the design and delivery of healthcare aimed at this…

Susan E. Bennett, a specialist in multiple sclerosis (MS) rehabilitation, reinforced the importance of exercise for MS patients to improve quality of life, during the June 1-4  2016 Annual Meeting of the Consortium of Multiple Sclerosis Centers (CMSC), in National Harbor, Md. “Everybody should be exercising. If you have MS it…

Exercise might improve sleep quality in people with multiple sclerosis (MS), according to a study presented at the Consortium of Multiple Sclerosis Centers (CMSC) 2016 annual meeting, June 1 – 4, at the Gaylord National Resort and Convention Center in National Harbor, Md. The study, “The Impact of…