quality of life

I don’t know why I find it so impossible to sit still. I feel like every moment I’m not engaged in some creative pursuit, I’m somehow missing out. Or worse, I’m squandering what poet Mary Oliver calls my “one wild and precious life.” Multiple sclerosis (MS) has done…

As hard as it is to believe, another school year is drawing to a close. It still somehow takes me by surprise every time. It feels like just yesterday that I was buying new shoes and helping my eldest navigate the halls of high school for the first time, and…

I don’t really like problems. And I don’t think I’m alone in this. No one I know wakes up hoping a seemingly insurmountable obstacle or painful trial is flung smack in the middle of their path. If it were up to me, I’d rather wake up to perfect hair, hit…

Multiple sclerosis (MS) patients with greater psychological resilience — a better ability to cope with and recover quickly from problems and difficulties — tend to have higher levels of social and occupational functioning, a new study found. Resilience was linked to a number of functions, including relationships, communication, social…

A three-month yoga program was significantly better than physical therapy at improving quality of life in people with multiple sclerosis (MS), a Russian study reports. Significant effects were observed in patients’ physical and social functioning, life activity, and mental health, researchers found. “Regular yoga classes under the guidance of…

Issues with sexual performance and satisfaction are common with multiple sclerosis (MS), and show significant associations with measures of quality of life, a study shows. Sexual problems tend to be more pronounced among patients with severe fatigue and depression, data suggest. These findings highlight areas where healthcare providers can…

Photo courtesy of Suni Conway Day 31 of 31 This is Suni Conway’s story: I spent seven years battling strange and unexplainable symptoms with little support and even less hope that things would get better. When asking for help, I was doubted and made to feel just as…

Note: This story was updated March 29, 2023, to correct that cognitive function was assessed via questions about memory and three other cognition outcomes. Sleep disorders such as insomnia, sleep apnea, and sleepiness may contribute to self-reported cognitive decline in women with multiple sclerosis (MS), a new study suggests.

Adherence to a high-quality diet may help alleviate symptoms of depression in people with multiple sclerosis (MS), a study from Australia suggests. The study examined several dietary regimens that have been developed to help manage MS symptoms generally by avoiding foods that might increase inflammation, a key driver…

Even if I resolved to improve my cardiovascular health by taking the stairs more often, I can’t. Mobility problems brought on by my primary progressive multiple sclerosis force me to use a wheelchair. Using a wheelchair, in turn, means that stairs and I are natural enemies (as are curbs and…

Photo courtesy of Marti Hines Day 23 of 31 This is Marti Hines’ story: I have been living with MS for 4½ years now and a lot of days it doesn’t seem to get any easier. My grief over my past life hits in big…

Jessica Dubey, right, is with her partner, Tom. (Courtesy of Jessica Dubey) Day 22 of 31 This is Jessica Dubey‘s story: Multiple sclerosis is unpredictable, You never quite know what to expect or how you will feel. Planning a weekend, a holiday, or even just…

I have a friend who’s truly blessed. Aside from the typical struggles that come with being an adult, he has few problems. Seriously. Neither he nor a loved one has had any major medical issues. No one in his immediate family has passed away yet, and while he’s not rolling…

Photo courtesy of Angie Gensler Day 20 of 31 This is Angie Gensler’s story: As a mom, wife, and business owner, I have always prided myself on juggling my crazy life. I was diagnosed with multiple sclerosis (MS) 18 years ago on Christmas Eve after suffering from blurred…

Photo courtesy of Ashley Ratcliff Day 19 of 31 This is Ashley Ratcliff’s story: Fatigued, sore, and tingling, yet determined. Every Friday I fight the urge to surrender to my ever-long list of to-dos and the voice in my head telling me to sit this one out. Instead,…

Photo courtesy of Jarika Winfield Day 18 of 31 This is Jarika Winfield’s story: My name is Jarika and I’m a 35-year-old queer, two-spirit person. My ethnic backgrounds are Metis and Ukrainian. I live in the unceded territory of the the Musqueam, Squamish, and Tsleil-Waututh people (aka…

Photo courtesy of Robert Munns Day 17 of 31 This is Robert Munns’ story: Hello! My name is Robert and I have multiple sclerosis (MS). I was diagnosed in 2008 and spent the next few years not really committing to life. I sometimes say that MS used…

Photo courtesy of Mohit Ojha Day 9 of 31 This is Mohit Ojha’s story: Life before MS: I was born into a traditional Indian family, so my childhood was a very typical one until the 10th grade. After that, I didn’t feel like studying so I dropped out of…

Photo courtesy of Mia Suite Day 8 of 31 This is Mia Suite’s story: On the morning of March 10, 2020, I received one of the most gut-wrenching diagnoses of my life. The day started off normal. I had a 9 a.m. appointment with a neurologist to go…

Following a Mediterranean diet may reduce the risk of cognitive problems, including with memory and thinking skills, in people with multiple sclerosis (MS), a preliminary study suggests. The diet includes a high intake of fish, fruits, legumes, vegetables, and healthy fats (olive oil); and a low intake of meat,…

Photo courtesy of Derlene McPhail Day 7 of 31 This is Derlene McPhail’s story: Before my multiple sclerosis (MS) journey began, I worked for 15 years as a healthcare support worker for patients living with MS. The first time I heard the words multiple sclerosis, I had…

Photo courtesy of Susan Payrovi Day 6 of 31 This is Susan Payrovi’s story: As a young person, physician, and new mom, I never expected to get sick. In fact, I considered myself to be the picture of health. What I failed to see were all of the factors…

Treatment with the experimental oral therapy ibudilast (MN-166) does not significantly improve quality-of-life measures compared with a placebo among people with progressive forms of multiple sclerosis (MS), according to new data from a Phase 2 clinical trial. Analyses from the trial suggest that a marker of nerve damage…

I am not by nature a very neat person. I want to be. I like order, but I lack the discipline to maintain it. People tend to think that time in the military makes you neat and orderly for the rest of your life, but in my case, they’d be…

“scabulous adj. proud of a scar on your body, which is an autograph signed to you by a world grateful for your continued willingness to play with her, even when you don’t feel like it.” — John Koenig, “The Dictionary of Obscure Sorrows“ I’ve managed to amass quite the…

“You only begin to grasp the import of an event – and its larger implications vis-à-vis your life – long after it has entered into that realm marked ‘memory.’” — Douglas Kennedy, “The Moment“ I am reading my first book since multiple sclerosis (MS) fatigue reared its…

One of my favorite episodes of “I Love Lucy” is the one where Lucy and Ethel get up to some hijinks (and don’t they always?) in a candy factory. You know the one. At first, the bonbons come down the belt slowly, each one easy to wrap. But…

A behavioral intervention that teaches people with multiple sclerosis (MS) strategies for becoming physically active significantly improved patient-reported measures of fatigue over a year, but had no effect on other self-reported disease measures, according to new data from a Phase 3 trial. Earlier results had shown that the approach,…

If there’s one thing those of us who have multiple sclerosis (MS) know all too well, it’s that life requires balance. Fellow columnists and I have written about the need to find a happy medium when it comes to mental, physical, and emotional well-being.

Noninvasive brain stimulation (NIBS) may be able to reduce fatigue, spasticity, and pain, and improve quality of life in patients with multiple sclerosis (MS), a new meta-analysis reports. The review assessed several NIBS interventions targeting different brain regions. The results suggest that these techniques can have immediate effects…