December 7, 2023 Columns by Benjamin Hofmeister With multiple sclerosis, a little guilt might be under the Christmas tree Counting today, there are only 18 shopping days left until Christmas. Unless you’re one of those annoying people who did all their gift buying months ago and won’t stop talking about it, the clock is ticking. I guess that makes me one of those annoying people who reminds you of…
July 20, 2023 Columns by Benjamin Hofmeister In life with multiple sclerosis, self-care is anything but selfish About three years before my multiple sclerosis (MS) diagnosis and subsequent retirement, I found myself in Iraq preparing for a mission. I was going out with a different team from another branch of the U.S. military, and the planning and briefing process wasn’t as detailed as I was…
April 11, 2023 Columns by Jamie Hughes Go ahead, youāve earned it: The benefits of MS self-care Well, dear reader, my time in Florida is coming to an end. Mom is home from the hospital after her surgery and a stint in rehab. She has begun outpatient physical therapy, and slowly but surely, sheās getting back to a new kind of normal. My being here is…
August 12, 2022 Columns by John Connor Seeing Double, and Iām Not Even Drunk! I only had my glasses for two years, yet reading anything on my phone was now nigh impossible. Still, it did cure my Facebook and Twitter addiction. Yer, yer, Iām old. (Iām 64, you know.) Sure, Iāve written this before ā surely thatās a free pass for us aged folk.
August 12, 2022 News by Marisa Wexler, MS Ideals on Masculinity May Guide Health Behaviors in Men With MS Men with multiple sclerosis (MS) show differences in health-related behaviors based on how much they value certain masculine ideals, according to a new study that suggests possible negative effects of masculinity in terms of seeking medical care. Results from the study ā which specifically focused on white males in…
July 22, 2022 Columns by Jamie Hughes Step Up to the Mic: The Value in Doing the Things That Terrify You Back in November, I told you all about my decision to start taking vocal lessons with a coach. Well, Iāve been at it for about eight months or so, taking an hour-long lesson every other week, and while I can tell that Iāve made some progress, Iām still not…
July 20, 2022 Columns by Beth Ullah A Big Step Forward: Using Public Transportation With MS As anyone with chronic illness knows, leaving the house requires planning. Thereās much more to think about than what’s visible, especially if you’re relying on public transport. In the days preceding last week’s appointment with my multiple sclerosis (MS) nurse, I was contemplating just how long it’d been since…
June 22, 2022 Columns by Beth Ullah Grappling With the Sensory Overload That Can Come With MS Imagine this scene: There’s a rowdy crowd of nearly 40,000 people in a rugby stadium with music blaring over the Tannoy speakers. Newfound numbness spreads throughout the majority of your body, and on top of that, you can hardly see. That was the perfect myriad of factors to elicit my…
June 17, 2022 Columns by John Connor Five Years of Writing This Column. What a Surprise Compared with living with multiple sclerosis (MS), the anxiety of what on water (Earth has always struck me as a misnomer as water comprises 71% of our planetās surface) I’m going to write about next week is but a slight fluttering. Yer, yer, I know; underneath itās…
May 18, 2022 Columns by Beth Ullah After Standing Still, Finding My Next Step āThe carousel never stops turning.ā ā the TV drama “Greyās Anatomy” At the 2019 European Patients’ Forum Congress in Brussels, which focused on patient involvement in healthcare, attendees were invited to write down a list of goals they wished to achieve in the next 12 months. After rolling my…
April 22, 2022 Columns by John Connor The Tricks of Intermittent Catheterization When Youāre in a Wheelchair For the few of you lot lucky enough not to know about intermittent catheterization, itās shoving a thin bit of plastic up the old (in my case) urethra so that you can pee. I am well aware of how bad plastic is for the planet, but in my open-and-shut…
April 8, 2022 Columns by John Connor ‘Top Gear’: Unfortunately, Iām a Backward-leaning Jeremy Clarkson Before anyone in the U.S. asks who this Jeremy Clarkson fella is, know that petrol heads in your country know exactly who he is. Indeed, the Brit motoring show “Top Gear,” at its height a few years ago, made him and his fellow presenters stars the world over. It…
December 3, 2021 Columns by Jamie Hughes Do What You Can Do (And No More) I donāt know about you, but last week passed in a blur. I typically enjoy Thanksgiving, but this year, things were a little wonky. My husbandās grandfather passed away a month or so ago, so we werenāt about to ask his grandmother to prepare anything. My mother-in-law and I decided…
July 21, 2020 Columns by Teresa Wright-Johnson Putting Myself First “Take the time you need,” “This too shall pass,” and “You canāt pour from an empty cup” are just a few idioms I have used to encourage others. Strong shoulders carry heavy loads. My shoulders bear the weight of myself and countless others. The DNA of an empath is…
April 23, 2020 Columns by Jennifer (Jenn) Powell To Thine Own Self Be Kind: Spreading the Message of Self-care I give freely of my heart and wear it proudly on my sleeve. Those who know me would say it waves. I care deeply for my family, friends, and colleagues. I derive immense joy in my volunteer work with rescue animals. Be it Walk MS, animal welfare, or a…
September 12, 2019 Columns by Jennifer (Jenn) Powell We All Have Bad Days Mama said there would be days like this. I just never thought there would be so many. After three days of insomnia, I am heavily fatigued and weary. I wait, bleary-eyed, for signs of pain to appear, watching the sunrise and praying for renewal. As if on cue, the birds…
November 30, 2018 Columns by Jamie Hughes Ho-Ho-No Even when a major holiday isnāt scheduled in a calendar month, Iām a pretty busy lady. I work a full-time job that requires me to be present and āonā most of every day. I also have to deal with Atlanta traffic, which is physically and mentally exhausting. Iām a…
July 31, 2018 Columns by Teresa Wright-Johnson Making Myself a Priority Last week, I wrote about climbing through grief. This week, I will focus on what I learned in the throes of the cycle of grief. Several people share the opinion that I do too much. My cousin often says that he wants me to say no to…
March 29, 2018 Columns by Jennifer (Jenn) Powell Shining Through Boundaries I spent the majority of my life as a people pleaser. From the time I was young, I equivocated “yes” with likability; please and be pleased. As the years passed, compromising my own needs became second to meeting those of others. While I genuinely enjoy…
July 11, 2017 Columns by Teresa Wright-Johnson An Unlimited Mind Must Recognize Physical Limitations It has been a busy few weeks. Well, when I think about it, every week is busy. There is always something that must be done. Just when I think things will slow down, my schedule lengthens. Admittedly, I am not a technology expert, so I rely on the…
June 28, 2017 Columns by Cathy Chester 4 Ways to Care for Yourself While Caring for Others How can you care for your MS when a loved one is ill? You want to be able to care for others despite your own daily struggles. As unpredictable as MS is, what is predictable is that your life will be touched by the…
June 5, 2017 Columns by Debi Wilson Transitioning from MS Patient to Cancer Caregiver I am making the transition from multiple sclerosis patient to cancer caregiver. On May 11 my family’s world turned upside down when my husband of 41 years was diagnosed with advanced Ā pancreatic cancer. My caring husband, who has always loved and protected me, is now the one in…
January 5, 2017 Columns by Tamara Sellman Forget About Resolutions and Remember to Focus I’m already tired of hearing aboutĀ New Year’s resolutions. If you’re like me, youĀ find that for those who spend their social media time listing goals in earnest, there’s a smidgen of luxury to theirĀ actions.Ā After all, most of these goal-making champions are not chronically ill. They don’t have to think…
June 6, 2016 News by Patricia Silva, PhD #CMSC16 – Hispanic MS Patients Featured in Film to Promote Health, Self-Care The āComprehensive Care in MS and Symptom Managementā session at the Consortium of Multiple Sclerosis Centers (CMSC) 2016 Annual Meeting, included a different kind of contribution – Ā the presentation of a short film exposing the health challenges specific to Hispanic patients with multiple sclerosis (MS). Intended to promote…