January 6, 2021 News by Marisa Wexler, MS MSAA Hosting 8th Webinar on COVID-19 and MS The Multiple Sclerosis Association of America (MSAA) is hosting a webinar in which experts will discuss the COVID-19 pandemic and its impact on multiple sclerosis (MS). The webinar, “What You Need to Know About COVID-19 and MS: Program 8,” will take place at 8 p.m.
May 26, 2020 News by Vanessa Pataia MS Association of America Opens COVID-19 Webinars, Other Resources to Community The Multiple Sclerosis Association of America (MSAA) is opening its resources to people with multiple sclerosis (MS) duringĀ COVID-19, including a webinar series on the pandemic and easier access to its support programs, the association…
March 28, 2019 News by Alex Coletta Fatigue is Normal When Caring for a Loved One with MS but it’s Unsustainable, Expert Says Caring for a loved one with multiple sclerosisĀ (MS) can be exhausting, resulting in crankiness, sleepless nights, and excessive sadness, but many resources are available to help deal with the daily challenges of caregiving, said social worker, therapist, and wellness educator Lara Krawchuk. āCare partner fatigue is a normal and…
March 22, 2019 News by BioNews Staff Caregivers of MS Patients Should Not Neglect Own Needs, Expert Says in MSAA Webinar People who take care of their own needs while caring for a loved one with multiple sclerosis (MS) are more likely to be successful, and enjoy a mutually rewarding relationship. And the best way to ensure that partnersā needs are met is for them to communicate openly and often.
March 19, 2019 News by BioNews Staff Sex and Intimacy Is Focus of MSAA Webinar Sex and intimacy are good for people with multiple sclerosis (MS), just as they are for anyone without the disease. And while fear of talking with a partner about possible sexual challenges created by MS is perfectly normal, there is help available to deal with potential problems. Thatās according…
March 6, 2019 News by Mary Chapman Multiple Sclerosis Association of America Putting Focus on Family for MS Awareness Month In recognition of March as Multiple Sclerosis (MS) Awareness Month, the Multiple Sclerosis Association of America (MSAA) is calling attention to the diseaseās impact on families. More specifically, the nonprofit organization is focusing its awareness campaign on the topics “Relationships and MS” and “Spotlighting Care Partner Needs,” according…
June 21, 2018 News by Kara Elam Webinar Focuses on Importance of Maintaining Independence for Progressive MS Patients When a progressively debilitating disease like multiple sclerosis (MS) causes a patient to feel physically āwiped outā after a simple daily activity, such as a shower, it is of utmost importance for these individuals and the people in their support system to understand how they can maintain independence for…
May 3, 2018 News by Janet Stewart, MSc Past, Present and Possible Future Directions of MS Research Topic of Educational Talk TheĀ science underlying our understanding of multiple sclerosis ā through to new technologies that might expand that understanding in ways “never imagined” ā was the focus of a recentĀ educational webinar titled āThe Evolving Science of Multiple Sclerosis (MS).ā Kottil Rammohan, MD,Ā a professor of clinical neurology and director of the…
March 26, 2018 News by Patricia Silva, PhD United Spinal Plans Webinar on Making Flying Better for Wheelchair Users The United Spinal AssociationĀ will hold a webinar this week to seek ideas for making air travel better for wheelchair users, including multiple sclerosis patients. One focus of the event will be the problems wheelchair users have encountered at airports. AnotherĀ will be bills in the U.S. House and Senate…
September 11, 2017 News by Patricia Silva, PhD MS Humorist Yvonne DeSousa, in GeneFo Webinar, Offers Tips on How Laughter Can Make You Feel Better Laughter really is among the best medicines when it comes to multiple sclerosis, says Yvonne deSousa, an MS patient, humorist and author who plans to share her tips on integrating humor into daily living, in a free webinar organized by GeneFo. The webinar, which will also discuss research into laughter therapy for MS, will take place Sept. 13 at 1 pm EST (6 pm in the United Kingdom). Scientists are increasingly aware that emotions play a crucial role in determine progression rates and outcomes of chronic diseases. This has led researchers to study how therapies including humor and laughter might contribute to improve patient's well-being. DeSousa, a native of Cape Cod, Massachusetts, has been nominated for a WEGO Health Hilarious Patient Leader Award. She promises to offer hands-on advice on how to āfind the funny, de-stress, and enjoy a good laughā despite the reality of living with a chronic and debilitating condition such as MS. The online lecture will also focus on the biology of how laughter can improve patient outcomes. Research shows that laughing affects immune and endocrinological processes, while increasing tolerance to pain. Laughter also counteracts anxiety and depression. These factors, deSousa pointed out, are all crucial in MS, and she should know. The comic has taken a humorous approach to her own illness from the start, and now runs a blog that recently made the Top 50 MS Blog list. She's also written a book ā called MS Madness ā on the topic. The webinar will also introduce a research project led by Dr. Theodore Brown that now seeks MS patients for a study of how laughter therapy affects mood, stress and self-efficacy. Researchers hope these types of studies will encourage doctors to incorporate humor-based practices into common care protocols for MS. Details of the research program will be shared with webinar attendees. Those wishing to participate in the free webinar ā and receive a video recording by email later ā can register by following this link.
August 18, 2017 News by Patricia Silva, PhD GeneFo and MitoQ Plan Webinar on How Mitochondrial Antioxidants May Impact MS The online multiple sclerosis community GeneFoĀ will hold a webinar next week to discuss the latest research findings on how mitochondrial antioxidants may affect MS. The webinar, which will be open to patients who register, will start at 1 p.m. U.S. Eastern Standard Time on Thursday, Aug. 24. GeneFo…
July 19, 2017 News by Joana Fernandes, PhD GeneFo to Host July 26 Webinar on Sex and Intimacy Issues by MS Advocate Tuppy Owens GeneFo,Ā an online multiple sclerosis (MS) community that offers support, advice and educational resources to patients, will conductĀ a free webinar July 26 for those interested in knowing more about how MS affects sex and intimacy. The webinar, hosted by renowned MS expert Dr. Tuppy Owens,Ā follows a GeneFoĀ survey showing that sex…
November 4, 2016 Columns by Patricia Silva, PhD ABLE Act Webinar Set for Nov. 15 The National Disability Institute manages the website www.ablenrc.org that has good information. I watched all the āwebinarsāĀ and found them informative. A new one is going to be broadcast Nov. 15, 1:00-2:30 CST Ā (event number 660 742 928), Ā and likely will be archived with the rest of the webinars…
October 10, 2016 News by Patricia Silva, PhD GeneFo Webinar Explores Potential of Mushrooms to Help Manage MS GeneFo,Ā an MS patient community that provides support, advice, and clinical trial matching, recently co-hosted an online conference with Trent Austin, MD, who reviewed the most updated research and clinical evidence of natural substances ā including Ā medicinal mushrooms, vitamins, biotin and cannabinoids ā to inform the public about the potential…