Lindsay Kelly, a multiple sclerosis caregiver advocate, shares how recognizing subtle symptoms and speaking up helped guide her husband’s progressive MS care.
Transcript
I didn’t recognize what was going on with my husband, so he actually started to have progressive MS symptoms in 2013, but he didn’t get diagnosed until 2019.
And so those symptoms, I didn’t ever associate them with MS. It never really occurred to me until one day when it started getting bad. And we had gone in and out of other doctors, and there was a time where it just clicked with me that I’m like, “I wonder if this is his MS.”
And from that moment on, I’ve just been all in on talking with the doctors and just really like getting the treatment that my husband needs.
I am pretty vocal about how I feel, because I think there’s things that a lot of doctors don’t know, but luckily the doctors that we’ve worked with in the past few years have been really open-minded when I’ve shared with them like, “Hey, this is the experiences we are having with progressive MS, and they’re not physical.”
They’ve been really open to it, and willing to like, hear what I have to say.
