Pardon the Introduction: My Life with MS in Motion

Pardon the Introduction: My Life with MS in Motion

mike knight

Though my first brush with MS came in 2000 or so, I wasn’t diagnosed until December 2013 with primary progressive MS. Shortly after the diagnosis, I began scouring the internet for information about the disease and how to live with it. Sound familiar? I found and bookmarked Multiple Sclerosis News Today and, in March this year, I began writing MS in Motion.

Naming the column was harder than I thought. When I began long-term disability in April 2016, I had a bunch of time on my hands to think. About stories. About how awful MS can be. But also about sneaky little victories pulled off while the disease was looking the other way.

After a couple of false starts, we landed on MS in Motion, partly because that’s how I see the disease — always moving and progressing, even if in the most subtle ways. But I also wanted an aspirational perspective to the column and what I might bring to life with the disease. Broadly, I wanted to write about how to keep moving, even as MS makes that increasingly harder for me, with hopes that others who are scouring the internet like I did (and continue to do) might find this information meaningful or helpful … or both. 

The launch of this column coincided very closely with the launch of Ocrevus (ocrelizumab) as an FDA-approved therapy. Like many others with MS, I wanted to share my experience and thoughts about the new drug. After all, Ocrevus could make a huge difference in my life … if it works for me. But I was so focused on that story that I raced right by the opportunity to properly introduce myself or explain what this column is about.

So, here we are. My name is Mike Knight. I am 57 years old. My wife and I have been married for 31 years and we don’t have children. I’ve worked as a freelance writer since 1996 and have written for local, regional, national and international publications. We like to travel, to listen to live music and to be as active as possible.

I very much wish I didn’t have MS. Yet, with all the time on my hands (a dangerous surplus for writers) and the practice and experience of looking for stories within a story, I am continually surprised by what MS is trying to teach me … if only I’ll let it.

I’ve come to see MS as a kind of metaphor for life: It’s always changing. I’m wise not to take anything for granted, and I’m better off when I try — no matter how hard — to establish and maintain balance in as many ways as I can. MS is a work in progress in me. It’s always moving and waiting to throw me off-balance, especially when I’m not looking for it to do so. 

I’m sorry it has taken me this long to find a moment to introduce this column and myself. I do wish we’d met under different circumstances, but it is my privilege to meet you. Thanks so much for taking the time to read this column, and I hope we get the chance to meet again.

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Note: Multiple Sclerosis News Today is strictly a news and information website about the disease. It does not provide medical advice, diagnosis, or treatment. This content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition. Never disregard professional medical advice or delay in seeking it because of something you have read on this website. The opinions expressed in this column are not those of Multiple Sclerosis News Today, or its parent company, BioNews Services, and are intended to spark discussion about issues pertaining to multiple sclerosis.

7 comments

      • Ianthe says:

        I look forward to reading more if your story. I too, enjoy writing. My career in Social Work was cut short by MS. I now have plenty of time to sit in nature and contemplate my life. I agree, that when you accept your situation and look for ways to expand your world, beautiful things can happen.

        • Mike Knight says:

          Hey, thanks so much, I appreciate it. For me it’s ALWAYS a matter of realizing the balance in what’s happening, that is, seeing past the setback in hopes of finding something on the other side that offsets it in a positive way. Fortunately, due to MS I get a chance to try to see past setbacks on a daily basis, right? Thanks again, I appreciate you reading my column. Good luck!

  1. MADELINE NEWTON says:

    i am looking forward to reading more on how you do on the new drug for i have also started taking it …i have done my first two infusions and all is good …can’t wait to see how it goes when in 6 months i go for another and this time will be given in one dose all at the same time ….HOPE IT GOES GOOD FOR YOU JUST PART OF OUR JOURNEY WITH THIS DISEASE …

    • Mike Knight says:

      Thanks so much, I really appreciate it. I’m receiving my second infusion tomorrow, sounds like we are doing a similar protocol. I’m hopeful for us both (and everyone else who’s receiving the drug). Like so many other things I’ve experienced due to the disease, the sense of compassion and community I’ve witnessed and been a part of has been incredible. Glad to know we’re in it together!

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