‘Easy Rider’ Dreams? Say Yes to the Motorcycle

‘Easy Rider’ Dreams? Say Yes to the Motorcycle

Reading some social media posts the other day, I found myself humming a line from a late 1960s Arlo Guthrie song: “I don’t want a pickle. Just want to ride on my motor-sickle.”

I didn’t think it was possible for someone with MS to ride a “motor-sickle.” It appears I was wrong, because it looks as if a reasonable number of us MS folks are doing just that.

Shannon Sorensen’s Harley

Shannon Sorensen is one of them. She posted on the “We’re Not Drunk, We Have MS” Facebook group:

My advice is have fun!! Be smart, take breaks, let the rest of your group know that you’re fine with (or not!) them maybe going ahead and you catching up if you need to, be open and honest with them!”

Karen Hall is another. She emailed me:

“I love the idea of riding, am very impressed with riders, but MS has tried to slap me stupid so I would stop riding.  And that is why I ride my beautiful Can Am.”

The Can-Am Spyder is a three-wheeler. Karen says the three-wheel configuration allows her to compensate for her MS balance problems.

Al Montella’s ride is a 2001 Harley-Davidson Road King.
biking al montella
Al Montella with his Harley

“When I’m feeling good I ride…I sometimes plan it when I’m having a good day and I’m stress free ill just get on and enjoy the breez.. i’m sure to take beverages to keep me hydrated and wear a helmet that has air vents built in..this also helps to keep me cool. It’s not about giving up what you love it’s just knowing your limits, you may not be able to ride as far as you used to but at the end of the day your riding and you’re enjoying yourself and doing what you love.”

Hints if you’re planning to ride

Denise Sellers has this advice:

  • Make sure everyone in your group knows about your medical issues.
  • biking denise sellers
    Denise Sellers (left) at the Sturgis motorcycle rally

    Ask them to help watch for signs that indicate something is off.

  • Don’t push yourself just because they are pushing.
  • Make sure you take frequent breaks to walk around, sitting for that long can cause all kinds of issues.
  • Make sure to drink a lot of water and eat! Take snacks, you have to feed your brain and keep hydrated!!! You don’t want to get dehydrated or hungry on the road bc it causes confusion… for me. And it happens fast, without you even realizing it.
  • Make sure to wear sunblock, keep something cool on you all the time. I wear bandanas soaked in water and have cooling towels with me all the time. It’s super easy to get overheated on the bike just from the heat of the road!! MAKE SURE THE VENTS ARE OPEN ON YOUR HELMET!! Helps keep your head cool, I’ve been known to get my hair wet also. If so take a small ice chest with you for cold drinks and to keep other cooling towels, bandana’s and those cooling things that go around your neck.
  • Don’t forget your meds and make sure to take them on time.
  • Listen to your body.

Modifying your bike for MS

I wondered how I’d be able to shift the gears if I tried to ride a motorcycle. Because that’s usually done by raising or lowering a metal shift lever by flexing a foot up or down, that could be a real problem for me, since my left foot can’t do that. But I’ve discovered there’s an electric shifter that uses buttons on the left handlebar, so foot-shifting isn’t needed. And there are other modifications that can be made to make a bike “disabled accessible.”

Is it for you?

At 69-years-old, I’m not sure that I’m going to hop on a motorcycle, unless it’s as a passenger. It’s nice to know, however, there are MSers who can, and do, ride. And, who knows what may happen down the road? I try to never say never.

***

Note: Multiple Sclerosis News Today is strictly a news and information website about the disease. It does not provide medical advice, diagnosis, or treatment. This content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition. Never disregard professional medical advice or delay in seeking it because of something you have read on this website. The opinions expressed in this column are not those of Multiple Sclerosis News Today or its parent company, BioNews Services, and are intended to spark discussion about issues pertaining to multiple sclerosis.

Ed Tobias Editor
Ed Tobias is a retired broadcast journalist. Most of his 40+ year career was spent as a manager with the Associated Press in Washington, DC. Tobias was diagnosed with Multiple Sclerosis in 1980 but he continued to work, full-time, meeting interesting people and traveling to interesting places, until retiring at the end of 2012.
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Ed Tobias Editor
Ed Tobias is a retired broadcast journalist. Most of his 40+ year career was spent as a manager with the Associated Press in Washington, DC. Tobias was diagnosed with Multiple Sclerosis in 1980 but he continued to work, full-time, meeting interesting people and traveling to interesting places, until retiring at the end of 2012.
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16 comments

  1. Paul Yabsley says:

    I have MS and ride a Z900. I don’t do long rides but get a lot of satisfaction from still being able to do thing, have adventures.
    I don’t push it. I ride to my limts and enjoy.

  2. Sylvia says:

    I just bought myself an electric bicycle and use it to ride just about everywhere I go. I can be on my bike for an hour without having to come home and go to bed. It makes me feel normal!

    • Ed Tobias says:

      Nope, it’s by Arlo. You can hear him sing it if you click on the link on the song title.

      (I know a little about the Guthrie family. I went to high school with Joady Guthrie, Woody’s other son who was in my class, and Nora Guthrie, his daughter who was a year behind me). 🙂

      Ed

  3. Steve Larson says:

    I just took delivery of a Harley Fat Boy Deluxe with a sidecar. No balance issues now and I can take my wife, dog, or grandchildren along. Highly recommend it for an escape.

    • Christine McCarthy says:

      I am so happy for you and your family.
      We bought our first Harley in our late fifties….I have the
      MS and was more than happy to be the passenger…
      Five years ago my husband died from a brain tumor – our memories our Harley….priceless. I rested a few days a week and we rode every possible chance we had…..SO
      Enjoy every minute….your are still blessed…so ride, ride, ride…pace, pace 🙏🙏🙏👏👏👏👏👏😇😇😇😇

    • Christine McCarthy says:

      🙏🙏🙏go for it….👍👍- Suggestion…put a comfortable passenger seat…if your looking for company once in a while😂😂😂😂😂😂😂

  4. Daniel says:

    Danny here, I am an old Chopper guy, have bought and sold a few, converting and fixing up along the way, bought my first one, when I was 17, …..43 now, and haven’t been without since, a little over a year ago, when I was diagnosed……. So scared for my family, I sold everything, mistake,!!!!!!! had some really rare, cool, 70s parts, now I have nothing to show for…… But I have Faith, and something cool will come of it!!!!! So keep the faith, and ride on!!!

  5. Charles de Young says:

    I was diagnosed with P.P.M.S. last February and am a life long biker, I can’t stand not working and sometimes feel trapped, I started thinking I want to do a cross country motorcycle trip before my legs give out completely. As I researched doing this I ran across long Haul Paul who raises money for M.S. by riding his bike for a cure, he has M.S. and has covered 2 million miles now. I am inspired to go ahead with my dream and just do my trip. I will have to use a smaller bike and am trying to narrow down which bike I am going to buy. Low seat is my biggest concern.

    • Derek says:

      I was diagnosed with PPMS a year ago as well.
      Knew something wasn’t
      right for over 10 years.
      Glad I didn’t know because it plays on your mind as I’m sure you all know. Before I found out though I was lucky enough to spend 5 summers touring the U.S. for 2-3 weeks at a time on a Harley Road King. One of those bucket list dreams I had since a kid.
      ‘I had the Easy Rider poster hanging in my room as a 15 year old’
      I have since sold the Harley ‘too heavy’ and bought a little Kawasaki
      W650. Miss my old girl
      but at least I’m still getting
      out for the odd day ride if
      it’s not to hot. Hang in there everyone, a cure is coming. Derek

  6. I’ve had RRMS for 15 years, which caused blindness in my left eye due to Optic Neuritis 4 times back to back. I’ve been in remission for 12 years now. I learned to ride at 47 years old. I’m now 51 and my MS reared its ugly head 2 weeks ago. I’ve been in denial that it’s back,but my balance and my gate are tale tell signs it’s back. I won’t get to see the MS DR until June. That’s my fault, I stopped all meds and visits for the last 10 years. I was convinced after the first 2 years of the 12, I didn’t have MS. The Dr’s were wrong. ☹ I was wrong and stupid. As a rider, I am NOT ready to give it up. Reading these blogs above has given me back hope that I can continue to ride. I’m smiling again 😁 Thank you 😉

    • Ed Tobias says:

      Hi Sindi,

      I’m sorry that the beast is back but I’m glad that you found my Easy Rider column. I found a saying, a while ago, that fits my attitude and it looks as if it’s also going to fit yours: Life isn’t about hiding from the story, it’s about learning to dance in the rain. In your case I guess it should be ride in the rain.

      Keep smiling.

      Ed

  7. Andrea Woodvine says:

    My main problem with MS is that it affects my legs a little,some days more than others. But I got myself a maxiscooter, which you only use your feet on when you stop, and a well vented “jet” helmet with sun visor, and that makes the days enjoyable, in fact, to the point of being easier to handle than a car. MS doesn’t necessarily mean giving up 2 wheels, just making some adaptions to the bike or your life.

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