I love piercings, but annual MRIs make wearing jewelry complicated
About a year after I was born, my parents decided to get my ears pierced. Little did they know, it would become an obsession of mine years later. But little did I know, my…
Authentically Human - Desiree Lama
Desiree Lama is a 20-something-year-old PhD student living in Austin, Texas. She was diagnosed with relapsing-remitting multiple sclerosis during high school at only 17 years old but began experiencing symptoms at 14. Since a young age, she has found a safe haven in writing because her grandma fostered her love for words and learning. Desiree lives her life through being authentically human in a superficial world. In this column, she will share personal memos of being a disabled, bisexual Mexican woman in an overcritical world. Desiree hopes that this column will encapsulate the captivatingly burdensome feelings of human existence, especially for those with MS.
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My bladder problems are resurfacing after years of treatment
Note: This column describes the author’s own experiences with oxybutynin. Not everyone will have the same response to treatment. Consult your doctor before starting or stopping a therapy. A few years ago, I spent…
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Reflecting on my weekly battle with multiple sclerosis-related migraines
Searing pain and tears characterized my life for years because of multiple sclerosis-associated migraines. I remember those feelings as clearly as day because they diminished my quality of life. One radiant…
This life hack made living with MS a little easier for me
A disease-modifying therapy (DMT) for multiple sclerosis (MS) is a form of treatment that alters how the disease develops over time. DMTs have the potential to impede the progression of MS and…
Handling an abundance of emotions is part of life with multiple sclerosis
Let me paint you a picture of a scenario that has stuck with me for years. It was my sophomore year at the University of Texas at Austin and I was having lunch with…
Switching to new medications brings challenges in life with MS
Note: This column describes the author’s own experiences with sleep medications and antidepressants. Not everyone will have the same response to treatment. Consult your doctor before starting or stopping a therapy. Many years ago,…
A letter to a younger me newly diagnosed with MS
Dear younger self, As I sit down to write this letter, I can’t help but tear up at the thought of you. First and foremost, you’re an amazing soul, full of life and…
My little brother is my hero in life with multiple sclerosis
My mom always wished for a son and a daughter. Ten years after I was born, her dream became a reality with the arrival of my baby brother, Michael. Because I was the only…
My graduate studies help me better understand the effects of ableism
In previous columns, I’ve shared that I’m a graduate student at the University of Texas at Austin, but what exactly does that entail? Almost every time I tell someone I’m pursuing a doctorate…
Weak hands are a problematic MS symptom for a graduate student
As I’ve mentioned in previous columns, I’m now pursuing a doctorate in educational psychology at the University of Texas at Austin. Given that work, 99.9% of my day revolves around typing, despite my…
Reflections on the meaning of authenticity while living with MS
Recognizing and valuing authenticity is an aspect of life I began to grasp only a few years ago. During the peak of quarantine restrictions due to COVID-19, I was forced to move back home…
