March 23, 2021 by BioNews Staff 31 Days of MS: An Unexpected Discovery Photo courtesy of Dawn Morgan Day 23 of 31 This is Dawn Morgan’s story: Hi! I’m Dawn Morgan. I have been living with relapsing-remitting MS since 2000, when I was 25. It was a complete shock. At the time, I was just beginning my professional career as…
March 22, 2021 by BioNews Staff 31 Days of MS: Taking Care of My Mental Health Photo courtesy of Caroline Gellatly Day 22 of 31 This is Marissa Green’s story: I am Marissa, a fundraiser, drama therapist, and mental health practitioner who loves the outdoors, cooking, music, and any excuse for a party. My original diagnosis, Balo’s concentric sclerosis, happened…
March 21, 2021 by BioNews Staff 31 Days of MS: Laughing My Way Through MS Photo courtesy of Rebecca Anton Day 21 of 31 This is Rosani Christy’s story: My name is Rosani Christy, and I have been living with MS for over 20 years. I have always been a class clown. Making those around me laugh gave me a high, and…
March 20, 2021 by BioNews Staff 31 Days of MS: My Tale of Determination Photos courtesy of Esme Robinson Day 20 of 31 This is Bron Webster’s story: Multiple sclerosis is unpredictable and volatile. I got my diagnosis in 1996. I adapted. I gave up my 20-year financial services career in 2008 to focus on my daughter. I retrained…
March 19, 2021 by BioNews Staff 31 Days of MS: I Believe Anything Is Possible Photo courtesy of Conor Devine Day 19 of 31 This is Conor Devine’s story: I have been living with MS now for more than 15 years, which I would summarize as follows: 2006–2011. The first five years were horrendous. I gave up, felt awful most…
March 18, 2021 by BioNews Staff 31 Days of MS: Creating a Support Group for Young People Photo courtesy of Amy Thompson Day 18 of 31 This is Amy Thompson’s story: In April 2018, just after my 21st birthday, I was diagnosed with relapsing-remitting MS. My whole world was turned upside down and I couldn’t find anyone I could relate to. That…
March 17, 2021 by BioNews Staff 31 Days of MS: Healthy Food and Fitness Saved My Life Photo courtesy of Jess Faulds Day 17 of 31 This is Jess Faulds’ story: My name is Jess, and I am a 28-year-old woman from Alberta, Canada. Ask anyone who knows me and the two things in life that I am most passionate about are food and…
March 16, 2021 by BioNews Staff 31 Days of MS: Talking About Sex, Intimacy, and MS Photos courtesy of Daana Townsend Day 16 of 31 This is Daana Townsend’s story: My name is Daana Townsend, and I was diagnosed with RRMS in March 2004. I was 23. My mother and aunt also have MS. My treatment journey started with Avonex…
March 15, 2021 by BioNews Staff 31 Days of MS: I’m So Proud of My Family Member with MS Day 15 of 31 This is Angela Griffin’s story: I was with my daughter-in-law when she was first diagnosed with MS. I watched the doctors perform a lumbar puncture. As soon as I saw their faces, I knew what they would be telling her. Those precious few…
March 14, 2021 by BioNews Staff 31 Days of MS: Benefits Come From Simple Lifestyle Choices Day 14 of 31 This is Dr. Conor Kerley’s story: My name is Conor Kerley. When I was first diagnosed with MS at age 15, my first question was: will I still be able to play sports? I was diagnosed after three major relapses in eight months…
March 13, 2021 by BioNews Staff 31 Days of MS: From Loss of Identity to New Life Purpose Day 13 of 31 This is Susan Carey’s story: My name is Susan Carey, and I was diagnosed with MS in 2004 at age 14. As you can imagine, it came as a surprise to me and others. Having to go through puberty with a chronic illness…
March 12, 2021 by BioNews Staff 31 Days of MS: How to Make Exercises More Effective Day 12 of 31 Dr. Gretchen Hawley is a physical therapist who specializes in treating people with MS. These are her words: There are five principles that, if integrated into your routine, will provide a bigger bang for your buck when it comes to strengthening and improving your mobility.
March 11, 2021 by BioNews Staff 31 Days of MS: Dream, Believe, Achieve is My Motto Day 11 of 31 This is Shane Stanley’s story: My name is Shane and I am 29, living with MS since 2011. In the beginning, I experienced mild symptoms until they progressed in 2018. From that time, I have realized that MS is a gift. It has taught me…
March 10, 2021 by BioNews Staff 31 Days of MS: Dreams Can Come True Day 10 of 31 This is Trishna Bharadia’s story: I’m Trishna Bharadia, I live in Buckinghamshire in the U.K., and I have MS. I was diagnosed in 2008, age 28, after several years of vague symptoms, like feeling pins and needles, losing the strength in my hands, losing the…
March 9, 2021 by BioNews Staff 31 Days of MS: MS Will Not Stop Me Running Marathons Cheryl Hile and her husband, Brian. Photo courtesy of Michael Moberly Day 9 of 31 This is Cheryl Hile’s story: My husband jokes he knew I was a real runner when I asked him at a 10K, “Is the course accurate?” I was running fast and having…
March 8, 2021 by BioNews Staff 31 Days of MS: Taking the ‘DIS’ Out of Disability Photo courtesy of Heather Plummer-Goodrich Day 8 of 31 This is Heather Plummer-Goodrich’s story: Hello, my name is Heather. I am a nana of six beautiful grandchildren, a wife, and an ultra marathon runner. My mantra is: Never give up. Make adjustments, not excuses. Stay positive. When…
March 7, 2021 by BioNews Staff 31 Days of MS: Being Kind to Yourself Photo courtesy of Dan Clarke Day 7 of 31 This is Heather Russell-Kay’s story: Hi! My name is Heather and I am an actor, teacher, blogger, and support volunteer. I was diagnosed with MS just over six years ago, and for me, it…
March 6, 2021 by BioNews Staff 31 Days of MS: Learning to Adapt Photo courtesy of Sandra Costello Day 6 of 31 This is Dee DiFatta’s story: Being diagnosed with multiple sclerosis the day before my 22nd birthday was not something I expected or anticipated, but it has truly been a blessing. Navigating MS has taught me to slow down…
March 5, 2021 by BioNews Staff 31 Days of MS: Why You Should Get to Know NMO Photo courtesy of Lelainia Lloyd Day 5 of 31 Lelainia Lloyd is a patient advocate in Canada. These are her words: March is Neuromyelitis Optica (NMO) awareness month. NMO is a rare disease that is often mistaken for MS. Many NMO patients are…
March 4, 2021 by BioNews Staff 31 Days of MS: Finding a Way Back to Me Photo courtesy of Anita Alberto Photography. Day 4 of 31 This is Jen DeTracey’s story: It’s been over 10 years since I was diagnosed with MS. Ironically, on the anniversary, I didn’t think about it. I realized a few days later…
March 3, 2021 by BioNews Staff 31 Days of MS: ‘Living Well with MS’ Podcast Photo courtesy of Svetlana Didorenko Day 3 of 31 This is Alex Twersky’s story: My name is Alex Twersky, and I have worked with Overcoming MS for more than seven years, applying my marketing and communications experience to advancing our vision.
March 2, 2021 by BioNews Staff 31 Days of MS: MS Is a Label Photos courtesy of Sophie Brodie Day 2 of 31 This is Sophie Brodie’s story: MS is a label. Sometimes that label means something, but a lot of time it doesn’t. Almost two years ago — when I had lost some vision, some sensation, some balance, some mobility — a…
March 1, 2021 by BioNews Staff 31 Days of MS: MS and Pole-dancing Photos courtesy of Hayley Crowther Day 1 of 31 This is Hayley Crowther’s story: When I look back at the year I got sick, I’d just celebrated my 30th birthday. I was living with my husband and 7-year-old son, had a job I loved and, just four weeks prior…
April 27, 2020 News by BioNews Staff Publisher’s Note: Industry Leaders Seek to Advance Innovative Resources for Rare, Orphan Disease Communities Amid COVID-19 Outbreak FFF Enterprises and BioNews Services, publisher of this website, announced today that both rare and orphan disease advocates are joining forces to provide patients with resources to help them connect as a community and continue to manage their health during this time when many are finding themselves alone.
December 3, 2015 by BioNews Staff Coral Gables, FL MS Exchange Event This Saturday To Explore Relapsing MS Management An interactive event in Coral Gables, FL this weekend will give relapsing Multiple Sclerosis patients who live in the area access to best practices and therapeutic insights that can help them better manage the disease. The Coral Gables MS Exchange event will be held from 10:30 a.m. to 2:15 p.m. on…
October 10, 2015 News by BioNews Staff Mike Nace, Editor-in-Chief of Multiple Sclerosis News Today, Reviews Day 2-3 at #ECTRIMS2015 https://multiplesclerosisnewstoday.com/wp-content/uploads/2015/10/ECTRIMS-Podcast-2-091015-8.32-pm.mp3 Read the articles mentioned in the podcast: #ECTRIMS2015 – Another Attendee Record #ECTRIMS2015 – “Vitamin D plays important role in MS inflammation.” – Jorge Correale #ECTRIMS2015 – “When you stop smoking you can decrease the risk of disease progression.” – Jorge Correale Discovering a New…
June 16, 2015 News by BioNews Staff FDA Taps Online Patient Database To Gain Access To Patient-Reported MS Health Data In an effort to access firsthand patient data as a means of improving healthcare and drug safety, the Food and Drug Administration (FDA) has announced a unique partnership with PatientsLikeMe, an online network of 350,000 patients who have reported on their own personal experiences in living with over 2,500 different diseases. The…
October 15, 2014 News by BioNews Staff Spasticity Drug to be Tested on Multiple Sclerosis Patients in Early 2015 Concert Pharmaceuticals, Inc. will announce their latest results from the Phase 1 data of CTP-354, a drug developed to treat spasticity — a chronic condition associated with patients with brain disorders, including Multiple Sclerosis — at the next American Neurological Association’s Annual Meeting in Baltimore, Maryland. The Phase 1 randomized,…
August 11, 2014 News by BioNews Staff Higher Body Temperature in RRMS Patients Could Cause Increased Fatigue Researchers have recently discovered that the fatigue that patients with multiple sclerosis (MS) experience is not the same kind of fatigue that healthy people feel from time to time, nor is it caused by the same factors. The National Multiple Sclerosis Society reports that around 80% of people who suffer from…
August 10, 2014 News by BioNews Staff JCV Virus May Be Missed in Patients Who Take Popular MS Drug, According To Study Multiple sclerosis (MS) patients who are prescribed Tysabri have an increased risk to develop the rare, often fatal infection of the brain called progressive multifocal leukoencephalopathy (PML), according to a recent study. PML is caused by a common virus that infects blood cells and can be mobilized by popular RRMS drug Natalizumab,…