MS Research and the U.S. Department of Defense

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Congress and MS research

Engaging Thoughts

I recently had the opportunity to serve as a consumer reviewer of research applications submitted to the Multiple Sclerosis Research Program (MSRP) sponsored by the Department of Defense. I was nominated by the Accelerated Cure Project for MS for this role.  As a consumer reviewer, I was a full voting member, along with prominent scientists and other consumer reviewers, at meetings to help determine how the $6 million appropriated by Congress for fiscal year 2016 will be spent on future MS research.

While I am not at liberty to discuss the review panel I was assigned to or the research proposals I had the honor of reading, I can talk in generalities about the process and, especially, the sense of hope I came away with. This restriction is for the integrity of the program.  For now, you will just have to take my word that there are some exciting ideas being floated in the MS research world.

The point of MSRP is for independent researchers to submit new ideas for treatments or other ways to improve the lives of those of us with MS. There were three areas of investigation: Treatment of MS Symptoms;  Biology, Measurement and Treatment of MS Symptoms; and Obstacles to Remyelination.  You can read the details of these three research areas at cdmrp.army.mil/pubs/press/2016/16msrppreann.

The consumer reviewers represent the collective view of those living with multiple sclerosis, and include patients, family members, and persons at risk for the disease. We were asked to read and then evaluate the impact of each application. As a consumer reviewer, I found it particularly insightful to be given this insider’s view of where those sparks of ideas for research begin.  These independent researchers, primarily affiliated with academic institutions, may hold the key to the next big MS breakthrough. Which studies are ultimately funded will be announced in early 2017, and I look forward to sharing more with you then.

Congress and MS research

“The CDMRP [Congressionally Directed Medical Research Programs] originated in 1992 via a Congressional appropriation to foster novel approaches to biomedical research in response to the expressed needs of its stakeholders–the American public, the military, and Congress.” 

Funds for these studies come directly from Congress, and MS is just one of many areas of research that receive special attention.  Since the program began, almost $8 billion hs been committed to medical research, and the current list of areas includes:

  • Alcohol and Substance Abuse Disorders
  • Amyotrophic Lateral Sclerosis
  • Autism
  • Bone Marrow Failure
  • Breast Cancer
  • Defense Medical Research and Development
  • Duchenne Muscular Dystrophy
  • Epilepsy
  • Gulf War Illness
  • Joint Warfighter Medical
  • Lung Cancer
  • Military Burn
  • Multiple Sclerosis
  • Neurofibromatosis
  • Orthotics and Prosthetics Outcomes
  • Ovarian Cancer
  • Parkinson’s
  • Peer Reviewed Alzheimer’s
  • Peer Reviewed Cancer
  • Peer Reviewed Medical
  • Peer Reviewed Orthopaedic
  • Prostate Cancer
  • Psychological Health/Traumatic Brain Injury
  • Reconstructive Transplant Research
  • Spinal Cord Injury
  • Tick-Borne Disease
  • Tuberous Sclerosis Complex
  • Vision

The next time you hear about budget discussions in Washington for the military, I hope you will remember that part of those funds are going to support research that will impact not only military personnel, but also civilians living with chronic disease. It has only been in recent years that there has been an official acknowledgement of a higher incidence of MS in our military ranks and, in response, there is now the VA Centers for MS Excellence, where over 20,000 veterans are eligible for specialized care.

I believe my service to these veterans and the greater MS  community as a consumer reviewer through this MS Reserch Program can yield important research results for us all. It really was an honor to serve, and I hope to be called upon again. The CDMRP program is always looking for consumer reviewers. You will find  more information on the Multiple Sclerosis Research Program, including how to serve as a consumer reviewer, on the CDMRP website: cdmrp.army.mil.

Note: Multiple Sclerosis News Today is strictly a news and information website about the disease. It does not provide medical advice, diagnosis, or treatment. This content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition. Never disregard professional medical advice or delay in seeking it because of something you have read on this website. The opinions expressed in this column are not those of Multiple Sclerosis News Today, or its parent company, BioNews Services, and are intended to spark discussion about issues pertaining to multiple sclerosis.

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Laura Kolaczkowski comes from Beavercreek, Ohio, and worked at the University of Dayton for over 25 years until MS challenged her enough to go onto full-time disability. She is active in the MS community on multiple levels, and writes for her own personal blog, InsideMyStory and as a patient expert for MultipleSclerosis.net. Laura is the Lead Patient Representative and co-principal investigator for iConquerMS™, a patient powered MS research network. Laura freely admits her Liberal Arts background fuels her interest in patient engagement and empowerment and she struggles with the science of MS.
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6 comments

  1. jojo says:

    Thanks Laura,

    Please look at these numbers. Do we really think a cure is coming from big Pharma. Biogen would not speak to me…surprize!

    “The company said third-quarter growth was propelled by blockbuster multiple sclerosis drug Tecifidera, which had sales rise by 10% to $1.03 billion, above the FactSet consensus of $1.00 billion. Sales of another multiple sclerosis drug, Tysabri, grew by 7% to $515 million, above the $508 million FactSet consensus.”

  2. Eric Woodard says:

    As long as money is motivation for a cure there will never be one.Because they are looking for a treatment not a cure to make money it is sad to say God bless us all dealing with Ms

  3. Joan Quilter says:

    It’s a shame we need a Dept. of War (“Defense”), but as it is, veterans will need help with their terrible injuries, etc. I just don’t understand why our government must spend billions (trillions?) of dollars to keep bombing other countries. Imagine how those dollars could help MS and other patients? $6 million dollars is a drop in the bucket.

    We need a way to remyelinate – that’s the bottom line. Too many people are living in limbo with MS; their lives are not far from a living death.

    • Tim Bossie says:

      We hope for a day when the hidden secret of remyelination will be deciphered and so many MSer’s in limbo will get the relief they need.

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