Columns

How good surveillance can help detect the early signs of MS

About four years before I was diagnosed with multiple sclerosis (MS), someone else inadvertently ā€œdiagnosedā€ me. This person wasn’t medically trained, probably had no personal knowledge of MS, and didn’t actually use the words ā€œmultiple sclerosis.ā€ Still, they gave me one of the best clues in my quest…

How I kept going after a discouraging diagnosis of MS

Let me introduce myself: I’m Mike, and if you don’t mind, I’d like to share my story. I was diagnosed with multiple sclerosis (MS) in August 2022. Since then, a lot has changed, including the loss of a 20-year career, worsening mobility problems, and the start of…

MS news notes: Vumerity, herpes virus, caregivers

Welcome to ā€œMS News Notes,ā€ a column where I comment on multiple sclerosis (MS) news stories that caught my eye last week. Hereā€™s a look at some of whatā€™s been happening: A good report for Vumerity Final results are in from the EVOLVE-MS-1 clinical trial for patients with…

MS news notes: COVID-19, MS blood tests

Welcome to ā€œMS News Notes,ā€ a column where I comment on multiple sclerosis (MS) news stories that caught my eye last week. Hereā€™s a look at some of whatā€™s been happening. MS relapses and COVID-19 Since COVID-19 became a concern over three years ago, I’ve read many comments…

What I’m thankful for this Thanksgiving

It wasn’t a good morning. I was dragging my cement-pillar legs around the kitchen and grew frustrated as I lurched from the refrigerator to the counter to feed the cat and the dog. I’d propped my two canes against the counter, but they’d slid to the floor ā€” not once,…

MS news notes: ATA188, biomarkers for MS progression

Welcome to ā€œMS News Notes,ā€ a column where I comment on multiple sclerosis (MS) news stories that caught my eye last week. Hereā€™s a look at whatā€™s been happening: ATA188 fails a big test ATA188 is an experimental cell therapy developed by Atara BiotherapeuticsĀ aimed at easing MS…

My multiple sclerosis has made me more suspicious

As I’ve mentioned a time or two, my wife and I have three boys. Although they’re all under the age of 12, they’ve started to talk like the budding teenagers they are. As they mingle with peers more than their parents, their vocabulary in particular becomes less like ours every…

MS news notes: Stem cell transplant, artificial intelligence

Welcome to ā€œMS News Notes,ā€ a column where I comment on multiple sclerosis (MS) news stories that caught my eye last week. Hereā€™s a look at whatā€™s been happening: Lemtrada or stem cell transplant? While the U.S. Food and Drug Administration has not yet approved stem cell transplants…

My bladder is doing much better these days, but why?

I slept through the night last night. Recently, I’ve managed to do that on most nights. No 4 a.m. bathroom trips for me! That’s a big deal. There was a time when I’d get up two or even three times during the night for a bladder run. Sleeping seven or…

MS news notes: Dalfampridine, Neural Sleeve, vitamin D

Welcome to ā€œMS News Notes,ā€ a column where I comment on multiple sclerosis (MS) news stories that caught my eye last week. Hereā€™s a look at whatā€™s been happening: Dalfampridine side effects The side effects that might occur if you use dalfampridine (sold under the brand name Ampyra)…

MS news notes: EBV, stopping a DMT, 3 treatment reports

Welcome to ā€œMS News Notes,ā€ a column where I comment on multiple sclerosis (MS) news stories that caught my eye last week. This week, the stories cover research presented at the joint meeting of the European Committee for Treatment and Research in Multiple Sclerosis (ECTRIMS) and the…

Musicians living with MS find inspiration in their conditions

“Iā€™m so tiredThe hammerā€™s coming down againIā€™m hardwiredAll the signals cross and double backBroken insideThereā€™s no fixing anythingHow do i explainIā€™m fighting every day to do the simple things?” The lyrics to “Hammer,” written by singer Susie Ulrey and the band Pohgoh,…