July 5, 2023 Columns by Benjamin Hofmeister With a disabling condition, seeking help is part of independence I must look like I need help all the time. I donāt own a shirt or any other article of clothing that says so, and I donāt think I have a helpless look on my face, either. I smile often, sometimes genuinely and sometimes with my mouth formed in…
July 3, 2023 Columns by Ed Tobias MS news notes: Stem cell therapy, genetic variant, diet Welcome to āMS News Notes,ā a Monday morning column where I comment on multiple sclerosis (MS) news stories that caught my eye last week. Hereās a look at whatās been happening: Another study shows positive results with stem cell therapy Yet another study has concluded that autologous hematopoietic…
June 30, 2023 Columns by John Connor I get no kick from champagne ā but what a kick I get from steroids Itās only day one, but my eyesight has already improved. It may not be that of a hawk’s, but at least I can tell the difference between a lumbering pigeon and a bird of prey. The world seems brighter ā and not just because of that vision thang, peeps. If…
June 30, 2023 Columns by Ed Tobias My COVID-19 antibodies are still in my blood, but does it matter? It’s been almost two and a half years since my first COVID-19 vaccine ā eight months since my most recent booster ā and my COVID-19 antibodies seem to still be doing their thing. I know this because, after having nine test tubes of blood drawn, the lab results…
June 29, 2023 Columns by Benjamin Hofmeister Living with MS is not just ‘all or nothing,’ but I kind of wish it were A few ā OK, many ā years ago, I played the lead in a production of “Oklahoma!” Donāt get excited; it wasnāt on Broadway or anything like that. It was a high school production, and I suspect I only landed the role because I could sing ā and probably…
June 26, 2023 Columns by Ed Tobias MS news notes: Vaccinations, sex coping strategies, myelin repair Welcome to āMS News Notes,ā a Monday morning column where I comment on multiple sclerosis (MS) news stories that caught my eye last week. Hereās a look at whatās been happening: MS experts offer more than 50 vaccine guidelines I know there are different opinions about vaccines, and I’ve…
June 23, 2023 Columns by John Connor Thereās more to life than this (expletive) MS, and other stories Nobody’s life is eternal, but letās face it, peeps: Much of the psyche of a multiple sclerosis (MS) patient is internalized. I spend an inordinate amount of time, physical and mental, on my illness. Yer, OK, Iām not turning this into a therapy session. Or am I? A serious…
June 23, 2023 Columns by Ed Tobias A good doctor-patient relationship matters to people with MS “What can Dr. Crayton help you with today?” I was starting my annual multiple sclerosis (MS) checkup with my neurologist, and before I met with her, I got this question from her MS nurse. I was stumped. I’d never been asked that before. I think most people with MS…
June 22, 2023 Columns by Benjamin Hofmeister The right support is essential when you have multiple sclerosis I didn’t seek support immediately after my diagnosis of multiple sclerosis (MS). To be fair, MS was just an annoyance to me at the beginning. It was simply a set of symptoms, and I was initially happy just to have an explanation for them. To be…
June 20, 2023 Columns by Ed Tobias MS news notes: Clemastine, MS retrospective, PIPE-791 Welcome to āMS News Notes,ā a Monday morning column where I comment on multiple sclerosis (MS) news stories that caught my eye last week. Hereās a look at whatās been happening: Myelin repair and clemastine The Multiple Sclerosis News Today story “MRI method detects myelin repair with…
June 16, 2023 Columns by John Connor I canāt make my own bed or even lie in it! For most of the past six years, Iāve been suffering from that weekly journo disease known as “columnitis.” One column is finished, hurrah! Bathe in the relief of getting that one in the net. (It’s a football reference, American “Ted Lasso” finale fans.) Weāve also just had the…
June 16, 2023 Columns by Ed Tobias Air4All hopes to make flying with a wheelchair easier I’ve done quite a bit of flying, for business and pleasure, over the 42 years I’ve lived with multiple sclerosis (MS). It’s not easy traveling by air with my scooter, and I can’t imagine trying to fly with a 450-pound power wheelchair. Actually, I don’t have to imagine.
June 15, 2023 Columns by Benjamin Hofmeister It’s not what I expected, being a parent with a disability Einstein said that time is relative, and as I age (gracefully, I hope), Iāve found that to be true. For example, I frequently find myself referring to events that occurred a decade or more in the past as happening ājust the other day.ā In my mind, I’m still…
June 12, 2023 Columns by Ed Tobias MS news notes: Foralumab, Ocrevus, Kesimpta, exercise Welcome to āMS News Notes,ā a Monday morning column where I comment on multiple sclerosis (MS) news stories that caught my eye last week. Hereās a look at whatās been happening: Foralumab shows early positive results for SPMS I’ll say up front that this is a very small study.
June 9, 2023 Columns by John Connor Weighing the costs and benefits of care for my aggressive MS Itās not often that I dig into my somewhat sketchy knowledge from the Bachelor of Arts in economics I earned in 1980. Admittedly, it should really be described as ugly. Although I scrapped nearly one-third of my units of study, I still have the right in the U.K. (and perhaps…
June 9, 2023 Columns by Ed Tobias Could a digital bridge to link brain and spinal cord help those with MS? We all know that the difficulty many of us with multiple sclerosis (MS) have walking can be caused by lesions that damage the nerves along the spinal cord. What if an electronic bridge could be built to carry nerve impulses over those damaged areas? That concept is being…
June 8, 2023 Columns by Benjamin Hofmeister The best lessons on MS come from the experience of people with MS In the not-too-distant past, a friend shared a video clip from a competitive event with a few of us. One of the competitors had a shock of gray hair and was slowed by a noticeable limp. “Watch how smooth this guy is,” he said. As we all expressed our amazement…
June 5, 2023 Columns by Ed Tobias MS news notes: Frexalimab, vidofludimus calcium, Briumvi Welcome to āMS News Notes,ā a Monday morning column where I comment on multiple sclerosis (MS) news stories that caught my eye last week. Hereās a look at whatās been happening: Is CD40L a better way to control MS inflammation? CD40L is a protein thatās involved with activation of…
June 2, 2023 Columns by John Connor Up at 9, in bed by 8, yet still no time? My sleep schedule, according to mathematics, leaves me 11 hours ā so whatās my problem? My current ultra-efficient carers arrive at 9:30 a.m. and usually get me into the wet room 15 minutes later. Maybe 20 if my bottom has been misbehaving. Itās been something of a miscreant ever since…
June 2, 2023 Columns by Ed Tobias Let’s talk facts about MS and COVID-19 vaccines Since the early days of the COVID-19 vaccination program, disinformation claiming that the vaccines can induce multiple sclerosis (MS) has swirled around social media. Recently, there’s been a resurgence of this type of post, sparked by a report published on the World Health Organization (WHO) website titled “…
June 1, 2023 Columns by Benjamin Hofmeister With MS, giving it your ‘some’ adds up to enough Special Forces Assessment and Selection (SFAS) ā a training program for entry into the U.S. Army Special Forces ā is rare, even among military courses. It has grueling physical aspects, but the majority of it is mental. It’s really one long test to gauge a participant’s ability to work…
May 30, 2023 Columns by Ed Tobias MS News Notes: EBV, nabiximols, MRT-6160 Welcome to āMS News Notes,ā a Monday morning column where I comment on multiple sclerosis (MS) news stories that caught my eye last week. Hereās a look at whatās been happening: A closer look at the EBV-MS link Much has been written over the past few years about the…
May 26, 2023 Columns by John Connor I keep running into trouble even though I’m in a wheelchair Ah yes, I’m starting this week’s column with a headline thatās a conundrum (that is, if the olā editor lets me keep it). That’s because I’m starting with a slang word. I’ve checked, and it seems that the main slang word for diarrhea both in the U.K. (where I…
May 26, 2023 Columns by Ed Tobias Sure, there are benefits to having a pet. But with MS, is it wise? I’m just back from walking our dog. My wife, Laura, rescued him about a year ago, and when she heard his name was Toby, like Tobias, she thought it was a sign that he was the dog for us. We’ve had dogs before, but I’m not getting any younger or…
May 25, 2023 Columns by Benjamin Hofmeister Multiple sclerosis deserves to be complained about My shoelaces keep coming untied, my compression socks are bunched up, I bumped my shins with the vacuum again, and the shower was too hot this morning. Confused? Don’t be. I’m just getting in the spirit of National Wine Day by ā oh, wait, I might have read…
May 23, 2023 Columns by Jamie Hughes The positive power of the creative life I donāt know why I find it so impossible to sit still. I feel like every moment Iām not engaged in some creative pursuit, Iām somehow missing out. Or worse, Iām squandering what poet Mary Oliver calls my āone wild and precious life.ā Multiple sclerosis (MS) has done…
May 22, 2023 Columns by Ed Tobias MS news notes: Stem cell studies, Ocrevus, fenebrutinib, and more Welcome to āMS News Notes,ā a Monday morning column where I comment on multiple sclerosis (MS) news stories that caught my eye last week. Hereās a look at whatās been happening: Early stem cell transplants I’ve read the headline “Stem cell therapy may do most good when given…
May 19, 2023 Columns by John Connor Global warming and the fine art of ambulance chasing Whoād have thought of the following shenanigans? It only took four days of constant badgering to fix. Last summer brought exceptional (actually, likely to be semi-regular from now on) hot weather in the U.K., with parts of England surpassing 100 F for the very first time. This caused a…
May 19, 2023 Columns by Ed Tobias Want to take your MS to the beach? Memorial Day, the unofficial start of summer vacation in the U.S., is fast approaching. It’s almost time for some summer beach fun ā if we can get there. Beaches can be difficult, if not impossible, to access for many people with multiple sclerosis (MS). But times seem to be…
May 18, 2023 Columns by Benjamin Hofmeister Multiple sclerosis is unique and requires personalized care I’ve always liked the phrase “go with what you know.” I suppose I understood it to mean “stick to what you’re good at” or simply, “stay in your lane.” Recently, though, I stumbled on a slightly different meaning that I like even better. āUse knowledge you already have as a…