Chairborne — Ben Hofmeister

I used to sing — a lot. Don’t worry, I didn’t miss my true calling. I could carry a tune, but that was about it. I was loud, and just like arguing, volume can make up for a lack of skill. My voice might not have been the best,…

Everyone’s multiple sclerosis (MS) is unique to them. The different disease types, lesion loads, and lesion locations are a few reasons why our symptoms are so variable. We with MS all live in the same neighborhood, just in different houses. If there were such a thing as…

Note: This column describes the author’s own experiences with Ocrevus (ocrelizumab). Not everyone will have the same response to treatment. Consult your doctor before starting or stopping a therapy. Tomorrow morning, I’ll have my 13th infusion of Ocrevus (ocrelizumab). I’ve been approved for the fast infusion rate, so…

I’m pretty good at doing what I’m told. You probably think that’s because I was in the Army for 22 years. You might even think it’s because of all the medical authority figures that have come with nine years of multiple sclerosis (MS). Of course, they both factor in,…

I recall a conversation I had with an acquaintance soon after my diagnosis. I hadn’t progressed to a wheelchair yet, but my limp was noticeable, and he’d heard talk from mutual friends. “What is it that you have?” he asked. “Multiple sclerosis.” A moment of wide-eyed silence…

The kids had their spring break last week, so we loaded up and drove to Universal Studios in Orlando, Florida. I promise this column won’t be a review of the theme park and its accessibility (which was great, by the way). It won’t offer tips about traveling with…

In a previous column, I wrote about the journey to my diagnosis of multiple sclerosis (MS). In it, I mentioned that the neurologist had praised me for “taking this well.” I suppose I did — at first. When I eliminated the other possibilities, I was left with an…

Even if I resolved to improve my cardiovascular health by taking the stairs more often, I can’t. Mobility problems brought on by my primary progressive multiple sclerosis force me to use a wheelchair. Using a wheelchair, in turn, means that stairs and I are natural enemies (as are curbs and…

I may not be able to turn in circles like a dog anymore, but I still have a few bedtime routines. Before I had an intrathecal baclofen pump, multiple sclerosis-induced spasticity would wake me up multiple times during the night. Whenever that happened, it was next to…

A little over three years passed between my multiple sclerosis (MS) diagnosis and my medical retirement from the U.S. Army. Even before the diagnosis, I knew something was wrong and had taken a desk job while searching for the reason. Since I was behind a desk in a…

Every once in a while, I wake up prepared to swing my legs over the side of the bed and get moving. That sleep-induced forgetfulness evaporates as soon as the reality of multiple sclerosis (MS) reminds me that I can’t swing anything. I suppose I should be grateful that…

We had family portraits made a few days ago. With a family of five, this never goes perfectly, so there was a little pre-photo briefing beforehand. There were some veiled threats, a promise of dinner after as a reward for good behavior, and more than a few hissed admonishments to…

I am not by nature a very neat person. I want to be. I like order, but I lack the discipline to maintain it. People tend to think that time in the military makes you neat and orderly for the rest of your life, but in my case, they’d be…

“scabulous adj. proud of a scar on your body, which is an autograph signed to you by a world grateful for your continued willingness to play with her, even when you don’t feel like it.” — John Koenig, “The Dictionary of Obscure Sorrows“ I’ve managed to amass quite the…

Summer is one of the cruelest times of year for people with multiple sclerosis (MS). Thanks to Uhthoff’s syndrome, it’s hard to enjoy all the fun that comes with warm temperatures. I don’t seem to sweat anymore (not that it helps much in our high humidity), so I…

The other day, my middle child opened the door while I was in the bathroom. If you have children, a surprise visit in what should be a sanctuary isn’t unusual, but in this case, what he said was. He observed me aboard my toilet and shower chair, which progressive…

Before multiple sclerosis (MS), I was pretty proud of my memory. For the most part, I still am, but like many others with this disease, I now have trouble recalling information. For me, it’s one of the most irritating, (sometimes even infuriating), cognitive issues associated with MS. I…

As I’ve probably mentioned before, my wife and I have three boys in grade school. This means that between school events, sports, and play dates, I’m around a lot of kids. Considering I use a wheelchair, my multiple sclerosis (MS) isn’t exactly invisible, so I’m often asked…

The new year is just a few days away, so if you haven’t already, you might want to start thinking about resolutions, if you’re so inclined. Although I personally don’t bother these days, about half of American adults do, although that number is declining. One study suggests that…

The holiday season is one of my favorite times of year. Multiple sclerosis (MS), of course, has a way of sucking the joy out of anything, but it can’t have my family’s Christmas. I might miss sleeping in, but our three boys have really brought the magic…