Columns Silver Linings - a Column by Jennifer Powell Overcoming My Fear of Concerts With a Little Help From the Rolling Stones Overcoming My Fear of Concerts With a Little Help From the Rolling Stones by Jennifer (Jenn) Powell | October 21, 2021 Share this article: Share article via email Copy article link As the music started, the crowd stood and cheered. I followed suit. Well, almost. I stood with more intention than balance. And as I did, I veered toward the person seated in the next row. Hello, secondary progressive MS. Two years ago, I went to see Paul McCartney at Dodger Stadium in Los Angeles. I enjoyed the show and the shared moments with my husband, but I grieved afterward. Getting to and from our seats had shaken me to my core. In the dark of night, I had to shuffle down the cement stairs that led to our seats. Without a railing, I squeezed my husband’s hand. More than once, I asked to stop, and I considered leaving altogether. As I soldiered on, my head was spinning. At that moment, I resented everything. But beneath the anger, fear, and anxiety was a deep sense of loss. I left the stadium that night dejected, vowing never to attend another concert in my life. As a music lover, that decision leveled me. As a human being, I was just sad. Recommended Reading October 13, 2021 News by Hawken Miller MS in Harmony Makes Music Therapy More Accessible to Patients In the past two years, I have passed up every opportunity to attend a concert. That night at Dodger Stadium had defined my fear more than my disease and increased disability level had. I would often replay that night in my head. And then the inequity of it all struck like a lightning bolt. I felt angry that I had experienced such fear. I knew I wasn’t the only one who had been through such a thing, and I certainly wouldn’t be the last. So, I refused to allow that night to define my ability to try. Multiple sclerosis has rendered me disabled, not dead. I quieted my fears and decided to change the narrative. I chose to attend another concert: the Rolling Stones. As I veered toward the seat in front of me, I caught my fall. I laughed at the close call. Sometimes laughter is required. The larger area between the seats was roomy. The new stadium came equipped with railings on all of the steps. The steps themselves were wide and shallow. I enjoyed the Rolling Stones, and I stayed present without worrying about how I would ascend a stairway without rails. I felt safe, and that perception was everything. As the band began to play, I looked around. My eyes caught the gaze of a woman in a wheelchair. We shared a smile before I witnessed her dance to “(I Can’t Get No) Satisfaction.” I knew that one day that might be me. I smiled because I knew I would be here, too. *** Note: Multiple Sclerosis News Today is strictly a news and information website about the disease. It does not provide medical advice, diagnosis, or treatment. This content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition. Never disregard professional medical advice or delay in seeking it because of something you have read on this website. The opinions expressed in this column are not those of Multiple Sclerosis News Today or its parent company, BioNews, and are intended to spark discussion about issues pertaining to multiple sclerosis. Print This Page About the Author Jennifer (Jenn) Powell Jennifer is the Brand and Marketing Manager for BioNews, podcast host of the Multiple Sclerosis podcast, and a featured columnist. Jennifer is an active advocate in the MS community and imparts her hopeful optimism into real-life challenges facing the MS community. Now with secondary-progressive MS, Jennifer hopes to elevate the patient voice to better the lives of those living with the disease. Prior to writing her column, Jennifer freelanced for several online periodicals. When not writing, Jennifer enjoys volunteering with animal rescue, traveling, and spending time at home in Orange County, California, with her husband and golden retrievers. Tags accessibility, music Comments Steve “You can’t always get what you want…….but if you try sometimes, you might find, you get what you need…”? Reply Bernard Gorman Hi Jenn, Just read your posting and wanted to reply. I live in St. Albans, about 20 miles north of London, UK with my wife. I was diagnosed with PPMS in 2006. Over the years, my walking has slowly worsened (left leg affected) and I now walk slowly with a stick. We went to a number of music concerts each year pre-covid and have currently got a few lined up over the next few months. A number of the London venues are accessible friendly and I usually make my situation known at the time of booking. Quite often, they will reserve front row seats or help me identify seats which are straightforward to get to. Some of the larger venues (e.g. Barbican) have their own car parking facilities which have blue badge parking spaces which are free to use. For some of the London venues, my wife goes free at the time of booking tickets which is a nice bonus. It might be worth starting again with concerts in smaller venues to get the ball rolling; just a thought. Please don't lose heart; live music is such a fantastic experience. In fact, my email sign-off reads ... ‘Without music, life would be a mistake.’ Friedrich Nietzsche 19th Century German Philosopher All the very best, bernard gorman Reply Leanne Broughton I haven't been to a concert in a few years (last one U2) and experienced the same issues with stairs, crowds and dizzying heights. But I loved it anyway. I understand there are designated seating for disabled people/wheelchairs and this is how I would be travelling next time. Reply Jennifer Powell Steve, That was my favorite of all songs that evening. It certainly has its own meaning. Thank you for taking the time to read and comment. Warmly, Jenn Reply Jennifer Powell Leanne, Thanks for taking the time to read and comment. You understand the chaos well It is hard enough to maneuver the stadium but to do so among throngs of hurried people is too much. I am sorry you had that experience. I encourage you to try again. I spent some time learning about accessibility before going to the Stones. Absolutely take a seat ear marked for a wheelchair as you will avoid having to use the steps. There are also people there to help you access the exits. Let me know if you choose to attend another, I would love to hear about you experience. Warmly, Jenn. Reply Jennifer Powell Bernard, Thank you so much for reading and taking the time to respond. You sound like a kindred spirit. Live music is an ethereal experience. I am happy to hear that London/UK arenas are accessible to those with disabilities. And I like your suggestion about seeking smaller venues. I enjoy more intimate concerts and have my eye on Jackson Browne. I love your email signature and agree. Music breathes meaning into my life and defines iterations throughout my life with just one song. Thank you for you perspective. warmly, Jenn Reply Lori DePorter Jenn- I am taking my mom to see Andre Bocelli at the Capital One arena in December. I was reluctant but asked for assistance to accommodate both of us. The box office has a person to help with accommodations. Kudos to you for getting back to what you love to do! Reply Jamie Hughes I'm going to see the stones in Atlanta in November. I can't wait! :) Reply Joe Pierce "Music breathes meaning into my life" -- well put! Reply Jennifer Powell Lori, I am so excited for you to see Andrea Bocelli! You are so wise to pre-plan and make accommodations as your experience will be wonderful. I cannot wait to hear all about it! Cheers to music and accommodations so we can enjoy it! Warmly, Jenn Reply Jennifer Powell Jamie, They performed so Incredibly well. I hear they play different sets for different shows. I look forward to hearing about your experience. The opening was my favorite. Warmly, Jenn Reply Leave a comment Fill in the required fields to post. Your email address will not be published. Your Name Your Email Your Comment Post Comment
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