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Hi Mody,

We’re all glad to have you here and hope you can find useful information. If not, please let us know what’s missing or what you think we can do differently.

Thanks,

Ed

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Heat slows me down, but I can always escape it with air conditioning. In the summer I can live in the pool. But cold is worse…physically and mentally. I’m fortunate that I can escape the cold and wind in Maryland by spending 3 months in Florida in the winter. It would be horrible, for this old guy, if I couldn’t.

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Test message 2

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Test message.

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If you’re wondering where the Phase 2 trial for MS will be conducted and how to volunteer to participate, so am I. I’ve tried to contact the public relations contact for BrainStorm three times (two emails and a phone call) to ask, but I’ve had no success in reaching anyone.

Stay tuned. I’ll let everyone know what, if anything, I find out about this trial.

Ed

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There’s really nothing new here. It’s well know that heat can adversely effect people with MS and exercising generates body heat. When I exercise I need to lower the a/c, or run a fan or wear a cooling bandana. Is anyone surprised by this? Was this study really necessary?

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CBD oil, under the tongue before bedtime, can help a lot.

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What needs to be kept in mind about this is that this is only tentative approval. Final approval, if it comes, isn’t expected until 2020.

 

Ed

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Thanks for all of the info, Jilleen.

We, of course, have assistance organizations such as the MS Society here in the States and there are church groups, etc. And there are also some government assistance programs. This article actually looks at using robots as “virtual” assistants.

I’ll probably be writing one of my columns about it in the next week or two.

 

Ed

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Thanks for all of that information, Jilleen. We appreciate your willingness to share and I wish you success with your art.

Ed

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I’d sleep through the night!

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Hi Taylor,

Thanks for joining the forums and taking part in our discussions.

It’s hard to say whether your symptoms indicate MS or not. I think you’ll find that MS is different for everyone. Fatigue is certainly a frequent symptom as are brain fog and  numbness. But they can also be symptoms of other things.

An MS diagnosis generally requires several different tests over a period of time. These include an MRI of the brain plus the neck and spine. There are specific physical examinations for walking, balance, strength, eyesight, reflexes etc. Also, a spinal tap may be used to confirm an MS diagnosis, or rule it out.

Hopefully, your neurologist is an MS specialist. I’ve found that a general neurologist doesn’t always see what a specialist will see.

Best of luck to you,

Ed

 

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Thanks for the ideas, Nancy.

Even though I like to swim and walk in the pool to help keep me moving, I never thought of it as an item for an accessible home. I’m glad that you mentioned it.

Replacing the towel racks with grab bars is also a great idea. I wonder how many of us have started to slip, grabbed for a towel rack and pulled it right out of the wall as we hit the floor.

Ed

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Mody,

I’ve never seen the abbreviation MMS1. What is it, please?

Ed

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Hi Jackie,

It’s been a long time since I’ve had a bath, but I don’t really miss them.

Have you investigated a walk-in bath? You can’t stretch out, flat, and soak but you can sit in them and enjoy some of the bath benefits.

Ed

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Mary,

Good suggestions. Thanks for taking the time to share them.

Ed

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Irina,

The about half an eye-dropper of the oil, under my tongue at bedtime, has relaxed my legs a little. They seem to jerk and cramp less, allowing me to sleep better. It doesn’t always work well, but it does seem to help most of the time. But, a small bottle costs about $80 and isn’t covered by any insurance here in the US.

Ed

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Tom –

Thanks for the very useful info.

Ed

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Hi Jeanine,

I’ve heard others complain about problems swallowing, just as you describe. It’s a known MS symptom and I’d certainly discuss this with your neuro. Meanwhile, here’s some info that may help.

Ed

https://www.nationalmssociety.org/Symptoms-Diagnosis/MS-Symptoms/Swallowing-Problems

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Hi FB,

Thanks for that great info about Vitamin D. At the recommendation of my neuro I’ve been taking D3, 2000 units, for many years. Does it help? Who knows? But it seems to be a good thing to do.

By the way, I’m a fan of Professor Giovanonni. There’s a ton of useful information on his blog.

Ed

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Hi Jordan,

Here’s the column. You can find others if you search for The MS Wire from the home page here. If you search for pregnancy you might find other information as well.

Ed

https://multiplesclerosisnewstoday.com/2018/12/14/multiple-sclerosis-pregnancy-dmts-new-study-relapse-disability-progression-natalizumab/

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Thanks for the info, Jilleen. There does appear to be a connection. It’s the subject of my next column, which will be published Friday.

 

Ed

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Hi Dominik,

Welcome to the forums.

I know a lot of people for whom natural CBD oil has been very useful.

I think it’s useful to share information about it and appreciate the information that you provided.

Ed

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Thanks for the suggestions, Daniel. The bath chair can be a big help.

Ed