caregivers

A new online resource, LiveWiseMS.org, aims to raise awareness about multiple sclerosis (MS) and provide patients and caregivers information about the disease’s symptoms and conditions. The platform, developed by the International Organization of Multiple Sclerosis Nurses (IOMSN), hopes to promote healthy living and improve quality of life for MS patients and their families.

MS Alphabet When it comes to multiple sclerosis, mastering your own understanding of the disease means you need to mind your P’s and Q’s, dot your i’s, cross your t’s, and recite your ABCs. There is so much to know about this complex disease, but the more you know as…

There’s a new kid in town by the name of LiveWiseMS. Partnering with the International Organization of MS Nurses (IOMSN), LiveWiseMS has already become a trusted resource for patients and care partners looking for answers about MS. The website’s mission is…

A number of important discoveries, therapeutic developments, and events related to multiple sclerosis (MS) were reported daily by Multiple Sclerosis News Today throughout 2016. Now that the year is over, it is time to briefly review the articles that appealed most to our readers. Here are the top 10 most-read articles of 2016, with…

I make no secret that I believe MS nurse practitioners (NP) are the people who make the difference in an MS clinic. They are as knowledgeable as most neurologists when it comes to treating multiple sclerosis and usually can see their patients without the time constraints that doctors face.

Family Caregiver Month is observed each November, and it is estimated there are more than 90 million family members in the U.S. giving full-time care to people who have complex needs. In recognition of the work of the multiple sclerosis caregiver community, pharmaceutical company Genentech, a subsidiary of Roche,…

Continuing to live in your own home when you can no longer look after yourself is an ideal many people seek to aspire to – but it’s not easy. Outside help is often needed. Alex Camarillo is one perfect example of this. He is 35 years old, has severe…

A new study from France delves further into the life of multiple sclerosis (MS) caregivers and how they are perceived by MS patients, physicians, and the caregivers themselves. The report, “EVASEP: A Noninterventional Study Describing the Perception of Neurologists, Patients, and Caregivers on Caregivers’ Role in the Support…

A study exploring the difficulties parents experience when their child develops multiple sclerosis (MS) found that more support and education — from healthcare and school staff, as well as by parents themselves — is key to easing the burden of a child or teenager with this disease. The study, “Parents’…

The Multiple Sclerosis Association of America (MSAA) recently announced the official launch of My MSAA Community, a free online community forum supporting people with multiple sclerosis (MS), and their caregivers and family members, and offering a way for patients to connect with others facing the same challenges. MSAA is…

A new study  focused on an aspect of multiple sclerosis (MS) that is sometimes overlooked by researchers: progressive dwindling, or the tendency over time for people with MS to become increasingly frail and dependent on caregivers, with diminished energy and heightened disability. The report, “Progressive Dwindling in Multiple Sclerosis: An Opportunity…

There have been plenty of interesting stories on Multiple Sclerosis News Today over the last seven days. Here is my Pick of the Week’s news. Tremors Linked to MS Poorly Treated with Symptomatic Medication, Study Finds It will come as no surprise to those of us with MS that disabling tremors,…

Caregivers of people with multiple sclerosis (MS) are often burdened by fatigue and depression, even anger, all of which can unwittingly reduce the quality of care given — although they remain quite empathetic, according to a study. The research team at the University of Manitoba in Canada suggested that tending to the needs of people caring for…

The National Multiple Sclerosis Society announced that it has received the largest gift ever given the organization by an individual — a $3 million, multiyear donation to establish and fund the Edward M. Dowd Personal Advocate Program, which aims to improve and expand personalized case management and care for people with…

Dr. Rosalind Kalb, vice president of the Professional Resource Center at the National Multiple Sclerosis Society in New York City, recently presented her work at the 2016 Annual Meeting of the Consortium of Multiple Sclerosis Centers (CMSC) June 1-4 in National Harbor, Maryland. She participated in several symposiums, primarily “Gaining Perspectives on Advanced…

A new model of care implemented to address the needs of patients with progressive multiple sclerosis (MS) and their caregivers has proven beneficial by reducing hospital stays, avoiding major care expenses, and improving patients’ satisfaction. The model has been tested in MS patients with high disability scores, and preliminary results of…

Sanofi Genzyme recently launched vs.MS, a global initiative to raise awareness of the often unspoken physical and emotional burden of relapsing multiple sclerosis (RMS) on people living with the disease and their care partners. On World MS Day yesterday, the company called on the MS community to learn more about the…

When the 2016 annual meeting of the Consortium of Multiple Sclerosis Centers (CMSC) opens June 1, marking the organization’s 30th anniversary, at its head will be its executive director, June Halper. The honor is fitting. Halper, a nurse practitioner with a specialty in multiple sclerosis (MS) since 1978, has…

To celebrate the many family, friends, healthcare professionals, and advocacy communities offering vital support to people living with multiple sclerosis (MS) day after day, MSWorld and Biogen have created the #MySupportHero program. The social media campaign runs through March, MS Awareness Month, to allow people with MS to thank all those who encourage and…

Children’s Health of North Texas has been designated  a Center for Comprehensive MS Care by the National Multiple Sclerosis Society, making it the only pediatric healthcare system in the northern part of the state with such a recognition. The Comprehensive MS Care designation acknowledges an institution that delivers quality, full patient care in a…

A new randomized and controlled trial is recruiting multiple sclerosis (MS) patients to investigate the effect of a mindfulness-based telemedicine intervention program on patients and their caregivers. The clinical study’s protocol was recently published in the journal Trials, titled “A telemedicine meditation intervention for people with multiple sclerosis…

People caring for multiple sclerosis (MS) patients can have substantial physical and psychological health concerns, and their care can adversely impact their employment, according to research findings recently published in the International Journal of MS Care. The study is titled “Care Partners and Multiple Sclerosis,…

Multiple Sclerosis News Today has reported the latest therapies, clinical trial developments, and events in multiple sclerosis (MS) on a daily basis throughout the past year. As 2015 comes to an end, here are the year’s 10 articles most widely read by  Multiple Sclerosis News Today readers, each with a brief summary of the developments…

The United Kingdom based Multiple Sclerosis Society (MS Society) recently announced £1.98 million in grants to new MS research projects in different disease-related areas. A panel of experts carefully selected 16 projects to be funded through the MS Society’s 2015 grant round, totaling £1,979,879. All selected projects fulfill the requirements of…

Genzyme recently announced a novel worldwide initiative called vs.MS, whose goal is to increase awareness of the psychical and emotional toll of relapsing multiple sclerosis (RMS) on patients and their caregivers. To enhance the comprehension of the full burden of RMS, Genzyme conducted a large-scale survey of more than 1,500 individuals…

A recent report by Marie Curie fellows organization suggests that those suffering from neurological conditions such as multiple sclerosis are missing out on care that could make a major difference in the quality of their lives. When it comes to palliative care, the report contends that there is a limited understanding about the need…

Several national health organizations have come together to design a series of continuing education opportunities focused on better managing multiple sclerosis entitled, Optimizing Multiple Sclerosis Management. Thanks to the collaborative efforts of leading MS organization for professionals, the Consortium of Multiple Sclerosis Centers (CMSC); Nurse Practitioner Alternatives (NPA), and Spire Learning, allied…

The British National Institute for Health and Care Excellence (NICE) updated their guidelines on the provision of health care for multiple sclerosis (MS) patients in the United Kingdom, which number approximately 100,000 people. The institute recommends now that every patient who is suspected to suffer from the…

The first step to effective caregiving for those with Multiple Sclerosis is caring for oneself, according to researchers Marie Namey, a clinical nurse specialist in Multiple Sclerosis at the Cleveland Clinic Main Campus, and Ellen Reardon, a dietitian at Walden Behavioral Care. The presentation “Compassion Fatigue: Caring for the…

The network of nationally recognized Multiple Sclerosis centers continues to grow throughout the United States. Recently, the Multiple Sclerosis Clinic at University of Texas (UT) Medicine San Antonio was selected as the new Multiple Sclerosis Partner in Care, a recognition granted by the National Multiple Sclerosis Society. The new…